Just had a phone call from Harefield

[misdee]

sadly not a transplant call (sorry). The carers are wanting more people trained up in preparation for the summer holidays. Seems like everyone is now preparing for the long haule now, no more dreams about it being temporary. [sighs]

Oh Misdee, I got really excited there sweetheart .

I'm sorry, Misdee. Keep your chin up, you're such a strong, inspiring person.

OH I should be ready to email you tonight with dd's penpal. I finally got the last of the info collected this morning.

surely they are beind cautious and planning ahead Misdee, they can't be caught short with no carers over the summer can they?

Message withdrawn

seems so wrong to be preparing for summer hols already

Misdee. Am keeping everything crossed that the call comes soon.

phone went along the lines of

'hi Its L from the VAD team, how is peter'

fill her in on peters current state, pain etc etc, then jokingly say

'thought it might be someone calling to say you have a heart for him'

'oh no that would be the co ordinators'

'yes i know, but its been so long.....'

(((Hugs)))

How are you Misdee?

Awwh Misdee I thought this was it too.

Hope it comes soon misdee - I really do.

I thought this was it too, misdee. Really hoping you get that call soon.xx

I thought it was the call to but the lack of exclamation marks suggested otherwise.
Hang in there.

when its the call, it will be up there with lights and bells on.

I thought of you this morning - piece in Metro about organ donation (statistics). Wondered if you'd thought about contacting them to do a RL face-of-being-on-the-list piece?

Hmm-I had a feelng that would be the case which was why I didn't get too excited.

SO sorry you are still waiting but hopefully with more people trained you won't ever be without a carer-and once Peter has his new heart those carers will be of great help to others.

HM we are in talks at the moment of doing an article highlighting the height issue, length of time on the list and the length of time on the LVAD (658days now)

With Metro? That's brilliant, Misdee. I was tempted to go "look, have you all seen this article? I know someone who's on the list - please can I urge you all to become donors and tell your nearest and dearest of your wishes" but I wasn't brave enough - commuters are scary. I did wonder about passing out leaflets of some sort though.

och misdee, i thought that was the call for a wee minute there. hopefully they're just working ot rotas now for holiday cover and it doesn't actually mean anything.

freelance journo, but usually once article appears we get several more offers.

hunker I once stood on Waverly station, having just got back from visiting my dad in hospital, and handed out loads of leaflets to complete strangers highlightin organ donation. I know what it's like to live with someone waiting for the call to come.

Misdee, I didn't know anything about this at all. What exactly is wrong with your ds? (or is it dp?)