From BoffinMumsFibroid: Come here all you fellow fibroids and bring me your success stories

[BoffinMum]

I am a lovely fibroid the size of an orange and I have successfully infiltrated BoffinMum's body causing all sorts of mischief

Roll up, roll up and tell us what you are up to and how big you have grown.

By the way, my role model is the alien that burst out of Sigourney Weaver's body in Alien. Except I do not plan on bursting out!

I might be joining you soon. I birthed my mirena 2 days ago with an epic amount of blood and clots. Waiting for scan. Still having some flooding despite taking a megaton of tranexamic acid. There is pain to be felt around left ovary and any wee in the bladder no matter how minute is a matter of urgency. I'm off work and quite depressed :(

Hi BumDNC

saw your other thread and perhaps should have answered on there but just wanted to check that you are feeling a bit better. Your story mimics mine. The upshot for me was a massive fibroid that hadn't been there/noticed 2 years previously. I am thinking perhaps that might be something the scan will find. Chin up.

Thank you. Scan is Thursday. Do they tell you during the scan what they see? I can't remember what happens.

I had to go to A&E as the flow was unstoppable.

Anyway the tranexamic acid did stop the flow, this turned to large clots that kind of clogged everything up and pressed on my bladder and bowel until gravity finally took over and suddenly one large one came out and all the pressure was gone. Bleeding stopped immediately after. Now I just have slight pink and brown spotting. It's day 17 of my bloody period! I must be ovulating by now! Have to do it all again in 2 weeks or so
GP appointment next week for a plan - do I take utlovan to try stop the period or TA once I begin to bleed to stop the bleeding?

they can be funny about telling you anything whilst you have a scan but I just chatted saying my GP thinks it is...(white lie) . and they were more forthcoming but they don't give you any paperwork so the actual size of my fibroid wasn't disclosed at that point.
GPs prefer TA if it works but if not utlovan because of course as soon as you stop the utlovan it can all start again but it does give you a break ie stop you collapsing from lack of blood.
Do you think it could be a fibroid? Is your silhouette pregnant like?

SwearyGodmother did you make it back from skiing?

I'm a bit overweight right now anyway. I can look pregnant at times IMO but this seems to disperse and return randomly. Today I have this dull ache pain in my Lower left abdo that is still driving me mad but also have back pain at times. My stomach is also upset again - I haven't been 'normally' since 1st of this month. On abdo exam they don't tell me anything they have felt of concern. It feels a bit more solid on that side to me, but nothing is painful to touch.

This happened quite suddenly to me, although there were odd signs in November (sex brought on a period, 2 episodes of spotting during sex) that promoted me to book a smear (normal) and then in December I had a 14 day period of flooding. That stopped and started again 1st Jan with even more flooding and then lost the mirena

I have no idea what's wrong. Blood tests don't show sinister things so I am just unknown if it something dreadful

I have adult acne and have had for 15 years. Testosterone normal. 2 normal births with normal ultra sounds. Normal ultrasound 3 years ago (to check the placement of my previous coil). So no cysts or fibroids ever found previously.

This was me last year. Came home from work and binned trousers on two occasions despite brick sized pads. Blood count non existant and pica - devouring bags of carrots a day. Peter André would have been well Jel- I was bright orange. Also having to pee every 5 minutes. Breathless. Knackered.

Hysterectomy in June. Wasn't bad at all. And my life is flipping brilliant. I skip past the fanny pad aisle like a spring lamb.

I would have it all out no second thoughts. I honestly would.
I have always had heavy periods since a teenager, thought the Mirena was helping (it was much lighter and shorter) but clearly I have been growing something unpleasant for a while that didn't want to share the womb.
This was like having a miscarriage every few hours for days, I'm traumatised! It happened at work and the blood was just everywhere.

(I had a miscarriage years ago so referenced how it felt)

They (GP) were obsessed I was miscarrying despite my protestations I knew I wasn't pregnant

I'm really anxious about cancer. I just hate not knowing

Yes we're back. Fortunately I had some noristhisterone with me just in case so mainlined that for the rest of the holiday but have stopped taking it now I'm back and have started bleeding again. I think I've managed 7 days bleed free since the beginning of December. And those have only happened because of noristhisterone.

DH called the hospital today as we haven't heard anything about when my op might be and they said everything has been delayed due to flu. It's so frustrating, particularly as it's only for a hysteroscopy rather than having the lot out as "you might change your mind about more children". I just, like BumDNC would happily have it all whipped out in a heartbeat having also had horrid periods since I was young (and I was young, I started when I was 10).

Bum your experience sounds exactly like mine. I also could feel a hard mass. They were able to tell me straight away after the Mri that it was ok, though I am not in the UK. My symptoms came really quickly until I had an omnipresent period. Try not to worry. Your symptoms sound textbook fibroid.

Bum has twin fibroids! One of us is pressing on her bowel which causes her no end of additional discomfort

Bum that's good news I suppose? I am forever reminding myself that the fibroids can be treated and are a reason my uterus is behaving like a delinquent. Lots of women get told there's no reason for the menstrual issues and to just put up with it so I think (hope) we're the lucky ones. Have they told you what the process is next - are you being referred onto gynaecology?

I have a date for my hysteroscopic resection - 2 months time. I had hoped it would be sooner, but I'd also hoped it would be a hysterectomy but they won't consider it because "you might want more children" (we have none). Anyway, a light at the end of the tunnel, I hope. I'm seeing the GP again today because unless I take noristhisterone I am constantly bleeding and it's really heavy and I'm not putting up with this for the next two months. So there.

You know what I am relieved in many ways. That now they can't just keep expecting me to put up with it. It affects my quality of life my mental wellbeing, work, relationships it's everything and unreasonable to feel that you can see no end in sight either.

Seeing GP next week for more clarity, in my opinion and NICE guidelines seem to state I should get a referral based on the compression even if they are not over 3cm but it's likely they will say I have to have the mirena back in. I would rather a specialist did this now, I'm not adverse to the idea but it has to be high enough and I want to know it's not going to make things worse, i.e. Fibroid placement

You cannot live on hormones delaying your period that's not a treatment is it! 2 months must feel like forever

I was adverse to the idea of another IUD but I feel that now it could be done by someone who knew what they were doing properly because too low and the fibroid will just push it out again

I think they want to fit me with another one post hysteroscopy. I'd rather not as the last one made me bleed every day - though not as bad as now! I will give it a go because I suspect the fucking fibroid (who we have named Fiona fibroid) was what caused the drama in the first place.

Ok I need advice from you fibroid experts!

So I have a smallish 3cm fibroid in the muscle wall. But a 4cm one in the layer of the lining and wall. I suspect this is the most evil one.

GP was not very helpful bless him and just wanted me to see a specialist (gynae issues specialism) GP who I see next week re my options so kind of a waste of time today...and he was all for the IUD going back in.

Anyway, googling tells me the larger one is rare and bad news, only surgically treated and can have complications, I'm just not sure what??!

I want to go in fully prepared for what to ask for.

bum My experience of complications: I had terrible periods because of fibroids in 2000/2001. I remember being told there are three types and I had them all - inside my womb, in the womb wall and on the other side of the womb (not sure what that makes it now - the stomach cavity?). The pain was so bad that the surgeon was certain I had endometriosis.

I had laser treatment on the on the ones growing on my womb walls. The surgeon tried to remove as much of the biggest fibroid as possible but accidentally cut through the womb wall. There were scorch marks from the laser on my bowel which necessitated a laparotomy to explore the entire length of my bowels to check there were no other cuts made which could have led to septicaemia.

If you were having some kind of incision rather than laser, there would be less risk of something like this happening, but the fact that they are working close to the bowel means there might be a risk of nicking it by accident. There could be other complications but this one I experienced.

Whilst the recovery was not pleasant, I returned to 3-4 day, inconsequential and painfree periods, and the remaining fibroids have never caused any other problems.

I hope you get a resolution soon, fibroids are hellish to deal with!

Bum and Sweary I am having a hysteroscopy in a couple of weeks time and both my GP and the Consultant are desperate to fit a Mirena, saying it will cure everything. But I have refused, mainly because I have just about managed to get my deliberating migraines under control and don't want them to return! If you don't want one fitted, stand your ground.

In an ideal world I would be going in to have a hysterectomy and just get it all over and done with - but Consultant says he has to do this procedure first.

I read online that surgery is the only option for this submucosal fibroid. If my uterus distorts it's not advised.
I think I will try to get a referral

I will have a mirena if that is the BEST option not because it is an option

Good for you. Hope yours goes well

Bum I think we may be fibroid twins! One of mine is in my uterine cavity and the gynae suspects it's what is causing all my problems - which at the moment is a constant heavy period with thrice weekly flooding since the beginning of December (though can control it with noristhisterone which I now have all of). They're insisting on a hysteroscopy which is scheduled for March so not long. I'm kind of hoping they fuck it up and have to remove the lot when they're in there. Though I think complications are fairly rare so not much chance of that.

The fibroids in your uterine cavity are rare but not that rare - around 5% of fibroid sufferers have them. My gynae said that a coil would make it go mental because of it touching/putting pressure on it. Which happened as I bled for 6 months on Mirena.

I'm hoping that we can skip to hysterectomy still. I'm only 12 months into (very tenuous) recovery from anorexia and when I'm underweight I don't menstruate so don't have the drama or the pain that the fibroid is now causing. It's so tempting to get back on the anorexia wagon to stop this horror - but I don't want to be ill again. Hopefully they can work out that treating the patient and not the condition is more sensible.

Oh I so hope you get some answers because being pushed to that limit of being ill, although now you are ill in another way. Really hoping they get you sorted ASAP. Currently I am only bleeding like that for 2 weeks then nothing in between for 2 weeks.

DH is fighting my corner for me so I'm sure we'll get somewhere. It's odd - I was having 10 day horrid periods with flooding etc for months hence seeking a diagnosis and then in December it went nuts. I keep reminding myself that there's a reason for it and we will get it sorted, and am coming to terms with the hysteroscopy being the best we might come up with. I just don't want periods tbh. They've always been heavy and painful - for nearly 30 bloody years - and I'm bored of them now.