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anyone know about chronic fatigue in adults ?

13 replies

ballofworry · 05/04/2015 08:17

Been feeling so tired for months now ,put it down to moving house twice , family issues and worry /stress ....so tought was all that .... had various blood tests in past last year and latest in Feb showing all "normal " slightly low white count , and iron , (but im always low ) but all organs , liver , kidney , thyroid , diabeties etc etc all normal ,
this tired symptom , worse after exercise or following day , and when i work i most days need a sleep in the afternoon , so at night have difficulty getting to sleep again ...
im low in myself as cant do the things i want daily , as get so tired .....
i read about CFS alot of my symptoms fit ....
anyone els know about this illness ?

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sanfairyanne · 05/04/2015 09:31

its probably the curse of 'normal' blood tests that are actually borderline. it sounds quite like thyroid - do you have any other symptoms? best thing is to re visit doctors, get tests run again, get copies of results of this and last, check results on here, and keep going back to gp. those blood tests are just the start of a process to find out what could be wrong.

sanquhar · 05/04/2015 09:36

have you looked at fibromyalgia? do you have pain as well or is it just tiredness.

my experience of CFS/fibro/any type of tiredness is is that you have to go to the GP with evidence- internet printouts etc- otherwise you are fobbed off.

took me over 15yrs to get diagnosed as doctors never bothered to properly investigate, took an old friend to point out i had fibro. took the print out to the gp and that got the wheels in motion.

ballofworry · 05/04/2015 09:54

thanks , no joint pain , just tired all the time , well after while , im finding i have to think about what i do to preserve my energy ....
active in the morning then wiped out in the afternoon , need a sleep most days then ok for a while ,but then cant sleep at night , i stated going to the gym and im shattered that night or nxt day ....also get mental fog thing and poor concerntration ....
iv been back to docs over last year loads of times for re tests to check the iron after taking iron tablets , , i get and have been for many years low iron as fairly heavy periods , puts iron low because of that , more re tests done to monitor iron , and iv been advised to take iron when i have my period as to put in what i loose ....
recent blood tests i had everything checked i have the print out .

i have booked in for blood re test for 2 weeks then seeing doctor after that ...
she doesnt seem concerned at all about any of it ...
its just because i read this about CFS it seemed to fit my symptoms ....

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ballofworry · 05/04/2015 10:00

will ask more questions then as this is really impacting on my life now and im sure its not just because of low iron ...as im not anemic ...ferritin 13 ...

Anyway thank you for listening and advice , I hope your Fibro is under control and your pain free ..my MIL has this and has good and bad days

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wfrances · 05/04/2015 10:46

how are you sleeping at night?
i was told ,if you dont get stage 4 sleep -you will suffer
and its a viscous circle.

ballofworry · 05/04/2015 11:03

hi sorry whats stage 4 ...

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sanfairyanne · 05/04/2015 13:31

ferritin 13???
ok so you are very low in iron stores. this can make a lot of people feel knackered
you could try spatone 2 sachets (no constipation issues but not always as effective) or buy ferrous ... (sorry cant remember) at the chemist
your ferritin for a start is not 'normal' Sad

sanfairyanne · 05/04/2015 13:36

have you been tested for celiacs btw?

do not rush for either a cfs or fibro diagnosis - both are 'dustbin' diagnoses eg no treatment

ballofworry · 05/04/2015 13:46

had blood test for celiacs , had blod tests for everything to be honest ...
my ferritin is has been always low for years ...always around 13-15 , went up to 78 when on iron last year for 3 months then dropped back down afer another 3/4 months , (heavy periods ) so doc suggested i take 3 iron tabs all the days i have my period to top up my loss ....

i dont think i have Fibroyalga at all or ME , was just i read about fatigue syndrome ...sounded like a possability ..

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ballofworry · 05/04/2015 13:58

my doctor said my iron was in "normal " range im just so sick of feeling so tired all the time i do think i need to push for more ..iv been told its all ok for so long im beginning to think just me , but i truly feel awful at times and at 42 im sure its not right ...i should have more energy than this ..
thinking about it all , the whole iron thing could be relating to being tired , fogy thinking IBS to maybe ... Hmm
who would i ask to see next ? ....

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RubySparks · 05/04/2015 14:05

Ask for printouts of your blood test results and update here - any family history of thyroid, b12 deficiency etc? You sound a lot like me before I found out I have coeliac disease, then hypothyroidism and early menopause! Also B12 is low and been declining over last few tests so have had injections too. All this seems to be autoimmune and likely to have been triggered by stress for me.

ballofworry · 05/04/2015 14:14

my mum had B12 defiiciency had to have injections , although she has other health issues to ..

yes stress is a huge part of my life i suffer with Health anxiety

i have got my print outs from last 2 visits ..maybe i wlll compare , thanks for tip ..

just when the doctor says all is "normal " you tend to think all is ok , but i would take a guess that some are on the low side possibly

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ballofworry · 05/04/2015 14:21

im also at a loss with diet .. as if i eat to much fruit im bad , veg the same , fat the same ....
from bloods she said i am absorbing so that was good ... Hmm

was my gastrologist last August regarding my IBS who said as just how i am now and to accept that now "normal " for me .. given my anxiety ....but said noting i was saying to him was ringing alarm bells ....
my symptoms are .

1 loose undigested food BM , ( in morning )
some mornings ok ....well better ..
some bloating
wins att times
pain left hand rib when very stressed and wind
this has been same for 5 years now , after having investigations was diagnosed as IBS stress related

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