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Febrile Convulsions, I've never been so scared in all my life

61 replies

Emskilou · 29/03/2007 18:57

My dd (aged 2 and 3 months) woke up ill with a slight temp on Tuesday, I called the dr out as I didnt want to take her out and my drs surgery is impossible to get into with a double buggy.

He arrived at around 11 am did the quickest examination I have ever seen and said she had an ear infection, prescribed antibiotics and advised to give calpol to keep temp down. I did all of that and kept her in just a nappy and her temp was staying down.

It got to around 5:30 and she fell asleep on the sofa, she was not covered in a blanket I didn't want to get her temp up.

Anyway I was making tea for me my ds and my nan (she lives with us) I was bringing the dinners through when my nan yelled 'Oh my god, I dont know what to do!!!' and screamed my name. I thought one onf them had pooed and it had leaked. I dropped the dinners on the side and ran into the lounge my precious dd was fitting, going blue and foaming at the mouth. I was so scared I screamed, I didnt know what the hell to do I threw the phone at my nan and yelled at her to get an ambulance. It felt like it took them forever to arrive, Iwas shaking and crying, my poor ds didnt have a clue what was going on and was crying too.

THe fit lasted approximately 3 minutes and she fell asleep for a little while and the paramedics arrived, I carried her into the ambulance, she was very scared and was dozing on and off, she was so pale. We got to A&E where the amazing nurse weighed her immediatelly and took her temp, it was 41. I couldnt believe it, literally half an hour before it was 37.6, I was being slightly neurotic and checking it every half hour. She was given a huge amount of calpol (probably wasn't that huge but was more than the 5ml I was giving her) and some nurofen. She didn't like that too much, but took it very well. THe nurses surrounded us with fans to help her temp to fall.

They were then taking history whilst she was sat on my lap when she started to fit again, the nurse took her away from me into another part of A&E I followed crying my eyes out and shaking like a leaf. She was put on a huge bed and looked so fragile and small. SHe was given oxygen and wired up to all kids of machinery checking everything. Her temp wasn't going down quick enough. SHe had another 2 fits while she was there and then finally her temp started to come down. After the fits it was almost as if she couldn't see me, I was so so so so scared. I didnt know what was going to happen.

We were then taken up to the childrens ward where we stayed over night, she didnt have any more fits but her temp kept spiking without warning going up to 40 each time. Obviously I didnt sleep a wink I was too scared to, the drs and nurses up there were astounding, I couldn't believe the work they were doing, they were truly amazing and really put my mind at rest.

THe pediatricians told me that she in fact had a bad case of tonsilitis and were surprised the gp didnt notice, I said that may have something to do with the fact he didnt look in her mouth, they were shocked, so was I but I was too concerned about my dd to get annoyed.

Obviously we are back home now and she is on antibiotics, calpol and nurofen. I am still neurotic about taking her temp so much so that she said to me today 'Mummy please stop it and go away' When she said that I knew my baby girl was on the road to recovery.

Not sure why I have posted this, I guess I felt so helpless and scared and annoyed at myself that I knew very little about febrile convulsions and what to do when they happen. I now know that they are quite common in babies and children up to the age of 5 and you should be worried if the fits last for more than 4 minutes. And that when your lo is having a fit they should be in the recovery position so they do not choke on anything. I think this has prompted me to go on a first aid course I went on one 10 years ago but obviously I need a refresher.

I am toying with deleting this whole post but it has taken a while to type so think I'll just post anyway, thank you for reading this

OP posts:
DarrellRivers · 29/03/2007 19:03

You poor poor thing
When i was a junior doctor, we used to see febrile convulsions all the time in A=E adn I don't think i ever realised until I was a mother quite how scary and terrible they must be.
My Dcs have never had one, but it must have been a horrible experience. Hope she gets back to 100% quickly

Taylormamaloveslindtbunnies · 29/03/2007 19:05

that is very frightening ((((Hugs))) hope your DD is ok ... doctors sound wonderful

DrMarthaMcMoo · 29/03/2007 19:08

It sounds absolutely terrifying - you poor thing (and your poor dd, of course - but definitely more scary for you ). I've never seen a febrile convulsion but I know they are quite common - I also think (someone will correct me, I'm sure, if I'm wrong) that if your child has had one once they are more likely to have them again when poorly.

I think a first aid course is a really good idea - then you'll feel better prepared if there's a next time (I would have panicked, just the same).

Hope your dd continues to feel better.

Tinkerdumpsandruns · 29/03/2007 19:10

They're very very scary aren't they? My eldest had one when she was about 18 months old. She's never had one since though

tribpot · 29/03/2007 19:12

A friend of mine had a very similar experience with her ds when he was about a year old. It was absolutely horrifying for her and I have been hawk-like whenever my ds has had a temperature since then.

Sounds like you coped brilliantly, it must have been a horribly frightening experience for you.

Emskilou · 29/03/2007 19:17

Thank you all for reading this and your kind words. I cannot describe how frightened I was, I would not wish this or anything even remotely like it on anyone. I felt like a terrible mother for not knowing what to do. I cannot sing the praises of the drs and nurses at the hospital enough they were superb, absolutely amazing. THey did say that it is likely that she would suffer from them again as she had so many in a short space of time ut although it will be frightening I will be able to cope a little better and stay a lot calmer, well that is what I am hoping anyway. I think she is well on the way to recovery, although very pale and weak she has got the sparkle back in her beautiful eyes. Thank you again em xx

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crazylazydaisy · 29/03/2007 19:49

Oh Emskilou, I have gone cold all over. Like re-enacting my experience last year. Real feel for you. I found my ds head first after his first fit, i thought initially he had swallowed something and did baby Heinrich manouvere (sp?) on him! I thought i would never leave him alone in a room again, never take him swimming or to the park, or get back to my normal life, never relax again, but I did and you will too.
The good thing - if there is any comfort- is that at least they have linked the convulsion to high temp so there is a reason it happened.
And remember, if ever it happens again- you will never be as scared as the first time. Small comfort i know when you have gone through such a terrifying time, but it's true xxxx

tribpot · 29/03/2007 19:59

Emskilou - my friend was given something like temazepam to adminster to her ds if it happened again (admittedly it was for 'up the ass administration' but that's Sweden for you) - I assume they don't do anything like that here. But as you say, at least you will be better prepared next time. I really feel for you, what an awful experience.

Emskilou · 29/03/2007 20:02

They said that should this happen again they will prescribe diazepam (sp?), which will be up the bum medicine unfortunately, but I'd do anything to stop the fit. It was so horrible to see cant get the images out of my head

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LoveMyGirls · 29/03/2007 20:06

My dd1 had one of these when she was around the same age as your dd and I also had one when i was 18mths old, dd2 is now 18mths and i'm freaky about her temp.
Both mine and dd's was triggered by temp shooting up, I wasn't with dd1 when her's happened, she seemed her normal self and had gone out for lunch with her grandparents she hit her knee on the table by accident and started screaming - her temp shot up and she had a convulsion. we were in a different city about to go christmas shopping I don't know how dp managed to drive us to hospital, I was amazingly calm and we got to the hospital just as the ambulance arrived she was ok of course - thank god!

I can totally sympathise with the way you must feel, i remember getting dd home and safe in bed (she didnt have to stay overnight) and i just totally broke down in tears thtas when the shock of what had happened that day hit me. I hope i never have to go thorugh that again. I am now first aid trained but I don't know if would handle it well at all.

(((((((((((((((((((((((hugs for you and your dd)))))))))))))))))))))))

meysey · 29/03/2007 20:09

What a nightmare experience.

Both my kids had a febrile convulsion around the age of 2. I felt lucky to have missed each one as by an odd coincidence they were with my wonderfully calm DH each time,so I got to see them at the feeling better but in A&E stage. (I would have been in a blind panic).

We were told that most kids only have it once, and then the brain kind of resets and is less vulnerable to them. Also that it often runs in siblings.

Hope that's the end of it for you.

baggybelly · 29/03/2007 20:11

thanks for posting your story Emskilou it makes for scary reading and I felt all emotional reading it. Thankfully I haven't experienced anything like a convulsion with my LO's (fingers crossed I wont) but unfortunately I know how terrrifying it is to see them lying in a hospital bed, when you suddenly realise how tiny, precious and fragile you're little one is and how you'd do absoloutely anything to make them better - time seems to stand still.

Your post has made me realise I wouldn't have a clue what to do in the situation you experienced - I am going off to look up a local first aid course right now! thanks x

pollyanna · 29/03/2007 20:12

It's awful isn't it? I completely sympathise with you. my ds had one episode of fits when he was 13 months and my dd3 has had lots of fits - she is 2.2 now and the last was a couple of weeks ago.

I would suggest getting one of those braun ear thermometers and being very vigilent. my dd's temp only needs to go to 38 and she has a fit. if there is a sign of a temperature start on calpol and nurofen (alternated), take her clothes off and use tepid (not cold) water to cool her down.

it's easy to say, but try to remember that your dd doesn't suffer at all and isn't even aware of the fit. Fits are very scary though - it is only recently I haven't rushed to A&E when dd3 has a fit.

Emskilou · 29/03/2007 20:23

Thanks pollyanna and thank you all for your kind words. Pollyanna how on earth do you cope?? You must be very strong, I went to get one of those thermometers today but boots had sold out I found that out once I finally got through the sales person what a thermometer was, I was so angry and I didnt want to stay out any longer and be away from dd, I haven't put her to bed tonight she has fallen asleep on the sofa, I'm too scared to let her out of my sight

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crazylazydaisy · 29/03/2007 20:29

Go with exactly how you are feeling Emskilou. My ds slept in my room for 6 months after and i woke up at least 3 times a night to look at him. I felt I had to talk through the episodes again and again with dh, till i had got my feelings out a bit.

Gess · 29/03/2007 20:30

ds3 had one with an ear infection as well. He just passed out for 8 mins- couldn't rouse him at all, and he was all floppy- they said it was an absence type febrile convulsion. He was the same - quote cool so I left him to sleep then shot up. I called an ambulance too- he was kept in overnight, and we were sent home with stronger calpol than I had been given (6+ stuff for a 2 year old).

Kbear · 29/03/2007 20:35

Emskilou - I have been there and I know exactly how you felt and are feeling now. I thought I would never get over the fright of seeing DS blue and lifeless on the dining room floor.

I took a paed first aid course afterwards to give me some peace of mind because I was horrified that I wasn't sure how to resuscitate a child and I had two! This is something they should teach you when you're pregnant instead of all the useless breathing exercises that don't work!!

Hope DD is on the mend soon and hope your frazzled nerves mend too.

Emskilou · 29/03/2007 20:36

Yes they have given me medinol and she has 8.5 ml 4 times a day, nurofen which I alternate and her antibiotics. She is sound asleep next to me on the sofa, she looks so small and delicate, it was only on Monday I was thinking how big she was compared to ds.

My nan has been shaken by the whole experience too, poor lady she is looking forward to going on a first aid course, just to get her confidence back with the children.

Its all just horrible I keep seeing her when she was having the fit makes me feel ill

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Emskilou · 29/03/2007 20:38

Thank you kbear, I was shocked at how common they are and how little I knew about them and how I knew bugger all about what to do in the situation, think you are right about teaching first aid instead of half arsed breathing techniques that just made me feel light headed!!

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sohappyicouldcry · 29/03/2007 20:59

You really had a shock didn't you. I'm a paramedic and as such see quite a few febriles. Have absolutely no idea how I'd cope if it was my own though! Bit different doing stuff at work with all kit but none at home ! Well done for going on a first aid course. I think they should be part of the antenatal training too. we were supposed to have baby resus during our postnatal group, but it got cancelled unfortunately.
The good thing is that the fit was definitely temp related. Febriles do NOT mean a child has epilepsy, and she shouldn't have any fits after she turns 6 or 7. Until then, keep a close eye on her (sure you'll be watching like a hawk now) !

Well done and give her a big cuddle from all of us. Hope she feels better soon xx

powder28 · 29/03/2007 21:23

That must have been so scary.
When my ds1 was onyl a couple of weeks old [he was four wks early anyway] we had to go to a&e cos he was really drousy and hadnt stopped screaming all day. He had really sunken fontanelles and his skin was all mottled. The doc sent us straight to RUH to the childrens ward. They put him ona drip, did all sorts of tests [including a lumbar puncture] and we stayed for three days. I was absolutely beside myself, plus i was on blood pressure tablets as a result of having pre-eclampsia in my pregnancy.
I dont think ive ever felt so terrified in my life, but he was fine in the end. Like the doctor said, they can go downhill so quickly, its scary. Glad everything was ok in the end

Emskilou · 29/03/2007 21:30

thank you sohappy, I should have mentioned earlier how fabulous the paramedics were too, seeing their green clothes immediately calmed me down and the way they were talking to me and consoling me was amazing, I take my hat off to you for the job you do.

Powder that must have been awful for you I am glad he was ok in the end. DD is still sleeping soundly, I just felt her head and neck and she pushed my hand away, she is definately on the mend

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sillysausages · 29/03/2007 21:33

febrile convulsions are very sacry and no one seems to warn new parents about the possibility
both my ds had febrile convulsions and we always had rectal diazapem for futute ones for ds1 as his fits were very severe but luckily we never had to use it

paulaplumpbottom · 29/03/2007 21:35

Oh my god that sounds awful. You handled it better than I would have. I'm so glad she is feeling better.

sillysausages · 29/03/2007 21:36

btw id not add don't worry they do grow out of them ds1 stopped at about 3 years but most children only have one fit
Glad to hear your ds is recovering

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