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Original poster

Anyone waiting for test results or a referral & stressing?

19 replies

Flugdrachen · 13/04/2015 13:39

do you fancy some company?

I'm waiting for a gynae referral and a ca125 (blood taken on Friday) after going to the GP last week with worsening IBS symptoms & yet more weird periods.

It's the ca125 I'm absolutely freaking about - I know how hard it can be to distinguish between ovarian stuff & IBS. I'm not doing a brilliant job of not worrying, I can't go out because the IBS is so bad & I can't concentrate on anything long enough to distract myself. I had it done two years ago (with a pelvic scan) when the IBS was first diagnosed & it was okay but that doesn't help much now!

As of lunch time the GP didn't even have the results back so I think I'm in for a long few days of waiting.

OP posts:

ConfusedInBath · 13/04/2015 15:38

This reply has been deleted

Message withdrawn at poster's request.

Gnome7000 · 13/04/2015 15:46

Me! Neurology referral. Got my appointment through... June! By then Dr Google will have diagnosed me with any number of things

Original poster

Flugdrachen · 13/04/2015 15:47

yeah it's an ovarian cancer marker (though can be positive with other things to) ... she's very thorough ... says it is unlikely to be anything nasty but likes to get everything done before the gynae appointment comes through. I had it done 2 years ago & it was just as bad then.

She hasn't done an urgent/cancer referral but I should get the choose & book stuff through this week. I guess if the ca125 is positive then she'll re-refer me urgently. Argh.

OP posts:

Original poster

Flugdrachen · 13/04/2015 15:49

oh Gnome ... June that's such a long time! Maybe slightly reassuring that it is so far off ... ime the NHS are quick when they are really worried.

I'm trying to avoid google, though much less successful at not obsessing over my symptoms :/

OP posts:

Gnome7000 · 13/04/2015 15:56

It somehow stops me thinking about it for a bit if I have a quick Google!

Yeah I agree about the timing, will try to see it as a good thing. I just don't like not knowing what's going on (prob why googling calms me!)

Have they said when your result should be back?

Original poster

Flugdrachen · 13/04/2015 16:34

not knowing is a bloody nightmare! I'm a total control freak it is so hard being in the system & waiting.

It should be back some time between now & Wednesday.

OP posts:

Gnome7000 · 13/04/2015 16:46

I'll keep my fingers crossed that it's back in the morning!

pigsinmud · 13/04/2015 17:51

Flug - don't panic. I went to the GP just over a month ago with fatigue, breathlessness and achey joints (hadn't been since 2007). He did a whole barrage of blood tests, one of which was CA125. I paid no attention to it as I had no abdo symptoms, however that came back at 115 and normal is under 35. Also more anaemic than I've ever been before - haemoglobin 10.5.

I was given an urgent referral and have had ultrasound and a biopsy. Ultrasound clear, just waiting for results from biopsy and repeat blood tests. I don't feel too worried as they couldn't see anything wrong, but at the same time am a little confused as to why my CA125 is raised.

There's a few of us on an ovarian cyst thread so come on over!

Original poster

Flugdrachen · 15/04/2015 10:20

thank you schilke.

Test is back & it is normal. I didn't ask the level because knowing will just send me into a spiral of obsession. Got to chase the gynae referral now.

Best wishes to anyone waiting - it is just awful.

OP posts:

Gnome7000 · 15/04/2015 19:22

That's good news!

tmtc · 15/04/2015 23:24

flug very sorry that you are waiting and feeling stressed. Good news on your test results and hope that your gynae referral comes through soon.
gnome gosh June seems like a long time to wait for you, Dr google can be quite a distraction but not always in a good way. You sound very calm and I hope that you are feeling okay and not too stressed.
schilke I hope that you get some answers soon aswell, the waiting is so hard.

I am also waiting for a gynae referral (again) and for some new meds to treat Crohns disease. I was diagnosed late last year but yet to find a treatment that works for me so am feeling very used to waiting and having no control whatsoever of the systems.

Gnome7000 · 16/04/2015 17:05

Thanks tmtc! I know what you mean about Google, but I have a (sometimes terrible) tendency to want to know EVERYTHING about a subject. I do have anxiety problems, I think I do it so whatever the outcome I have a fair idea what to expect (I am more anxious the less I know about something!). I admit I'm a bit weird that way! I've already got a variety of medical conditions so I'm used to how the slow process can be, which I think helps somewhat.

Have to say I'm not looking forward to potentially having loads of medical appointments again. I'd managed to get them down to 1 or 2 reviews a year.

I know what you mean, to some extent, about the meds thing. I was prescribed so many different things to try and control a pain issue. They did eventually hit on the right combination but for a while it seemed a bit endless! Hopefully the next lot you try will do the trick & your referral comes through sooner rather than later!

bigbadbuddy · 17/04/2015 10:52

i am having an ultrasound/fna for a thyroid nodule next week, very worried, the more i goggle the more worried i get, trying to keep busy but the waiting is awful.

tmtc · 19/04/2015 08:36

Thank you gnome I am hoping to start the new treatment soon. My Dr had to apply for funding and screen my immune system before I could start. Sorry to hear that you have other health conditions and now this new worry and waiting for appointments.

bigbadbuddy I know what you mean about keeping busy helping, I cleaned my entire house whilst off last week and am finding it difficult to switch off. When is your appointment? Hope that you have long to wait this week.

Not much else to report here another busy day here before back to work tomorrow, the sunshine has been lovely.

bigbadbuddy · 20/04/2015 13:39

I think the waiting is the worse thing, its the not knowing, but i have kept busy all weekend and back at work now. My test is this week and results 2 weeks later so will find out middle of May, i just felt that the consultant i saw briefly didn't explain anything at all, the only info i have had is from mumsnet and goggle but have stopped looking on there. Will update when i find out, hope everyone else waiting for results finds the time passess quicker!

tmtc · 23/04/2015 21:03

How are you doing bigbadbuddy? I have been thinking about you this week.
Keeping busy definitely helps although I have to confess that I have been really grumpy.

I have got my gynae referral through for a few weeks time and also spoke to the hospital about my meds. They re-assured me that everything is now in place and just need to wait to be contacted by the company that deliver the meds so more waiting

Hope that everyone else is doing okay the sunshine has really helped to distract me.

bigbadbuddy · 24/04/2015 09:05

Tmtc, i'm fine thanks,good to know that things are in place for you.I had my ultra sound and Fna yesterday, the Dr was lovely and explained everything (although i had forgotten what he said as soon as i walked out of the door) i get my results in 2 weeks. Im a lot calmer now although have verged between packing in work and going travelling (really not an option) to not buying anything in case its bad news. It's irrational but i just want to know.

Gnome7000 · 26/04/2015 17:46

It's making me grumpy too. Want it over & done with!

Stopped googling as I managed to scare myself while I was at work the other day

tmtc · 29/04/2015 12:15

bigbadbuddy glad the fna is out of the way for you and hope that the waiting is bareable. I had an fna late last year and waited for results for two weeks. It all felt very surreal and a long two weeks.

gnome its so difficult not to google, hope that you are keeping distracted too.

I started my new meds this week and have been vomiting ever since which has distracted me. Glad to be on the road to feeling better from the Crohns but will be more glad when I can function normally again.

hope that everyone else who is waiting is doing okay

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