Last day after lots of unnecessary reading on the web I convinced myself again that ds has Jeune's syndrome.
I have had lots of positive moments over recent weeks, but now I'm just bl*dy scared again.
It doesn't help that on one site you read about Jeune's "Respiratory problems will improve after age 2"
on another site it says "Symptoms might not appear until age 4 or 5, when child may gradually outgrow his or her lung capacity"
So which one is it then?
On the other hand I'm thinking the geneticist will probably just say again that he can't make a definite diagnosis... and so the thoughts keep going around in my head.
And to top it all I spoke to my mum yesterday and she was crying her eyes out because my dad is getting so bad with his Alzheimer's. I so wish I could do anything to help her, but I'm her and she's in Germany, so...