Test for Cystic Fibrosis

[jenk1]

DD has her test this thursday at manchester childrens hospital.

ive pushed it to the back of my mind these last few weeks but its here this week.

Tbh i wont be surprised if they tell me that she has CF, as ive often wondered in the past, im sort of preparing myself for the worse.

She will probably kick off as she does when she has appointments that involve doing stuff to her, she wouldnt unclench her left arm for over 2 weeks after she had blood taken from it

why are the testing? is her chest still bad? poor love.

its a sweat test? how invasive is that?

hiya misdee, yes her chest is still bad, she,s now on steroids,singulair powder in her food and the orange inhaler, she has sleep apnea and has lots of secretions.

i should say, she was on steroids, they have took her off them and her chest has got bad again, her respiratory consultant says he,s concerned cos when she goes on Anti D,s,steroids, her chest gets better.

So at least we will know one way or another.

How old id your dd?
My ds is 2.2 and on three different inhalors, singular and for the last six weeks he has been on permanent antibiotics which will carry on indefinatly. CF has been mentioned a few times but he's never had the test do you think it worth asking consultant.

jenk1 has your dd got any other symptoms other than the bad chest.

hi ali bobins, sounds like your ds is on same as my dd, she is on orange,brown and blue inhalors and a year ago she was put on antibiotics for a few months which made her chest/asthma better and when they took her off them her problems came back.

DD also has CP mainly in her legs and im not sure if her muscles in her chest are affected and thats whats causing this.

its worth asking your consultant if only to give you piece of mind, i wish i knew what i did a year ago cos i probably would have asked for her to be tested.

HTH

Thanks i will ask we are there again next month.
He's on ventolin (blue)
Atrovent (white)
Seretide(purple)
singular
prednisolone when needed and we also have a nebuliser at home.
Then the azythromicin antibiotics and still ended up in hospital last month

dd had a sweat test when she was about 2. It took about half an hour total with the machine on her arm for about 10 mins. The sensation is a bit like a tens machine. dd didn't like it much but was distracted with toys etc