Psoriasis ‘cures’ anyone??

[DeathByMascara]

Please help! It’s growing from my hair to my face and ears - it’s noticeable. Stress is causing it, but I can’t do anything about the stressful situation, so does anyone have any remedies that work??

Sunbeds have always worked for me. A couple of weeks, going every other day, and it usually clears up or at least reduces to levels where is not bothering me.

Sorry to hear about your dad. Exorex was the one thing that shifted it from my face, I also used Dovonex on my arms which worked on them to some extent but caused itching. I ended up buying exorex OTC as it wasn't available on prescription.

However I know some people find exorex no help at all and get good results from dovonex.

I’ve tried dovobet, betnovate, most of the other ointments mentioned. No joy. Ditto shampoos.

Heard good things about Moo Goo from Australia so when it arrived locally I bought some scalp ointment. Still picking out scans every bloody day from where it’s itched until bleeding.

I haven’t had this since the kids, but I had those pits in my nails occasionally - can’t remember the type of psoriasis that is.

I got sold nettle soap recently for a friend which is allegedly s cure all

link between psoriasis and diabetes (albeit type 2 not GD)

I heard about this and kept thinking it would be sensible to switch to a low carb diet. Will give it a go so thanks for posting this!

I’m 60% covered.
I’m on methotrexate and leflunomide and a variety of creams. It’s not working
Light therapy did not work
So I’m moving on anti TNF injections in the hope it does something.
I’m sitting here now and I can feel a particularly bad patch on my back cracking.

The worst bit is inverse psoriasis I hate that.

Please go and see a dermatologist. I should have gone years ago and I probably wouldn’t be in this situation now

Oh and I’m having some of my nails removed as they are horrendous. Go and get a referral before it gets too bad

In terms of cure the nearest thing that works for me is the one of the biologic immunosppressants.

I've tried pretty much everything else in my 30 years of having severe severe psoriasis and Stelara is the best thing I've ever tried. Literally has changed my life. I forget I have psoriasis now until I get little patches which reminds me to expect a call from the nurse to arrange my next injection (every 3 months)

I also wish the NHS wouldn’t describe it as a skin condition. It’s a disease. It’s an auto immune disease. It has other effects on you too. Your more likely to have heart disease, kidney disease etc etc. It can escalate and you can get psoriatic arthritis (which I have). A lot of the strong medication they can prescribe for it can make you more likely to get skin cancer.

It’s very much not a skin condition

I had it really badly all over my torso in early twenties. Spent a month in Italy in the sun and visited the ‘Terme’ spas they have in Tuscany. It’s smelly sulphurous white clay type stuff in the hot springs in the thermal spas there. Each spa has clinics and all sorts of other dermatology treatments but most people go to laze about in the pool.

Did no end of good and my psoriasis never returned. (Large bleeding scabs - really nasty)

An idea for a holiday when you get a chance anyway?

Best of luck

@Doodlebug5 totally agree. And the psychological impact is enormous and yet so rarely acknowledged or discussed.

The treatments have come on so much in the last 20 years though (believe me I've tried most of them) . Getting under a consultant is key though

I've had psoriasis most of my life and have tried all the creams and lotions, have had coal tar and light treatment and nothing works on me. The only thing that has an effect generally on my skin is stress levels.

For my scalp both me and a friend of mine have found that bleaching our hair has cleared it up completely, it sounds harsh and it hurts the first time as it literally burnt it off but it has gone completely on my head since bleaching it, same for my friend, and neither of us have to use the stinky medicated shampoos anymore.

Doodlebug, I completely agree.

I was diagnosed with a (currently) mild but chronic lung condition which the (private) specialist tested me for "because you have psoriasis".

I was asked if I would allow my details to go on the research database for that condition. I said no because saying yes appeared to grant access to my entire medical records forever. However, I asked if there was an equivalent for psoriasis at the hospital because I felt more willing to put my discomfort aside for that and it seemed really important if that was the primary underlying cause of the lung condition. I was greeted by a blank look and a "maybe you could talk to someone in dermatology". Aside from the fact I haven't seen a dermatologist in nearly 30 years, I find it really odd that they seem to latch on to the most obvious visible symptom and treat anything else as completely separate.

When I asked the specialist why, if this condition was likely to be due to having psoriasis, no GP had ever asked me a single question about it when it clearly has such wide ranging and potentially serious implications, his response was "because they don't know about it".

Brilliant.

And given around 2% of the population have it, you'd think it would be worth their while getting their head around it a bit more

Mine was absolutely chronic OP, from my neck to my knicker-line my skin was red raw and flaked constantly. My bra would be full of skin by the end of the day (sorry to be so graphic but thought it would help to know how bad it was). 6 sessions on prescribed sunbeds and that was it. Sorted. It never came back either, not to this day and this was about 8 years ago

I have pulmoplanter pustulosis Psoriasis, it effects the soles of the feet and palms of the hands, I have had it over 15 years and have tried almost everything, I'm now under the hospital as my local dermatologist can not do any more for me.
I'm currently on
Prednisone
Methotrexate
Folic acid
Exorex
I also have psoriatic arthritis in my ankles and wrists and walking is so very painful.

Oh yeh the psoriatic arthritis is amazing. I have currently 28 joints that are affected. I need a hip replacement in the next five years because the damage in my hip is extensive. I’m 30.
My toes are literally sausages and painful. I haven’t worn high heels in years as I can’t manage pressure on my toes.

Psoriasis- a skin condition

Any of you with an arthritic component need to go to your GP and DEMAND to know why you aren’t on a biological like humira (others available too.) It can be quite literally life changing.

The reason is it’s expensive and methotrexate is cheap as chips. Butbpush for a trial

Try Azaliac acid cream .

Lots of positive studies around it and you can get it on amazon!

www.ncbi.nlm.nih.gov/pubmed/20684146/

High doses of Vitamin D3.

Also if you're a smoker with psoriasis knocking the fags on the head will really help.

Another vote for light therapy. I was hospitalised regularly up to 19 years old, really awful chronic eczema. One course of light therapy more or less cured it, miraculous.

Methotrexate has mine controlled compared to what it was, but it still flares every autumn/winter

I have psa too.

They won't put me on a biological as despite obviously affected joints and skin, my bloods are now just at the higher end of normal. They have at the last appt upped my dosage though, so we'll see how that goes.

Pip and Mcp joint affected in this finger. Doesn't it look attractive!
I'm 31.

I've had psoriasis since my teens and my psa appeared just after I had my ds2 when I was 26 (while I was still breastfeeding, I eventually had to stop earlier than planned to start hardcore meds). Both had completely disappeared in pregnancy.

One thing that did help my scalp (last post, I promise!) was bleaching my hair. It pretty much cleared up completely then, but unfortunately I couldn't keep it up forever as it was frying my hair!