De-registered patient and medical records

[Pseudonym99]

If I am no longer registered at a GP practice, where would my medical records be kept?

Well, Grumpbum, opting out of medical care completely seems to be the best option to deal with my concerns

Pseudonym

You sound delusional and paranoid (in the medical sense). I really think you should go and see your GP and as a PP suggested frankly discuss your concerns with them.

You shouldn't be able to wipe your medical records and start again with an empty slate because you can't wipe the human body and start again with a new body. It's not like a name, a job, a marriage or a bank account. You only get one and you can't ever change it for a newer model. So one record that sticks with you.

Say you had your appendix out aged 9. You get admitted to hospital with acute pain, aged 59? They need to know there's no appendix in there.
You had an allergic reaction to penicillin? Best not prescribe it even 30 years later.

You might not be able to pass on the relevant information to the doctor when it's really needed. (You may be unconscious.)

How do you think health stats are put together in the uk? Each GP surgery will have x percentage of patients with a diagnosis e.g diabetes and treated with y drugs.
Your name isn't linked to that.
It helps inform health policy. Obesity is a good example as health inequalities can be clearly recorded across the country.
Same for uptake of vaccinations or no. Patients having contraception.
There are stats on teen pregnancies and all sorts. It isn't a conspiracy.
However going private will be a better option for you if you prefer a clean slate health record.

Its a bit paranoid to claim I intend to abuse the NHS or its workers! There's no evidence of that, but there's plenty of evidence that the NHS is abusing people's trust in it

I don't think you should use the NHS if you don't like it. If the system has treated you so badly then you have every right to opt out. However they aren't going to deregister you.
Try and get some peace with a private GP.

It's not just about YOU and your paranoid ideas. If what you want to happen was possible then it would have to be possible for everyone and not just YOU.

And that would lead to the abuse of the NHS and it's workers. If you can't see that would happen and want some special sort of case to be made just for you then we are wasting our time in trying to explain why it isn't and shouldn't be possible and is dangerous.

And if you are considering opting out of any kind of health care because of your paranoia that non-controversial information about your non-eventful medical history being shared amongst medical professionals would result in .....? (It's still not clear) then I really do mean this kindly, you may not be thinking rationally and may need some help.

there's plenty of evidence that the NHS is abusing people's trust in it

I think you should back this up with examples - here's one to start you off but I suggest you find others if you want to have an informed debate rather than fashioning a hat out of tin foil.

Equally there are many examples of patients (bear in mind, you want to generalise about the service as a whole so it's only reasonable to do the same about the service users) drug seeking through false identities, using multiple A&Es to avoid patterns of child abuse being detected, and so on - is the entire NHS meant to trust you? Or does it have to try and balance a number of competing concerns in managing your care along with the rest of the population's?

You do realise that it's not just about you though OP? They can't change protocol that could put people at risk and leave the NHS open to fraud just for you.

I think you need to sort out your own issues by speaking to your GP about your records, getting any inaccuracies amended and stating your wishes regarding information sharing. The NHS will not let you set up a new record from scratch and rightly so.

Honestly, medical records are not the least bit interesting

Pseudonym99 Please listen to the HCPs on here. I have every sympathy for your concerns, but with every reply you make it makes me think more and more that you aren't thinking rationally.

You do realise that it's not just about you though OP? They can't change protocol that could put people at risk and leave the NHS open to fraud just for you.

This at least is an argument for why the OP can't get what they desire.

So many posters are attempting the 'HCPs need information to give you the best care' angle and barely masking their contempt for the OP, who they have judged to be a nut, in the process.

The point of patient autonomy and consent and the move away from paternalism is largely to do with people being able to make their own minds up on these issues. The OP clearly prioritises her data not being stored/shared - why on earth do you think 'you will get better care' is a reason to remove that choice? Fair enough if it's being used to illustrate why data probably ought to be stored - but the OP should be allowed to decide whether that is her priority or not. And that seems to be the OP's argument, not that it's necessarily going to be completely problem-free to go around with no past medical history stored anywhere.

I suppose all you people making the 'it's needed for your care' arguments are horrified that Jehovah's Witnesses are allowed to turn down blood transfusions? Or that cancer patients can decline to try any kind of treatment? Or indeed, that anyone at all can decline to proceed with any kind of medical treatment, even if they choose to go through with diagnosis?

What do you think the potential negative consequences of this data sharing might be for you?

As long as someone has capacity then they can make their own decisions about their treatment. I've stepped back and watched someone die of a potentially curable cancer. Their decision.

What OP is proposing is deception which puts people attempting to care for her and others at risk.

Klaphat is spot on. It is about prioritising my autonomy over my care. All those HCPs on here (who probably aren't even HCPs) aren't fit to be HCPs, as they have the attitude that a patient can only make a choice that a HCP agrees with. That attitude should have gone years ago, but is being perpetuated by those in charge

I am fully aware that patients have a choice over whether they receive treatment or not. I get the impression that the OP does not.

Not at all horrified people can turn down treatment as long as they have been given the full facts that include their PMH.

The most surprising thing for me is none of my GPs seem to have the foggiest idea of any of my medical treatment- not even seeming to understand what happened last visit, let alone years ago

Sorry medical history not treatment

The fact that no one is providing a counter-argument to Klaphat says it all - there is no counter-argument

Grumpbum full facts or not - it is my choice. But there will likely be no information to share, as I will be providing none

So your point of view is that no medical records should be stored about you ever? This could be achieved by only using walk-in services and giving a false name.

Not stored. Shared. But if I cannot prevent sharing, then the only way is to prevent them from being created in the first place. But yes, that sounds like a partial solution. Using a walk-in service and using a false name. Thank you!

Several posters have made the counter-argument that people are entitled to make decisions about their care (even if it's a decision that others deem as unwise) if they are deemed to have capacity but that what you're proposing is unworkable and dangerous.

Which has been explained to you many times. Ignoring all evidence that doesn't agree with your world view yet grasping one point of view which may is very common in irrational thinking.

You can't give a false name at a walk in centre, you have a unique number that needs to be searched for and your registered GP is informed of your attendance there. You can't even get all the care you need at a walk in centre, are you planning on just having minor ailments in the future?