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Febrile Convulsions, I've never been so scared in all my life

61 replies

Emskilou · 29/03/2007 18:57

My dd (aged 2 and 3 months) woke up ill with a slight temp on Tuesday, I called the dr out as I didnt want to take her out and my drs surgery is impossible to get into with a double buggy.

He arrived at around 11 am did the quickest examination I have ever seen and said she had an ear infection, prescribed antibiotics and advised to give calpol to keep temp down. I did all of that and kept her in just a nappy and her temp was staying down.

It got to around 5:30 and she fell asleep on the sofa, she was not covered in a blanket I didn't want to get her temp up.

Anyway I was making tea for me my ds and my nan (she lives with us) I was bringing the dinners through when my nan yelled 'Oh my god, I dont know what to do!!!' and screamed my name. I thought one onf them had pooed and it had leaked. I dropped the dinners on the side and ran into the lounge my precious dd was fitting, going blue and foaming at the mouth. I was so scared I screamed, I didnt know what the hell to do I threw the phone at my nan and yelled at her to get an ambulance. It felt like it took them forever to arrive, Iwas shaking and crying, my poor ds didnt have a clue what was going on and was crying too.

THe fit lasted approximately 3 minutes and she fell asleep for a little while and the paramedics arrived, I carried her into the ambulance, she was very scared and was dozing on and off, she was so pale. We got to A&E where the amazing nurse weighed her immediatelly and took her temp, it was 41. I couldnt believe it, literally half an hour before it was 37.6, I was being slightly neurotic and checking it every half hour. She was given a huge amount of calpol (probably wasn't that huge but was more than the 5ml I was giving her) and some nurofen. She didn't like that too much, but took it very well. THe nurses surrounded us with fans to help her temp to fall.

They were then taking history whilst she was sat on my lap when she started to fit again, the nurse took her away from me into another part of A&E I followed crying my eyes out and shaking like a leaf. She was put on a huge bed and looked so fragile and small. SHe was given oxygen and wired up to all kids of machinery checking everything. Her temp wasn't going down quick enough. SHe had another 2 fits while she was there and then finally her temp started to come down. After the fits it was almost as if she couldn't see me, I was so so so so scared. I didnt know what was going to happen.

We were then taken up to the childrens ward where we stayed over night, she didnt have any more fits but her temp kept spiking without warning going up to 40 each time. Obviously I didnt sleep a wink I was too scared to, the drs and nurses up there were astounding, I couldn't believe the work they were doing, they were truly amazing and really put my mind at rest.

THe pediatricians told me that she in fact had a bad case of tonsilitis and were surprised the gp didnt notice, I said that may have something to do with the fact he didnt look in her mouth, they were shocked, so was I but I was too concerned about my dd to get annoyed.

Obviously we are back home now and she is on antibiotics, calpol and nurofen. I am still neurotic about taking her temp so much so that she said to me today 'Mummy please stop it and go away' When she said that I knew my baby girl was on the road to recovery.

Not sure why I have posted this, I guess I felt so helpless and scared and annoyed at myself that I knew very little about febrile convulsions and what to do when they happen. I now know that they are quite common in babies and children up to the age of 5 and you should be worried if the fits last for more than 4 minutes. And that when your lo is having a fit they should be in the recovery position so they do not choke on anything. I think this has prompted me to go on a first aid course I went on one 10 years ago but obviously I need a refresher.

I am toying with deleting this whole post but it has taken a while to type so think I'll just post anyway, thank you for reading this

OP posts:
Emskilou · 29/03/2007 22:33

Ok thank you I think .

I guess I am going through so many emotions that I can't really think straight, I feel so much guilt aswel, hope this passes soon, I am all they have and I dont want to be crap for them right going to kick myself up the arse...............starting tomorrow

OP posts:
LadyOfTheFlowers · 29/03/2007 22:36

i had exactly this about one month ago with ds1. he had had a infection for over a month that they (doctors) couldnt locate. it was numerous febrileconvulsions that entually got him admitted and sorted,
paramedics said lets get him and dont leave till hes fixed.
excuse typos. im pissed!lol

heya123 · 29/03/2007 22:46

hey emskilou, this sounds absolutely terrifying, i have 1 ds who is coming up for 1 in a few days and i would not have a clue what to do either if this happened to him. i am so glad that your lo's ok now and hope that you can try to put this traumatic experience to the back of your mind now.
reading something like this makes me feel so emotional about ds and i pray that this never happens to him but thanks to your post i think i will book myself in for a firstaid class, and the docs and nurses sound fantastc, hopefully this wont happen for you again x

christywhisty · 30/03/2007 00:18

Hi Emskilou
We have a long history of Fcs in our family. My mum had them and so did my sister. my sister had them up to 10 so I remember her having them, so probably not quite such a shock to me. However still panic at son's first one when he was 15 months which was caused by teething and an overheated room.

My families experience of them is very rare, Most Gps panic if children have them over 5 so son has had a full set of tests to rule out epilepsy etc.

You do get used to them, and the children really don't remember them. I don't even bother taking him to the doctors now, as it is normally a flu bug that sets him off and he just goes to sleep for the rest of the day.

Its most likely your daughter will never have another one again, and if she does it is even less likely she will have another one. My daughter had 4 altogether but they were over 2 illnesses and she 4 when she had her last one.

As I said on the other thread the most likely times are right at the beginning of the illness or when the calpol is wearing off, which is why it is important to give the neurofen at the same time

christywhisty · 30/03/2007 00:26

Hi UCM

My sister was on phenobarbital as well. They don't prescribe it for fc's so much nowadays.

ucm · 30/03/2007 01:15

Sorry a feed was due, so had to go. but Christy, I was very surprised to find out that this was an epilepsy drug to be honest. My mother never really mentioned it (she died when I was 21), and my Father only mentioned it when I was talking about my son and mentioned Febrile Convulsions to him in conversation.

It was quite awful (when DS collapsed) to find out that I was being given an epilepsy drug. My father told me that I used to ahve terrible temperatures and 'go delirious' but I think his memory must be a bit wrong because I remember talking rubbish whilst ill on a holiday when I was about 8. But Hey, who would ever trust a man??? (only joking this was the 70's)

Emskilou · 30/03/2007 13:45

Little update, she is so so much better today, so much so that she was just dancing and has given her little brother a black eye with a fifi toy.

I think all that has worn her out as she is laying on the sofa with bunny, bless her thank you all again for your kind words and advice

OP posts:
heya123 · 30/03/2007 16:13

hey just popped onto mn while ds is napping, glad 2 hear that your dd is feeling better! hopefully it stays that way

sarahhal · 31/03/2007 22:23

So glad she is feeling better and hope that you are too.

DS (nearly 4) had a seizure a couple of months ago during the night and it's just the most frightening thing in the world isn't it? He didn't have a temp and also does have odd kind of "starts" often in the day when he is over tired or off colour, so we are under a consultant and he is actually going for an EEG on Tuesday. Just hope they can decide if he is having some form of epileptic seizure so we can move on.

Hello Crazylazydaisy - keep meaning to update you on what's going on! No more major seizures but lots of day time starts and "funny turns". Am sure it's sleep deprivation - viscious circle and he often wakes up with his "starts" in the night, is a really early waker anyway, so is knackered by lunch time and then often has a jumpy do either falling asleep or whilst having a drink/food.

Sorry Emskilou, wandered off on a tangent there as usual!

Emskilou · 31/03/2007 22:54

Thank you for your kind messages, she has improved even more today, has eaten more too which is good. I am still checking her every 30 seconds but I have put her into her own bed tonight, she has been in with me until now I was too scared to let her go in her own bed

OP posts:
ucm · 31/03/2007 22:55

Lol at Fifi giving a black eye. I can't access msn at the moment but will give it another go.

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