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Periodontal disease... Stage 4. Anyone able to recover from this?!

271 replies

Nickname1980 · 16/12/2016 18:04

Just that really. As I've posted on a couple of other threads, my periodontal disease is pretty bad. And I am getting a tooth extracted next week. And have the four quadrant cleanings booked with antibiotic injections.

Are my teeth screwed always?! Anyone recover from it?!

The dentist said they'll look ugly after as the gum shrinks and I'll get the "black triangles". I used to have a good smile! I'm totally gutted.

I didn't see this coming at all! Have been busy producing kids though. I'm so diligent at cleaning my teeth. Dentist reckoned it could be genetic.

OP posts:
Lexielou123 · 20/11/2019 20:55

Also has anyone had the perioanyle chip xx

Lexielou123 · 24/11/2019 09:46

Hi everyone 5 days after my treatment my front tooth is sensitive and receding my anxiety is at a high I’m feeling really down can’t stop crying can’t stop checking it getting thus awful situation out of my head my teeth are looking so bad I really can’t stand this any more 😢

Lexielou123 · 24/11/2019 09:48

Has any one else had recession I just want this part of my life over a year ago I wasn’t even aware of my situation has anyone else experienced him loss after treatment ??? B

Nickname1980 · 25/11/2019 08:27

Oh lexie, I really feel for you Sad. My pockets were really bad - and it took over my life almost completely. My anxiety was through the roof!

Yes - my gums looked horrible when the disease was gone. As all the swelling it caused meant I couldn’t see how much they’d receded. I could only see when I’d had the treatment and the disease was gone. I used to scare myself when I looked in the mirror.

But it’s testament to how much better I am that I can’t remember what my pockets were now, three years on. I know they were very bad. Like, as bad as it got in some places. And my gums aren’t any more attractive - but I don’t scare myself anymore!

Keep up with the cleaning, it works - it really works. And then get those 3 monthly cleans by your hygienist. I’m now on 6 monthly.

Have stepped up my pinhole surgery search though, I’ve been emailing the dentist in my area who does it. I would have done it years ago, but I couldn’t afford to.

As soon as your gums are stable, look into cosmetic treatments. Then you’ll be able to put all this behind you Flowers

(I haven’t heard of the perio chip, googling it now!)

OP posts:
katielilly · 25/11/2019 09:24

@Lexielou123
The sensitivity, Black triangles and recession are all part of the healing process: it's a positive thing really.
Try sensodyne or prorelief toothpaste. It should hopefully stabilise but really be fastidious with all aspects of oral hygiene as you've been shown ( hopefully).

Lexielou123 · 25/11/2019 11:54

Thank you guys it’s good to hear reassurance and from others who have gone through it 😞 nickname1980 I cant look in the mirror I just cry I’m just scared there going to receed some more ? How long after treatment did they receed and how long for ? Also how many deep cleans did you do before pockets were reduced ? My dentist did not make me aware of my situation till it was too late thsts what makes me cross then I started brushes , mouthwash etc then I must have been repairing my own gums before the deep cleans as that when I noticed receding is this the same as anyone else ?? Plus would bonding be good for recession ?? Also Katie Lilly once the recession stops does that mean the disease has gone ? Thank you xxxx

Kaypa80 · 25/11/2019 14:36

@Lexielou123 i

Kaypa80 · 25/11/2019 15:02

I'm so sorry to hear about what you're going through. I was exactly the same only 4 months ago... Cried almost every night and had anxiety attacks every time I saw my self in the mirror. My GP was also worried about my mental health she referred me to see someone. I won't lie but it was definitely the lowest point I had experienced.. but I am getting better slowly.

I wasn't happy with how it all looked now but I was more afraid of it getting worse so I focused on getting my gums back to health. Strict regime of using interdental brush, floss and electric tooth brush.. along with vitamins c, d and fish oil.. I also started taking CoQ10 recently.

My pockets reduced to avg 3mm by my next check up 4 months later. Still one or two 6mm remaining but the perio was surprised at how quickly it had improved. Important thing is for all bleeding on probing to stop.. mine was less than 1% which surprised him. This means disease isn't active.

Most of the receding happened within 3-4 weeks after getting the scale and root planning done.... then it just stabilised which unfortunately looks ugly and my speech was impacted due to gaps.

I've looked at bonding to try reduce the gaps between the gums and teeth... perio gave me to ok to proceed so will look at getting them done soon..

Hope you get through this... it does get better though

Lexielou123 · 25/11/2019 16:05

Thank you for your Kaypa80 I’m feeling like that now every night I’ll spend time googling and stressing about what my gums are going to look like and I can’t bring myself to be sociable either I Missed a night out with my friends at the weekend because I felt disgusting thinking that people would notice 😢so have you only had one root planning for your disease to be inactive ? And has the receding stopped now ? How old are you if you don’t mind me asking ? Also I know take all those vitamins you have stated above from research so I hope there going to help and I also take iron as I’m low on that and I think there is a link with gum disease and low iron xx

Nickname1980 · 25/11/2019 21:23

I can’t remember how long it took to see my recession, but I think it was pretty quick. I ended up getting two treatments - one half of my mouth each. And that’s it - after that, only 3–monthly cleanings and my gum disease is gone.

This all started when I was 33. My “great smile” and “perfect teeth” were things that that people used to constantly comment on. So depressing to see those things go.

I got a quote for pinhole surgery today, it was about £800.

Please don’t let it stop you living your life! Seeing your friends etc are things that’ll help you take your mind off it all

OP posts:
Lexielou123 · 25/11/2019 22:31

I had my first half last tue then the second half done tommorow I’m dreading it ! When you said 3 monthly cleans do you mean the same again or just a scale and polish ? Can others see your recession ? What exact is the pin hole surgery and do you think you will go ahead with this ? I’ve read about the gum grafts but I’m so Squamish and knowing I had stitches in my mouth would probably tip me over the edge ! I Think i might go for binging if at all possible xx

Lexielou123 · 25/11/2019 22:39

Bonding !!

Nickname1980 · 26/11/2019 15:15

I mean a hygienist clean. I actually use someone who comes to my house! She’s brilliant! Especially since I now have a big phobia!

Yes my recession is obvious so others can definitely see it if they looked. My friends have never said anything, I’m sure that’s because people are often much more concerned with their own lives and don’t notice as much a you think they do.

I really want to do the pinhole surgery, it sort of drags the gum line back down again and is meant to be amazing. No stitching, fairly pain-free, etc. But - all in - that’s another (almost) £1000. It’s tricky. I will do something one day, I’m just not sure when.

OP posts:
Lexielou123 · 26/11/2019 16:05

I know what you mean My friends say they can’t tell but your just conscious because it’s on yourself !! The pinhole surgery sounds amazing I will have to look into this is it a fairly new thing !? Has all your gum disease gone now ? I’ve just had my second clean today I don’t feel as bad now it’s done the anaesthetic has just worn off I’m so glad it’s over I just need to religiously keep my cleaning regime up !! If only when they were getting better they looked better !!! I have an appointment booked at the beginning of January to check them I’m so hoping I can reduce my pockets further xx

Lexielou123 · 09/12/2019 14:29

Hi I just wondered when after cleaning does the recession stop ?? Xx

StAlphonzospancakebreakfast · 07/01/2020 20:47

Hi all, I was diagnosed about a year ago, have had a couple of NHS deep cleans that basically did nothing. Bit the bullet to pay for a hygienist (I can’t afford the private perio 😭) and she did a brief clean, after which I have black triangles, so that seems to have done more already, and am booked in for 2 hour long cleans in a week in a few months.
Just wanted to say in my darkest moments this thread has been a bit of a life line, I have read it so many times! I now take all the vitamins, do the gel, oil pull, etc, thanks to you guys. It helps to feel a bit of control over it.
I’m not in a great place with it right now. The triangles I have are noticeable but not huge, but I can’t stop stressing that they will get bigger after the proper cleans and I am struggling with confidence about smiling 😭 trying to stop googling obsessively.
Although in my googling I just discovered that Samantha Janus (Womack) has periodontitis too and for some reason that made me feel better!

Anyway sorry for the essay, @Lexielou123 how are things for you now?

Lexielou123 · 07/01/2020 21:16

Hi I feel exactly the same as you this thread has been so helpful to me too I had my first lot of treatment at the end of November I do everything I’m meant to and take all the vitamins recommend my triangles are really big to be honest and they do stress me out also my recession is quiet bad on one of my front tooth where the Perio said it was a 6 mm pocket 😓 I have a check up tommorow so I’m hoping my treatment has helped but I’m also feeling very anxious that it hasn’t improved I’m hoping with all the recession it should have !! My teeth are feeling less wobbly now also but I feel as though they have gone slightly wonky ? I’ve been reading about how Invisalign would help improve everything if the gum disease is controlled ? Is your gum disease under control !? Are you going to undergo any treatment for your triangles ? I feel disgusting so won’t even smile to show my teeth any more ! This time last year I wasn’t even aware I had a problem as my dentist didn’t have a clue ! I’ve changed dentist now due to them not even picking this up when I complained of bleeding And a funny taste in my mouth too !! I also read about Samantha Womack how funny you kinda feel it’s better that someone famous and beautiful also suffers from gum disease she had bosh treatment I think it’s about £5,000 I couldn’t afford that xx

StAlphonzospancakebreakfast · 07/01/2020 21:51

Good luck for tomorrow! I’m sure things will have improved if your gums have shrunk back and teeth are feeling less wobbly! Which teeth were wobbly?
Mine isn’t gone yet, the pockets at the front are all 2s or 3s now I think but I have at least one molar still at 6. Plus i’ll think it’s all fine and then one evening i’ll be tepeing and one will bleed again. That’s pretty depressing as I actually don’t think I could be cleaning my teeth better!
My problem is more that my overbite has got bigger, and I don’t like the way that looks, it’s particularly a couple of teeth. I would love braces for that. I would consider bonding if (when Sad ) the triangles get bigger. I suppose if I only have 3mm pockets at the most at the front there is hope that they won’t shrink back that much more. But I know I have moderate bone loss (the private dentist I saw when on maternity leave was pretty casual about this but the hygienist at the same practice I saw recently seemed pretty freaked out which I think has spiked my anxiety).
I’ve got a bit better about asking questions when I am there but I still feel embarrassed about the whole thing. Have you lost any bone?
I just wish that I had pushed my old dentist harder, I went to her when I was pregnant and my teeth seemed to be shifting and she said it was all fine and just pregnancy. I could have prevented the worst of this and I just want to go back in time!
To be honest part of me thinks at least dentures would look nicer!

Lexielou123 · 07/01/2020 22:37

I’m hoping that my pockets have shrunk
Or I’ll be absolutely gutted I couldn’t try any harder than I have although I have been told some people are more prone to it than others I was told I was an unlucky one it’s so bloody annoying !! It was my 2 back ones which feel wobbly ! He said my front bottom pockets are fine it’s mainly in the top !! Also I grind my teeth so much and bite the side of my mouth and tounge in my sleep which doesn’t help with recession so now I’m wearing a mouth guard and I’m hoping this will help but my overbite is also bad something else my dentist didn’t tell me about !! All my problems started in pregnancy my gums were horrendous but again no good advice was given I wasn’t even aware ofperiodisease if I had been made aware of this then and googled what I do now I probably would have prevented this happening to me which is very frustrating and to make matters worse I’ve read during menopause it can all flare up again 😓 how old are you StAlphonzospancakebreakfast ? Also I would love to have bonding done so I’m hoping this might be a possibility ! Yes I’ve had boneless it’s all so depressing I’m sick of it 😩also my teeth are very sensitive now are yours ? I’m just dreading if I have to have more deep cleans they were just horrible xx

StAlphonzospancakebreakfast · 08/01/2020 10:36

Good luck today @Lexielou123 let us know how it goes

Lexielou123 · 08/01/2020 23:06

Hi it went well today all my pockets are now 2s ai have only one 5 and two sixes at the back which is very good news I am going to have one more treatment on those 3 teeth then hopefully I can start looking into the bonding !! I’m really pleased with the results and I had mainly 6 s at the front !! He says they are the best results he has ever seen which is good because I’ve been religious with my cleaning !! Hopefully I will have no more recession now I was disappointed to hear when I did have the 6 s at the back but I’ve tried my best and hopefully next time it will work !! Im sure your recession won’t be that bad if u only have 3 s at the Front StAlphonzospancakebreakfast also I asked him about the perio chip today and he said there is no evidence this actually work s ( I know this was mentioned in the thread ) when do you have your treatment ? StAlphonzospancakebreakfast Xx

JKDcot · 17/11/2021 15:36

Hello @Lexielou123

I know this is an older post but are you able to please give an update of your progress? I am experiencing a world of emotional pain. Big pockets, had gum laser work done but now the recession and sensitivity is bad. Also I can’t speak without lisping due to the gum recession. I am so upset and can’t see a way out?

I would like to look into bonding and other options to stop my lisp. I am not worried about cosmetic but just feel so embarrassed I can’t speak.

Did you do this? Did it work?

Thanks
Jess

Boofy82 · 23/02/2022 14:02

hi all. A bit late to the Periodontal disease party (shit party to be invite to by the way)., but I have stage 4 PD too! I only found out a couple of weeks ago but it is consuming my every waking (and sleeping) moment! From the confusion of 'why do I have this?!' I have always been ok with dental hygiene and if anything am better now that I was in my younger days - but it sees to be unstoppable once it starts, to the fear of how it will look (ok at the moment but stage 4 is BAD - so will continue to get worse I guess), to then being more concerned about the link with this and cardio vascular disease and blood poisoning!! so many reasons to freak out!!! Can anyone who has had this for a long time please say how they are doing now? I am yet to get an appointment with a periodontist as my dentist wants me to go see them again in 3 months to see how its progressing (WHY? it's clearly already fooked - so the delay in being able to speak with a specialist is also making the anxiety bad - although after the dentist and googling, I'm not sure I want to hear what a periodontist has got to say - oh God,... I am so scared of what this all means, both health wise and cosmetically! I'm 39 by the way.

Missy7419 · 23/02/2022 16:37

Hello... I was MissyMop123 on this thread but I've changed my login name...

Please, please don't worry. I was in a complete state when I joined this thread but years on I'm fine and I still have all my teeth. I have a horrible case of aggressive periodontitis but my perio and hygienist have stabilised everything and, since getting treatment, nothing has gotten worse.

I just have to be very methodical about cleaning, keeping frequent hygiene appointments and getting a perio check-up every year.

I was also worried about cardiovascular disease but please try not to panic. I get a check up with my GP annually (not last year because of the pandemic) and all seems to be fine, in fact at my last check up they said everything was 'excellent'. And I'm pretty sure I never had blood poisoning :-). Google makes everything so much worse than it actually is.

It's a horrible time for you but everything can be stabilised and with some dedication after treatment you can keep it that way. And by the way, my perio said that a lot of this can be genetic - I know my husband doesn't clean his teeth and gums anywhere near the level I do and he has no gum issues and 1 filling - so don't blame yourself.

There are also lots of things that can be done to make your teeth look nice after treatment if needs be. I know it costs but I've seen amazing results with bonding etc. But try to take it one step at a time. The key thing is to get everything stabilised first.

Boofy1982 · 24/02/2022 09:24

@Missy7419 thanks you for getting back on this thread!. It nice to know that you have managed the situation well. I am still scared to death tho. What I am worried about is that I have this level (4) at this age and I am cleaning my teeth as well as I can but it seems to just keep going; so what happens when I get older and I am less dexterous?! I am worried that this is actually the 'best' it will ever be and as I say, the additional health risks involved - I am 39 but yes, I am worrying not only about what it means now, but what it will become later on in life... it started off as concerns about how this will look, but actually, I am now more scared for my overall health, hear etc. :(