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DS1 is Being tested for cystic Fybrosis (sp?) :-(

7 replies

Charleesunnysunsun · 05/01/2007 13:48

We got told today that our peadiatrician want's to test DS1 for cystic Fybrosis, im worrying myself sick.

I kept thinking about the possibility of him having CF but i kept telling myself i was over reacting, but now the dr has actually said it aswell it's horrible.

They are going to get a sweat test done a.s.a.p.

God i hope he doesn't have it.

OP posts:
cheeryface · 05/01/2007 14:01

try not to worry , ds2 got tested for quite a few scary things at one time and didn't have any of them.
what are his symptoms/ reasons for testing?

Charleesunnysunsun · 05/01/2007 14:03

He has had a constant mucusy cough which makes him sick, its alot worse at night and firt thing in the morning, he also poos about 7-8 times per day and they smell absolutley foul.
Hes also being given a celiac screening.
He is 2 by the way.

OP posts:
lulumama · 05/01/2007 14:04

what a worry...will keep all my fingers and toes crossed for you xxxx

Saturn74 · 05/01/2007 14:05

I hope everything goes well from your DS. My neice had these tests last year, after recurring chest problems and two bouts of pneumonia.
It was a worrying time, but luckily the results were negative.
I think it is fairly common for these tests to be carried out, but obviously that is little consolation if it is your child that is being tested.
Best wishes for a happy outcome.

Charleesunnysunsun · 05/01/2007 14:09

Thanks.

i also heard that people with CF have very salty tasting skin. Im not sure it this is at all true but i have always noticed DS does when i kiss his forehead or cheek its awlays very salty.

OP posts:
cheeryface · 05/01/2007 14:09

ds2 had the runs all the time when he was that age and later pale foul smelling poos, one of the things tested for was coeliac but he was o.k and the poos just got better with age.
we, have a problem still with him having mucous on his chest that comes every couple of months and won't shift but the doctor either blames asthma, chest infection or virus and i still haven't really got to the bottom of it.
fingers crossed for you that he's o.k

tortoiseshell · 05/01/2007 14:11

Charlee - that must be very worrying - try not to be too anxious - if it isn't CF then the test will put your mind at rest, and if it is, it is MUCH better to find out and treat it!

Hope things go well for you.

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