Interstitial Cystitis.... that regular peeing fire sensation

[Poin86]

Hi all,

Do any of you suffer with Interstitial cystitis at all? Think I'm edging closer to being a sufferer just waiting on seeing a specialist.

Regularly get it after sex even when i do pee afterwards and sometimes for no reason at all that oh so familiar hot daggers up the urethra feeling appears. fun times

In 2015 I had a record 8 courses of antibiotics for it and at least a dozen more cases where I home medicated with those sachets, hot water bottles and plenty of fluids. Managed to get in to work all but 1 day for it last year - even when running a fever as the male boss just doesn't understand it!

I do take a cranberry tablet every day for attempted prevention but they don't do jack for it.

Just looking for others to chat with!

fire pee-ers unite!

Cystocopy and bladder stretch done last month. Confirmed IC, on cefradine for now. Have completely cut out caffiene. My symptoms do vary through the day, will flare up in morning but be ok for few hours then come back in evening.

@Flibbertyjibbit have they said anything else? Or are you just supposed to live like that? Did yours start from anything?