JEEEEEZE what's going ON in there?? Anyone up for a bowel/ibs/ibd/wtf thread

[MrsBrady]

Fed up? Stuck in? Off work? Can't eat? Can't play? Can't or don't want to burden your nearest and dearest? Fancy a bit of a vent?

I'm currently on day infinity of partial house arrest

dx with microscopic colitis this time last year- all good

now having a total bastard of a flare that's been going since January and shows no sign of fucking off

I. AM. SO. BORED. OF. THIS

last week I had to take a poo sample to the gps. Again. The receptionist showed me the elaborate way you're supposed to arrange the bag and label, but I said 'ooh don't worry shsowing me love, that's the last one of these you'll be getting from me'

and less than a fucking week later, there I was again this morning, with me warm bottle clutched in my fist. And I STILL didn't know how to fold the label

I'm worried it might be uc instead. The symptoms seem to tally.

I really really don't want uc. I really really really don't want Crohns can't spell it

anyway. Enough about me. How about YOU

Still in! Bleeding finally has started to subside from about 12 last night, think I have one more day before I'm free.

That is brilliant about your trip out Mrs B. Things like that really give you confidence to keep going!

Hope it is one more day and it goes quickly!

Whenever I've been in hosp (for other stuff) I find the last day/hours seem to count DOUBLE normal earth hours

..mind you that was pre kids so now might find it restful experience! Do you have other dc?

hey MrsB your day out sounds revolutionary!! May many more follow.

for everyone having such a difficult time.

"My symptoms are bad enough to keep me on a pretty strict low fodmap diet despite the restrictions. There is nothing like agonising pain to keep you on a diet. "
jeepers I agree with this entirely. I was off work with the DC yesterday due to teachers strike and was out of my eating rhythm. I didn't eat much all day (busy and unprepared). Then I made the DC pasta for dinner (normal pasta) and I really struggled with not picking at the pasta. on any other diet I would have had some, but not on the low FODMAP diet. Mentally it was difficult yes, and I was hungry too, but I didn't have one bit of it. The consequences aren't worth it, and it does seem to be working very well.

I've just starred my 6th week of the elimination stage. It has transformed my life.

Re onions, my friends elderly Mum tells me she always has boiled onions before using them in cooking as they are then much easier to digest. Makes sense as the offending parts of onions are water soluble so perhaps this is a way to use them in cooking in the future. Fingers crossed.

Panda can you have gf pasta?

I used to operate a two tier pasta system-glutinous for them,.gf for me-but it was a pita

Now we all have gf pasta (it's not so expensive as it was- it tastes better than it did, too)

Yy to that about consequences not being worth eating what you like. Nothing quite like the prospect of a day on the bog to focus your food choices. I say that and I'm a greedy fucker

mrs brady. that's so good about ur day. I'm keeping fingers crossed for many more.
haven't got my prescription yet as gp is rubbish but apparently its now been faxed down to chemist so will try again later. gp ringing tonight to answer my questions.
cant remember if I said but one of the twins broke her foot so we spent thurs night in a and e and yesterday at fracture clinic. between their appointments and mine we have 7 hospital appointments in the space of 3 weeks and we are still due more. starting to take its toll on us as a family. its nice to have people to talk to that are going through similar

7 hospital appointments in the space of 3 weeks

AAAARGH

schlepping twins to hosp appointments is Not Fun. And 7 in 3 weeks is beyond the pale

[GIN] for you

and thank god for the NHS!

god I don't dare drink! drink and 2 hours sleep do not make for a good day the next day lol!

I have to say the last few hospital visits we have done they have been brilliant. I have post traumatic stress so struggle with things where I cant just get up and leave so a sigmoidoscopy and sehcat scans were very big things for me and they were just fab. made me feel as in control as I could be if that makes sense?

Two more nights now- but steroids have finally started to work.

big that completely makes sense. I find that the nurses who work in those parts are particularly brilliant; maybe it is the combination of the embarrassing nature of the procedures, and the pain they see their patients in. Whatever it is, I've always found them to be compassionate, kind and cheerful- just what you need when you're being prodded in the bum with a bendy camera 🙈

YY another greedy fucker here!

I can have GF pasta, but I just cooked for the kids thinking I would wait. Mistake!

But full of (self) admiration for my newly discovered ability to control myself in the face of temptation. A day on the bog is a lot more real and immediate, than "a lifetime on the hips".

At the fruit & vege stall today I felt so sad - all the seasonal things I LOVE to eat which are out of bounds taking up 3/4's of the stall - cherries, apricots, peaches, asparagus, avocado etc.

In good news they did have some spring onions which are 80% greens so I'll enjoy some of those tonight.

bemore no avocado! That's hard! Is it the fat content?

I find food makes absolutely no difference. When I'm not flaring, I can eat what I want, when I am flaring even water sets me off.

Avocado is a no go on the lowFODMAP diet as it is a stone fruit. Due to type of fiber and/or fructose.

I know that feeling well panda. I miss apples a lot more than I would have expected. I think k just took them for granted.

Talking of pasta this is my one significant success. I can now eat a small portion of spaghetti as long as it is with a suitable sauce. I do have to sit down for a while afterwards and feel pretty bloated, but it doesn't actually hurt too much, so I take that as a win. :o

I'm glad the steroids are doing their thing scary. Hope you get out soon!

MrsBrady Diverticulitis is a inflammation/infection in the bowel that can happen when you have diverticular disease.

I'm the same Scary, food doesn't affect me at all. My trigger is stress and when i get stressed, i go into flare and then i get more stressed and it just spirals downwards.

Those that r talking about flaring can u remind me what u have? I have realised recently that mine is bad all the time but then flares and is horrendously. I've been diagnosed with this bile acid thing but I'm not sure if that is causing the flares or if that's something else?

I'm sick of my bowels either producing tiny pebble movements or massive soft logs. Why can't I have a nice inbetween that isn't constipated or running to the loo!

bemore that sounds really tough, you do have my sympathy. Some weeks I live on avocados.

big when I flare I have liquid faeces, blood and mucus that I excrete more than twice in the night, and upwards of ten times during the day. Abdominal pain and tiredness a given! Normally become anaemic.

Thanks jeepers I finally feel like I'm getting somewhere!

mrsp snap snap snap. I also find if I restrict food, this then sets off a flare (I have a history of eating disorders, so this is my unfortunate way of processing stressful situations) and the combination of the two just sends me into overdrive. Unfortunately, this time I have had the combination of a period of restricting PLUS first trimester. A nasty combination.

Prior to this, I have only had a minor flare in my first trimester two years ago, and before that in my other pregnancy four years ago. I'm really very lucky it is normally so under control- this feels like a real kick in the...bowel??

Dinner was gf pasta, green beans with a sauce made with cream, blue cheese and green onion tops snipped into it. It was Amazing to have some permitted "onion".

But no poo today! I did have raw almonds at lunch so hopeful for tomorrow.

Hiya, just saw the bit about avocados. I was told that avocados are allowed on low fod map but in small quantities - no more than 1/8th of an avo in one sitting. They're certainly not the worst offender as fod maps go. When my IBS was at it's worst 4 months ago I saw a psychiatrist as I was really down about being so ill. She's the one who put me on amitriptyline. I saw her this morning and she's reduced my dose as amitriptyline can apparently lead to urinary problems so hopefully this will help my bizarre Uti symptoms!

bemore are you allowed 'courgetti'?

I tried the exclusion diet before I had my dx and was firmly told by my consultant to not bother (thanks, mate! I spent weeks eating plain sodding rice!) is that similar? With a slow reintroduction of food to identify your triggers?

Brilliant news, Simmi! I hope they clear soon!

Thanks scary hope you feel better soon - being pregnant is bad enough as it is. How long do your flares typically last for? Sounds horrible

By week 13/14 either natural steroids will kick in (thank you 2nd trimester!) or the meds work, or it just runs it course! Come ON second trimester!! Thanks for the good wishes, I'm really hoping today will be my last full day and night!

scary dinosaurs - thanks for the info. I'm fairly sure that there is something else going on on top of the BAM as I always have liquid poos (haven't been solid in years), always around 10 a day and when flaring about 20 a day and every time I eat or drink. no idea what that is but sounds like more than the bam which I think would cause a continuous problem? no sure though so will have to just hang on and speak to consultant.
hoping today is ur last day xxx that sounds weird when I type it?