Can I join please? I have CFS and suspected fibromyalgia. I've undergone every conceivable test for the past three years with no positive outcome. I saw a rheumatology consultant at hospital a few weeks ago, who says she is pretty sure it is fibromyalgia but had to eliminate other things first.
I used to be quite fit but now I can barely manage the five minute walk to school and back. I am permanently exhausted, can't manage housework any more, am asleep in the evenings often before the DC go to bed.
A few months ago I suddenly developed pain in both elbow joints which won't go away. The GP suggested tennis elbow but another doctor has said it's a symptom of fibromyalgia. The pain is often so bad I can't even lift a mug of tea :(. And then there's the headaches, burning foot pain, aching knees, hip, chronic back pain and just when I thought it couldn't get any worse now I have palpitations which started two days ago and are worse when I try to lie down to sleep.
I have a return appointment with the consultant in just over a week's time but I'm not hopeful that she will be able to do much to help. Is there anything I should be asking her specifically? DH will be coming with me but I'm not convinced he really gets how bad I feel.
I know I've rambled on a bit and I am slowly working my way through the threads. It's helpful to find others who have the same/similar problems. Trying hard not to feel teary and depressed but it's so hard :(