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See all MNHQ comments on this thread

Psoriasis ‘cures’ anyone??

113 replies

DeathByMascara · 01/12/2017 19:58

Please help! It’s growing from my hair to my face and ears - it’s noticeable. Stress is causing it, but I can’t do anything about the stressful situation, so does anyone have any remedies that work??

OP posts:
BeyondAssignation · 03/12/2017 08:41

When you say she "tried everything" are you including the chemo drugs in that?

By the way, the best "general" moisturiser for my skin between flares is palmers cocoa butter. I've tried other cocoa butter ones, but they aren't the same. And I use soap, not shower gel (weirdly soap is better for me than the cream thing that I can't remember the name of)

BeyondAssignation · 03/12/2017 08:42

When I'm on holiday it clears up thinking

I'm looking forward to moving nearer the equator Grin

Emus · 03/12/2017 10:22

This post is petrifying me (heart disease, lung conditions, arthritis etc).

I have scalp psoriasis (coverage is about 50-60%). I am on a ten month waitlist to see a dermatologist (Feb) as GP has exhausted all available treatments with little/no effect. It's dangerously close to my face now.

Unfortunately all my immediate family suffer (one of my brother has the injections as his is terrible). I feeling guilty that I've probably passed this awful disease to my kids (mine only really flared after my last child).

In January I am going to cut out diary up until my appointment to see if that helps. I sympathise with anyone who has this condition, it's the unbearable 24-7 itching that I cannot cope with.

DivisionBelle · 03/12/2017 11:20

Emus; worrying, but my Mum has psoriasis (which she does manage to control with aloe vera: the patches get smaller and the itching subsides) and is going strong at 87.

drfostersbra · 03/12/2017 18:47

My grandad had it and live to be 93 it's also to do with how fit you are and how healthy your lifestyle.

BeyondAssignation · 03/12/2017 19:21

I don't mean to put a downer on that, drfoster, but when I was diagnosed with psa my health was great. It isn't self inflicted.

Six years later and I'm physically disabled and very unhealthy.

LineysRunner · 03/12/2017 19:44

I also agree with pp saying the NHS should stop confusing an auto-immune disease with a 'skin condition'.

I have the whole selection box - Hashimito's, eye ulcers, painful joints, Dvt/pe - and no-one ever connected the dots for me to enable me to curate my own health choices until I came on MN and a scientist MNetter mentioned it.

And I have a science PhD myself. And years of hospital consultations and in-patient treatment. It's scandalous, really, that we were left in such limbo.

It's an extraordinarily serious health condition, treated like a bit of bloody dry skin by most GP's.

Mine has been massively improved by thyroid and hormone treatment, seriously good quality frequent moisturiser e.g. Doublebase, consciously reducing stress (though less money Sad ) and seeing a consultant dermatologist. And the Dead Sea definitely helped me.

Btw - please do NOT stop using steroid creams without gradually weaning yourself [your skin] off them first.

MaisyPops · 03/12/2017 19:47

One of my friends had high intensity light therapy which worked well.
Between that and changing careers to be less stressed she has to pushed right back and you wouldn't know she has psorisis

DeathByMascara · 04/12/2017 20:23

Thank you all so much for all your stories and suggestions. I feel a bit like a fraud, as I’m nowhere near as bad as some of the stories on here! But, as you’ll probably understand, the discomfort and embarrassment gets very frustrating.

I will report and ask MNHQ to move this to General Health, as it seems to be helping others too.

OP posts:
Hebenon · 04/12/2017 21:06

DH has psoriasis all over his body (not face so much but arms, legs, some of his torso and some head patches under hair). The only things that have worked for him are

a) UV therapy - but as he is blonde, blue-eyed and has lots of moles he cannot have too much of this
b) coal tar ointment which has a low-strength steroid in it - he uses this about weekly
c) cutting out alcohol

He also uses cetraben ointment daily to keep the flakes under control and soften the skin and this really helps with discomfort. Vit D has also helped in the past with flare ups.

CarolineMumsnet · 04/12/2017 21:24

Hi OP! Looks to be some great advice here - we'll be happy to move this one over to general health for you. We'll be pinging it across soon Flowers.

LurkingHusband · 04/12/2017 21:53

Coal tar.

You used to be able to buy a cream preparation of it (beige/green tube) but I haven't seen it for years.

lizsparkles · 05/12/2017 19:34

Check with dermatologist. If its due to any underlying inflammation, here are few more remedies you can try:

  1. Add turmeric to hot water along with lemon juice and drink it in morning everyday
  2. Take more natural yogurt everyday
  3. Eat Broccoli as it has antiinflamatory properties
  4. Take hot water shower
  5. watch out for any other symptoms
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