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Original poster

Good friend's nephew is critically ill with Goodpastures disease, anyone with experience?

11 replies

frumpystumpy · 31/10/2006 21:04

Its rare.....

He is 17 and its a long shot but I wondered if anyone had anything to offer? Anyone with experience?

He is currently suffering renal failure and has blood in his lungs.

OP posts:
Original poster
frumpystumpy · 31/10/2006 21:24

bump

OP posts:
BlackMagicMiaou · 31/10/2006 21:27

that sounds awful frumpy. I have never heard of it, sorry, but didn't want to pass on by, as it were.

Original poster
frumpystumpy · 31/10/2006 21:29

thanks for the reply

OP posts:
BlackMagicMiaou · 31/10/2006 21:30

I guess you've read all about it frumpy but I found this which is quite comprehensive.

Original poster
frumpystumpy · 31/10/2006 21:33

thanks a bunch, that is really helpful, everything I've found is in heavy medical jargon and I was having trouble sorting out all the info.

OP posts:
blondehelen · 31/10/2006 21:34

this
Again, didn't want to pass on by but the link may help.

BlackMagicMiaou · 31/10/2006 21:36

At the bottom of the information is a link to a site by a patient with the disease (though it affects her lungs only), and she has further links on there to more info.

Original poster
frumpystumpy · 31/10/2006 21:36

thanks girls

OP posts:
Original poster
frumpystumpy · 31/10/2006 23:03

bump before bed for anyone with experience...

OP posts:
Original poster
frumpystumpy · 01/11/2006 12:56

quick daytime bump

OP posts:
fairyjay · 01/11/2006 13:00

Sorry, can't help. Wish him all the best though!

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