De-registered patient and medical records

[Pseudonym99]

If I am no longer registered at a GP practice, where would my medical records be kept?

How about if you were found unconscious at the side of the road. At the hospital your given penicillin even though your deadly allergic? You wouldn't be able to 'weigh up the risks' or make any decisions.

Sorry but if your unconscious and have no id on you, the hospital won't know what your allergic to anyway.
I have a lot of sympathy for OP as I know the system can be abused. Without going into massive details, a health worker accessed my medical history. Then stupidly told me what they knew. Sadly they used someone elses login with permission. Of course other person was never going to admit this as they would have lost their job. Was a horrible time for me, I have done everything since to keep off the spine and not share any info between health care systems. Only as much as I can which isn't much.

You can 'control' what information you give to HCPs and that is your responsibility.

But wanting a system where people can disconnect from their medical history would put far more people at risk.

Put yourself at risk if you want but don't advocate for a system that could claim other people's lives.

You have to put trust in the medical profession

Bit late for that

Pseudonym you are coming across as very paranoid and conspiracy-theorist like. Many of us have had less than positive experiences with certain doctors or nurses, but on the whole, the medical profession is not out to get you.

There is LOTS of great advice from people working in the profession about how to check your records, make sure only directly relevant info is passed on or getting inaccuracies removed, all of which is possible. But you seem hell bent on this idea of creating a brand new identity for yourself with a blank medical record, which as others have said, can't happen.

I think you need to be dealing with whatever issues you have had in the past and address trust issues rather than be looking for a solution which isn't there.

I cannot address trust issues when the NHS is hellbent on abusing that trust. The profession is fine - it is the organisation that isn't

Domini most collapsed people have some form of ID like a drivers licence or a bank card that we could use to find their details. Very few have a list of allergies / medical info.

No you've lost me now Pseudonym, you've gone down that route of believing sharing information in the NHS is so that "they" can use it against you for some nefarious purposes. Impossible to reason with people who have that mindset.

But if I were to deregister, would my records be 'frozen', so as they couldn't be shared, with A&E or care.data or anything?

How do you know how the NHS is going to use that information in the future, or who they are going to share it with, and for what purpose, Luna?

You never completely "unregister". Your GP practice will only de-register you if you register elsewhere, or if requested to do so by the CCG. You can't just ask them to do it, and if you did they would want to know why. If you are not registered with a GP, you'd be "registered" with central records, if that makes sense. Your existing medical record won't go away.

And for those arguing the taxman shares information, the difference is the taxman doesn't go around claiming confidentiality or claiming things about trust and working in a profession that always asks for consent

I don't. But I am not paranoid and fearful about everything, and think that the benefits of sharing information between care providers vastly outweigh any potential risks.

Wanting to opt out of the system completely and erase everything held about you is very extreme.

Your records are not held on the spine. Your GP records will be transferred to your new GP as they will need to know your general medical history. Your hospital detailed records are not shared with your GP but they will be advised of significant events or episodes of care. What's wrong with relevant clinical information being shared amongst professionals who need to know? Think you need to read up about care.data (maybe not in the Daily Mail though)

Why do you think the NHS is out to get you? Medical records make for very dull reading I promise.

The medical establishment has moved on somewhat from the paternalistic standpoint, and people should be able to opt out as much as they want. No doctor is going to be sued for medical negligence just because they were clearly denied consent to access data which they could have used for the patient's benefit. All the posters being patronising/bullying towards to OP cannot possibly be helping in this situation. Some of them don't even sound like they care about whether what they are saying helps, they just want to be snide. You are letting the health service down if you are one of those people and claim to work within it.

You do sound paranoid OP. What exactly are you so afraid of if as you say, there is nothing that would cause alarm in your records?.

"Respecting patients means not preventing them from making choices, not making choices on their behalf."

But they don't. Our family has unfortunately had to make full use of the NHS over recent years, and every procedure and operation has been fully explained and offered as a choice. On a couple of occasions not going ahead would have had very unfortunate consequences, but they were still offered as options and not forced upon us.

I have seen you post about this before, and if you think your records are factually incorrect you can have them amended. Unfortunately not sharing information could have unfortunate consequences, not only for you, but for the HCPs concerned.

I agree with a previous poster that you do come across as a bit conspiracy theory, even if you do have genuine concerns.

Also, NHS numbers are unique, just like NI numbers.

A breach of confidentially is a major situation in the NHS and taken very seriously. If this has happened to,you, then you need to report it tot the appropriate body.

However, you can't have a 'clean sheet'. However, if you do register with a new gp's practice, it is unlikely that anyone will look through your records and make a judgement, because they're probably seen a similar situation before, and because they dôn't have time to nosey through a new patients records.

As others have said, doctors need your medical,history so they can make appropriate care for any conditions you present with.

If you have any concerns about who can see your data, speak to the practice manager at the surgery. They should be able to,advise and reassure you.

What I'm afraid of, Fallon, is information might be shared about me without my knowledge or consent. The fact there is nothing to hide is neither here nor there.

i would like a certain drug prescribed however I don't meet the criteria, maybe I should just make a new care record to get what I want with a new Dr. Can you see why this couldn't happen in the NHS?

"What I'm afraid of, Fallon, is information might be shared about me without my knowledge or consent."

I'm jolly pleased that information was shared about OH when he had a major operation last year. He wouldn't have had the excellent follow up care that he received otherwise.

Information is only shared where it is relevant.

But Grumpbum, that sounds like the NHS is a bit paranoid if they think I might manipulate the system to get some drugs to which I don't clinically need

Thank you Klaphat, you seem to be on the same wavelength as me. I'm glad someone can see where I'm coming from!

Not really but can you not see how this would leave the NHS open to being sued for mis prescribing, the NHS is on its bare bones and cannot afford for individual patients to decide their exact treatment if not evidence based

No, you can't totally deregister from the NHS. Your records will be held centrally once you leave one surgery, until you register with a new surgery. Your Hospital records are also a totally separate set of records, and you can't deregister from those. You need proof of identity and address to register at a new practice and your records will automatically be sent to the new practice once you're registered,