What happened? Scared.. is my nocturnal epilepsy changing to waking fits.

[listsandbudgets]

I went for a walk on cliffs last night (on holiday in Cornwall) and after about 10 minutes suddenly found myself sitting on the grass crying and feeling very disorientated. No one was about so started walking back but felt very achey and everything spinning. There were steps and I had to get am elderly couple to help me down as I felt so dizzy and couldnt balance properly.they were very kind but I think they assumed I was drunk

In the past I've only had seizures in my sleep so what the hell happened. Still feeling shakey now

I'm so sorry, what an awful and scary experience for you. I don't really have any experience of epilepsy but at a guess it does sound like you had a seizure so might be worth a call to your consultants. Hope you are feeling better today

Presumably you have a diagnosis and treatment plan for your night epilepsy?

As monkey says, call your consultants secretary and ask for a review.

Thank you. Luckily I have an appointment with the consultant in mid September anyway so will email in advance and let him know what happened. My medication was changed a couple of months ago and for various reasons I don't think it's suiting me.

Feeling mainly better now but keep scaring myself witless thinking what might have happened on the cliff if I'd gone towards edge instead of grassy side

Maybe the symptoms are due to arrive effects of your new meds? I changed to carbamazepine a year ago and amongst others, the dizziness, anxiety, imbalance and sometimes disorientation have been awful x

Side effects, sorry.