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Febrile Convulsions, I've never been so scared in all my life

61 replies

Emskilou · 29/03/2007 18:57

My dd (aged 2 and 3 months) woke up ill with a slight temp on Tuesday, I called the dr out as I didnt want to take her out and my drs surgery is impossible to get into with a double buggy.

He arrived at around 11 am did the quickest examination I have ever seen and said she had an ear infection, prescribed antibiotics and advised to give calpol to keep temp down. I did all of that and kept her in just a nappy and her temp was staying down.

It got to around 5:30 and she fell asleep on the sofa, she was not covered in a blanket I didn't want to get her temp up.

Anyway I was making tea for me my ds and my nan (she lives with us) I was bringing the dinners through when my nan yelled 'Oh my god, I dont know what to do!!!' and screamed my name. I thought one onf them had pooed and it had leaked. I dropped the dinners on the side and ran into the lounge my precious dd was fitting, going blue and foaming at the mouth. I was so scared I screamed, I didnt know what the hell to do I threw the phone at my nan and yelled at her to get an ambulance. It felt like it took them forever to arrive, Iwas shaking and crying, my poor ds didnt have a clue what was going on and was crying too.

THe fit lasted approximately 3 minutes and she fell asleep for a little while and the paramedics arrived, I carried her into the ambulance, she was very scared and was dozing on and off, she was so pale. We got to A&E where the amazing nurse weighed her immediatelly and took her temp, it was 41. I couldnt believe it, literally half an hour before it was 37.6, I was being slightly neurotic and checking it every half hour. She was given a huge amount of calpol (probably wasn't that huge but was more than the 5ml I was giving her) and some nurofen. She didn't like that too much, but took it very well. THe nurses surrounded us with fans to help her temp to fall.

They were then taking history whilst she was sat on my lap when she started to fit again, the nurse took her away from me into another part of A&E I followed crying my eyes out and shaking like a leaf. She was put on a huge bed and looked so fragile and small. SHe was given oxygen and wired up to all kids of machinery checking everything. Her temp wasn't going down quick enough. SHe had another 2 fits while she was there and then finally her temp started to come down. After the fits it was almost as if she couldn't see me, I was so so so so scared. I didnt know what was going to happen.

We were then taken up to the childrens ward where we stayed over night, she didnt have any more fits but her temp kept spiking without warning going up to 40 each time. Obviously I didnt sleep a wink I was too scared to, the drs and nurses up there were astounding, I couldn't believe the work they were doing, they were truly amazing and really put my mind at rest.

THe pediatricians told me that she in fact had a bad case of tonsilitis and were surprised the gp didnt notice, I said that may have something to do with the fact he didnt look in her mouth, they were shocked, so was I but I was too concerned about my dd to get annoyed.

Obviously we are back home now and she is on antibiotics, calpol and nurofen. I am still neurotic about taking her temp so much so that she said to me today 'Mummy please stop it and go away' When she said that I knew my baby girl was on the road to recovery.

Not sure why I have posted this, I guess I felt so helpless and scared and annoyed at myself that I knew very little about febrile convulsions and what to do when they happen. I now know that they are quite common in babies and children up to the age of 5 and you should be worried if the fits last for more than 4 minutes. And that when your lo is having a fit they should be in the recovery position so they do not choke on anything. I think this has prompted me to go on a first aid course I went on one 10 years ago but obviously I need a refresher.

I am toying with deleting this whole post but it has taken a while to type so think I'll just post anyway, thank you for reading this

OP posts:
ucm · 29/03/2007 21:38

OMG Em, you poor thing and poor little B. Hun, I am so glad that she is over the worst. I had these fits up until I was about 5 and they disappeared if that's any help.

You were right to post though, DS had some sort of fit/faint down the seafront last week and although the ambulance said he was ok, I still needed to talk about it. As someone on here said they needed to keep going over it to get the feelings out.

What happened sounds dreadful and it will remain forefront in your mind for sometime. Poor Nan too.

KathH · 29/03/2007 21:43

ds2 had a convulsion last year when he had menigits - they never knew whether he had it due to his temperature or because of the menigits. I was terrified when i got a call from childminder to say she was waiting for an ambulance. His fit lasted about 1/2hr which they were quite concerned about. They were going to give us the diazipan for up his bum but they changed their minds & gave us some to put inside his cheek. When I got A&E from work which luckily is only round the corner he was on the recuss table still fitting having his clothes cut open. Touch wood & god I hope I havent jinxed myself but he's been fine since they just told us to be really vigilant if he had a temp. We are really paranoid about his temp & are constantly chasing him round with a thermometer is he's even slightly off colour!

Emskilou · 29/03/2007 21:43

Hi ucm, how are you doing? how are your lo's doing?

Thanks for your post, I seriously am scared of letting her out of my sight, because she has tonsilitis she hasn't eaten and awful lot and she has lost weight already so looks even smaller just makes me realise how very delcate and precious they are although T is finding B an easy target at the moment! bless him he does keep giving her every soft toy in the house to make her feel better

OP posts:
Emskilou · 29/03/2007 21:45

My god KathH that must have been so awful for you, I am glad he is doing well, I have been chasing my ds all day even though he is absolutely fine and I have been constantly checking dds temp, I think they are getting a bit annoyed with me

OP posts:
Spidermama · 29/03/2007 21:49

Emskilou you'll be in some kind of shock. I'm so sorry you've been through this. How utterly terrifying for you all.

It's great you have posted. You need to get it all out somehow. I know if it were me I'd need a good long cry at some point.

All the best to you, your dd and your nan. xx

Spidermama · 29/03/2007 21:50

Oh and your ds too.

KathH · 29/03/2007 21:51

If its any help you do get less paranoid as time goes on - for at least the first couple of months I used to go upstairs at least every 15 mins to check on him & then start prodding him to make sure he was ok which suprisingly used to wake him up! Now its only when he has a temp I get paranoid although when he had menigitis he'd been absolutely fine that morning & it was a real bolt out of the blue, putting it midly. The consultant said that if we'd got the slightest inkling he wasnt well to start on nuerofen & calpol & not wait & see if he got a temp.

Emskilou · 29/03/2007 21:53

Thank you spidermama, that is very kind of you (words seem so inadequate when I am trying to express genuine gratitude, perhaps I am crap with words) I cried so much when it happened and when she was sleeping in her hospital cot I would lay my head next to hers and find myself crying. I have cried a few times today, and my heart pounds everytime I get a flash of the image of her when I saw her on Tuesday, perhaps I just need to run through the motions before these feelings go away. Thank you again

OP posts:
christywhisty · 29/03/2007 21:54

My son has had 20 febrile convulsions and my daughter 4. We have a family history of them an d my son's last one was a year ago at 10 and half.

I posted this yesterday to Nataliejane who posted her baby had a fc yesterday.

There is a lovely quote from Toddler Taming

"The short fever fit does not damage the child only it's mother's nerves."

I know how you feel and should have been given shares in Calpol and nuerofen a long time ago

Emskilou · 29/03/2007 21:55

Thats what they said to me too KathH because her temp spiked within minutes I should start clapol and nurofen as a preventative as soon as she looks even slightly off colour. In a way I guess we should be glad that they have come out of it well, things could be so different and sadly are for many parents

OP posts:
KathH · 29/03/2007 21:57

Emskilou - I didnt cry when ds was in hospital, I guess it was shock but when he came home I nipped into Tesco & suddenly started blubbing in the veg aisle & what you are feeling is perfectly normal - I will never ever forget to my dying day the sight of ds on the recuss table - he looked so small & everytime I think of it it makes me go all funny.

Emskilou · 29/03/2007 21:58

Christy how scary for you, how do you cope? I dont think I will ever be the laid back mum I was before Not that I was ever un caring but I wasnt anything like I have been today

OP posts:
pucca · 29/03/2007 22:00

Emskilou...So sorry about your dd, tbh that is my worst nightmare! my nephew had one once when he was about the same age as your dd and he was in the car, my dad was with him and saw it happen through the rearview mirror whilst driving! very frightening.

Well done for coping so well, mummys are amazing actually the way things like this horrible incident are dealt with, you just panic afterwards when you think it all through.

Hope your lo feels better soon xxx

KathH · 29/03/2007 22:08

Emskilou- you will go back to how you were honest! I didnt think i would. I poted on here a few days after it had happened and the best piece of reassurance I was given by someone who had gone thru the same was that you will get to a point when you start telling him off again for things & you will think he's a pain again! Hope that didnt come across as really awful & that you get the general idea of what I'm trying to say to you!

ucm · 29/03/2007 22:09

Em you will, I didn't take M to the park, playschool or anything for nearly a week & a half, because I was frightened that it would happen at the top of a slide or that someone might be f/aid trained but not react in time.

His blood tests have come back as totally normal, however, he is being tested for Epilepsy. I am pretty sure that it wasn't a fit in my case, as I have seen these before. He just collapsed and went to sleep for about 30 seconds and I had to rouse him. In time it will get easier, and as for giving calpol as soon as he has a temp I do, as I have a history of these FC's. AFter this I had to phone my father to ask about them and he said he couldn't remember much but I was given something called Barbitone for them. Told my GP who said that was given for Epilepsy.... so gawd knows.

Sorry to waffle but just want you to know that the shock will pass and obviously you will be totally on guard at the slightest temp rise.

ucm · 29/03/2007 22:09

I can't sign in to bloody msn.....arghhhhhhhhh

paulaplumpbottom · 29/03/2007 22:10

So this is likely to happen every time her little one gets a fever?

ucm · 29/03/2007 22:11

It can do if steps are not taken to reduce the temp unfortunately.

Oblomov · 29/03/2007 22:12

Poor you Emskilou.
We do understand.
Christywisty, (has posted here), posted the nicest post yesterday on Nataliejane's thread - her 15 week old had a convulsion.
Please read that thread aswell - hope it helps - see "Convulsions due to high temperature, any advice please" from wed 28 mar.

Much love to you and your dd.

pollyanna · 29/03/2007 22:14

Emskilou, there is a very good chance that she won't have anymore fits. my ds just had them once and I think this is most likely.

If they do repeat you learn how to cope with the fits and although I still find them shocking, my "recovery" time is quicker iyswim. I have still called an ambulance more times than not and have never been told off for taking dd3 to the hospital. It is just a case now of being vigilent and quick with the calpol/nurofen.

AspartameGoddessOfCatAstrophe · 29/03/2007 22:19

Oh poor you (and nan, and DS, and of course DD) -you sound as though you did everything you could possibly have done and handled the whole thing as well as anyone could.

I hope the shock passes quickly for you and you can all relax a little more soon.

Emskilou · 29/03/2007 22:23

Thank you all so much you are so lovely, I was just watching her and she started to breath strangely kind of panting, I started to panic and cry, but then it became clear that she was having a dream, she started to shout out her brothers name followed by a loud and short 'no!' the relief was immense.

Posting on here is helping a lot, more than I thought it would actually, so thank you all again. I must seem quite pathetic considering what some people have been through but I was and still am I guess very very scared.

Ucm thought I hadnt seen you on msn for a while, was getting worried about you.

OP posts:
Oblomov · 29/03/2007 22:25

Not pathetic at all.

Febriles are VERY VERY frightening.

KathH · 29/03/2007 22:27

You are not pathetic!

Kbear · 29/03/2007 22:32

Not pathetic FGS woman, you've been scared out of your mind!! It took me weeks to get over the shock. And I still overreact completely when DS is poorly now.

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