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Hashimoto's/Hypothyriod people - a question about dropping doses

33 replies

sunnywong · 04/12/2006 14:50

Hello

After nearly 2 years of feeling well on my dose of thyroxene, the doctor has asked me to drop from 175mcg (alternating 150mcg and 200mcg daily) to 150 mcg on account of a result I can't quite remember ( was it 0.5 and she wanted it to be 0.3) anyway. I've done this lower dose for the past 4 days now and I feel dreadfully wobbly and have the awful tingling in my hands at night. I 'm terrified that I'll get the brain fog and all that shite again. The doctor recommended I go for another blood test in 4 weeks but I 'm buggered if I 'm going to feel like shite again for any length of time.

My questions are:
How long does it usually take to balance out after dropping a dose level
and
should I just listen to my body and maybe split the difference in the dosage and go 150, 150, 200 over 3 days or would that give me two low days and one hyper day?

Any advice (got some good advice on this thread I slightly hijacked but am really fretting now and am scared I'll continue to feel wobbly and the doc will just tell me to get on with it for a month and over Christmas too. Aaaaaaaaaaaaaaargh

OP posts:
SpaceCadet · 28/12/2006 00:11

hope all that helps btw, good luck with the blood tests

sunnywong · 28/12/2006 00:11

Thanks so much for all your advice SC

I'll sign off now and stop pestering you.

see ya

OP posts:
SpaceCadet · 28/12/2006 00:12

...

SpaceCadet · 28/12/2006 23:04

sw did you get your blood tests?

sunnywong · 29/12/2006 01:08

yes I did
TSH 0.09
T4 15

so it looks as though I 'm still over replaced at 150mcg

Discusses wobbly symptoms with doc, she suggested anxiety, could well be - have you seen my other thread about living conditions - and she explained everything really simply to me.

She also intimated that she had the same condition which made me feel really well looked after IYKWIM and I can stopworrying that I 'm getting over looked or not taken seriously. I am going down to 125mcg with a follow up blood test in 4 weeks.

I'm going to pay a lot of attention to getting 7 hours sleep a night, good nutrition and gentle exercise this month and see how I get on.

Thanks again for all you advice

OP posts:
SpaceCadet · 29/12/2006 11:23

hi sw, yes looks like you do need to drop doses again, your tsh is virtually suppressed.
its reassuring i guess to know that your gp has the same condition as she will empathises with your concern over changing doses etc.
i just got my results back on weds, tsh 1.8 which is fine for me, but if it goes any higher id want to up my dose.
havent seen your other thread.

sunnywong · 29/12/2006 11:24

I feel sooooooooo much less anxious now, and I have to thank you for talking me down off the window ledge about it in such detail.

OP posts:
SpaceCadet · 29/12/2006 13:07

no probs sw

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