JEEEEEZE what's going ON in there?? Anyone up for a bowel/ibs/ibd/wtf thread

[MrsBrady]

Fed up? Stuck in? Off work? Can't eat? Can't play? Can't or don't want to burden your nearest and dearest? Fancy a bit of a vent?

I'm currently on day infinity of partial house arrest

dx with microscopic colitis this time last year- all good

now having a total bastard of a flare that's been going since January and shows no sign of fucking off

I. AM. SO. BORED. OF. THIS

last week I had to take a poo sample to the gps. Again. The receptionist showed me the elaborate way you're supposed to arrange the bag and label, but I said 'ooh don't worry shsowing me love, that's the last one of these you'll be getting from me'

and less than a fucking week later, there I was again this morning, with me warm bottle clutched in my fist. And I STILL didn't know how to fold the label

I'm worried it might be uc instead. The symptoms seem to tally.

I really really don't want uc. I really really really don't want Crohns can't spell it

anyway. Enough about me. How about YOU

The worst fodmap offenders are onion, garlic, wheat, apples and pears.

(NC from HisName earlier in thread). I'm on week 4 of low FODMAP (I think). It is working but I'm really missing onions, garlic and apples now!

Woke to bad belly and diarrhoea this morning. Can only think I ate too many grapes the day before.

Food is getting a bit monotonous now. I need to dig out the recipe book.

Can I join in and complain, please?

Diagnosed with UC at 27 (four years ago) but since 18 I was misdiagnosed with an array of IBS/proctits etc until I changed areas and consultants, and was finally given a colonoscopy.

I'm now 8 weeks pregnant and six weeks in to a horrific flare 😩. I previously reacted well to ascol foam. Not this time. Now on pred foam and tablets. Getting worse. Expecting to be admitted and given steroids via IV now. Fed up, full of morning sickness and feelings of self pity.

Anyone else done pregnancy and UC flares? This is my third time and easily the worst!

I share your pain panda I would give pretty much anything to be able to eat onion and garlic again. I can just about manage with all the other stuff, but onion and garlic are in everything! I have just discovered asfoetida, a spice with a distinct onion flavour. It can be a bit tricky to hunt down but makes a difference in chilli, soups, and stuff like that.

I am starting to get stuck in a rut with cooking as well. Please do share any good recipes you find

Can I join you all? Coeliac here. We thought it was just ibs with gluten as a trigger for ages but sadly not. I lived on pasta and bread for so long so it's been a tough adjustment. The last few weeks I've had a few incidents of accidental glutening and the fallout has been deadly on top of headaches, rashes and my b12, folate and iron stores are pretty much running on empty right now.

Solidarity with everyone else with shitty (ahem) bowels!

Hey jeepers, you can have the green part of spring onions I think. Also one of the founders of fodmap is an Australian woman called sue shepphard. She has a low fod map recipie book - you may be able to find it online. Depends how bad your symptoms are - when I trialled low fod map my symptoms were so bad I would have happily lived off steamed fish and veg if it would make me feel normal again. I'm a lot better now. I tried a lot of things some of which helped my IBS but nothing got rid of the pain/discomfort until I trialled some Chinese herbs which actually make my IBS symptoms disappear completely when taking them. However I recently developed mild Uti symptoms although tests showed no Uti. I came of the Chinese herbs but Uti symptoms still lingered. I also have a lingering cold so they may be related. I have gone back on Chinese herbs given that they don't seem to be the bladder symptom culprit so at least I can be IBS free. Just hoping the bladder symptoms go quickly (it's been a week) I don't think I could handle an irritable bladder after 9 months of IBS hell!

Hi Simmi. My symptoms are bad enough to keep me on a pretty strict low fodmap diet despite the restrictions. There is nothing like agonising pain to keep you on a diet. The garlic and onion is the worst mainly due to the difficulty of eating out or getting a take away. I have yet to find a take away I can eat and when eating out you can think you have found something that will be fine and then the chef decides to get all fancy and put garlic all over it or use a source with an onion base. Also I miss flavoured crisps as they all have onion powder in them. I am bored of salt and vinegar! I want garlic bread!

It is worth it not not be suffering as much as I was, but I just wish I didn't have to. Dispite working with a dietician to try and reintroduce foods I am still pretty close to full on low fodmap after almost a year.

Gosh, sorry. I am sounding all depressing aren't I. I don't mean to get quite so moany.

I am entranced by your herbs. Did you just go to a Chinese herbalist? I have always been a sceptic, but probably hit the try anything stage by now.

Hi I haven't read your whole thread, I have microscopic ulcerative colitis, I'm also on a dairy free diet, soya spread, soya milk, soya custard, I can tolerate tiny amounts of dairy only, say a chocolate bar, also reduce your fibre intake, I need no help at all in that department, and stick to carbohydrates, white bread, rice, pasta, potatoes, chicken and cod, my ibd on nurses call this the white food diet, do not take Imodium based products they cause a plug and eventually you'll explode again, you can take diorylite though, I recently caught gastroenteritis and was ill for weeks, hope you feel better soon

Yes I went to a Chinese herbalist in March but I tried two one week courses but they didn't work. Then I went to a new one in may just for acupuncture. 2 weeks ago I said to her that I would give her herbs a try and she gave me a little bottle of tiny black balls and told me to take 10 a day. And I knew within a couple of days they were working - very cheap as well after all the thousands I've spent on supplements and consultations with so many different doctors and naturopaths etc! I would be delighted if I didn't now have a bladder issue!

Hello all
I've been quiet this past week as not feeling well at all. I think i have some narrowing/constriction going on in my upper GI tract as i cant keep down food and keep vomiting. Am just having fortisips at the moment but the pain is quite bad so will be going to GP tomorrow. They will no doubt send me off to A+E with a urgent letter. Sigh, and the merry go round continues.

no one to have kids most of the time as hubby works full time. we manage but it would be nice to have this more under control. they are used to mummy running off to the toilet as its been like that since they were born. its making my attitude to food quite bad as it seems to just be anything I eat (and sometimes drink) and I just cant be bothered with it most of the time as I know what will happen, and yet my weight is going up and up. will discuss with gp when I manage to get an appointment but I'm thinking she will make me wait to talk to consultant? going to be a fun summer holiday for the kids as 6 weeks of mum sitting on the toilet is not their idea of fun

I never fucking learn! Yet again I stuff my big fat gob full of cake and chocolate and what happens today? I get a bad stomach.

I'm out of control.

hi all- haven't been around for a bit- kids have been hogging laptop and I can't nc on my shitty old phone

I'll have a proper look tomorrow

Jeepers ach, coloscopies are ok really as opposed to endoscopy which is like medieval torture -tbh I even quite liked the prep

Ginger Ivy helloooo! Welcome to our profoundly anti social thread. Diverticular disease- is that the same as diverticulitis?

Hi bigarse that sounds shit-especially with sleeplessness on top! Plus I know that feeling of dreading summer holidays stuck on the bog. How old are your kids?

Hope more happens this week to move things along; I've found half the problem is getting onto someone's system

Scary uc flare plus pregnancy- jeeez Louise

that sounds really, really shit. Complain away! Does iv steroids mean hosp stay, or outpatients?

Hi Ovaries I'm coeliac too, it does take a while to get used to. I accidentally glutened myself just about every other day while I got started. PooTAStrophe. Plus I found I felt absolutely lousy- dizzy, fainty, foggy. In a while though you'll be sailing through it like a pro. It's just when you're out its a bit more tricky ime

Jeepers I'm trying a rough approx of fodmap- not with a dietitian, just odds and sods I've got from tinternet. Garlic and onions are a fucking killer to avoid- I normally get through two nets of onions a week- I put them in EVERything

goinggrey hello fellow mc person- there's not many of us about I've found- interesting soya ok for you, it doesn't seem to do me much good at the mo tho it's been ok in the past. I'm trying to do lacto free milk and spread which are looking alright for now at least

Simmi glad your little black pills are working- hope your UTI symptoms clear up!

fanjo I'm so sorry to hear that

I really hope things start looking up for you soon. Let us know how you get on tomorrow?

SoggyBiscuit I hate when you feel ok, think 'aww, fuckit, what's the worst that can happen' -then find out the next day

I'd offer you a but I think we need a thread specific emoji. How about a bowl of plain white rice. Or maybe a bit of dry gf toast NO SPREAD

ugh

sozzers that was a killer bit of posting

think I got a bit carried away

sozzers again if I missed anyone- I'll have a proper read tomorrow.

mrs brady - kids are 21 and 21 (but not at home) and then a 5 year old and 2 just turned 3 year olds. its the twins that are ill. holidays are an issue anyway with 2 that are poorly and 1 that isn't, no money and the little ones done for the day by 11am. I'm rapidly saving vouchers and buying bits and pieces to help. the 5 year old is very good but she deserves a good summer and some good memories too. then u add in to it how I'm feeling and its not a good mix. was hoping to go away for a holiday but looking at prices I cant see it happening x

I'm going to gp's once they are open to fight for an appointment. don't really just want to ask for prescription as I have no idea what I'm doing

Hosp stay, mrsb that I've never had to do before 😥.

I called this morning, so will wait to hear. My consultant was very insistent on Thursday after my sigmoidoscopy that they will just haul me in and get the steroids in ASAP if it deteriorates, so I'm quietly confident they won't mess me around too much.

Any tips for inpatient stays?? I feel equally dreadful and relieved about it, as just want it all to be over now.

God ime 3yo twins tough enough on its own

Factor in their poorliness AND your poorliness

Do hope you get somewhere with the gp today. Camp there with the twins bet they'll see you asap

Scary I'm sure someone ll be along to help wrt hospital stays- fanjolamps if she's not too poorly to post?

I would say at least you'll get a rest, but then I thought a bit more carefully and had a word with myself

yeah 3 year old twins are fun! they are great bless them but come with a lot of issues!
no appointments to be had this week so ive got a telephone consultation booked for wed evening and apparently she should do the prescription today. also had appointment through to see surgeons in a couple of weeks.
tomorrow I have hospital for one twin as shes broken her foot, phone consultation for me, next week hospital for the other twin to have his hernia checked and the week after appointment for me to see surgeon. what a fun life we lead!

mrsbrady I would really recommend the Monash university app for trying low fodmap if you haven't got it already. I don't think I would have managed without it.

Well I'm in and pumped full of drugs! Fingers crossed this fixes me! My stool sample was, ummmm interesting!

hope it helps x

How're you doing Scary?

Has it worked? Hope so, and that they've let you out!

whatabout you Bigarse, any joy with your prescription? How are the twins?

haven't been posting as I've been super busy- the gp put me on prednisolone and I've been on it for a week now. The results were mirACulous as in I haven't shit myself once

the blood and mucous have nearly disappeared-first time since January

I have properly LEFT THE HOUSE- sat on a train with no toilet, done a one hour + car journey

I took my dds into town yesterday because their school was closed- haven't taken them anywhere this year, really. It was wonderful. Even though they did more than their fair share of bitching and moaning (they're 12 dammit) I was so delighted to be Actual Outside I didn't give a shit: I had sun on my face and I wasn't in my own garden

I'm still keeping a weather eye on the Great British Toilet Map app, just in case -meantime I'm going to try and do as much as possible while the poo gods are with me. No mucking around at home when I can do something outside

wishing you all the same luck with your meds