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Original poster

Im pleased to announce that i finally had the tests..and have a diagnosis!!!

16 replies

SPACEdoutzombieCADET · 26/10/2006 21:24

hi all.
went to london today and endured 3 hours of really awful tests, all designed to induce horrible symptoms of spinning dsizziness, howebver i stuck it out and as a result have a diagnosis.
i have significant left inner ear damage, the balance organ has only about 10 per cent function in my inner ear, possibly caused by the labyrinthitids i had 2 years ago, the term used was a failure to fully compensate.
ive been referred to the physio dept for vestibular rehab therapy which should help me regain some of the balance back.
its taken 2 years and an incorrect diagnosis of pnd, but i finally got my answer.

OP posts:
BudaBeast · 26/10/2006 21:24

Sounds like a step forward. Sorry the tests were so horrible though.

swOOPingbatS · 26/10/2006 21:25

i am so glad you now have a diagnosis,
hoepfully now you will get the correct help
good luck, i know it has been hard for you.
clinks a small glass of fizzy stuff for you

MarsLady · 26/10/2006 21:26

Glad you know what it is!

VermiciousKnid · 26/10/2006 21:27

yay

ear probs a nightmare, i know

californifright · 26/10/2006 21:27

This reply has been deleted

Message withdrawn at poster's request.

lucy5 · 26/10/2006 21:27

Good news! At least you know where to start now.

BlackMagicMiaou · 26/10/2006 21:27

Excellent spacey! Hopefully you can get appropriate treatment now

Original poster
SPACEdoutzombieCADET · 26/10/2006 21:32

thanks everyone, its been a nightmare and im glad to finally know what it is,im off to bed now as its been an exhausting day and im on a friends computer in cambridgeshire!

OP posts:
suedonim · 26/10/2006 21:34

Two years! So glad you have a diagnosis and I hope a cure is just around the corner for you.

Mercy · 26/10/2006 21:42

I thought this was yuor thread!!

I am so glad you've finally got a diagnosis and hope you will feel better very soon.

Will you do anything re the incorrect diagnosis?

Original poster
SPACEdoutzombieCADET · 27/10/2006 11:54

theres no cure as the damage to the balance organ is irreversible, however vestibular rehab therapy can help my brain to over come some of the damge, but i will never be 100 per cent better.
im mulling over making a complaint against my old surgery over the way i was treated.

OP posts:
winnie · 27/10/2006 11:58

spacey, I am so glad that you have finally got a diagnosis. Hopefully things will start to move forward now with regards to your health.

Bugsy2 · 27/10/2006 12:04

spacey, so glad you finally got a diagnosis & that you can now be given the appropriate treatment.
I think it would certainly be worth a letter to your surgery.

Original poster
SPACEdoutzombieCADET · 28/10/2006 10:03

i have decided to make a complaint against my old surgery, now need to think about how i word the letter.

OP posts:
moondog · 28/10/2006 10:05

Oh da iawn Spacey.
God,sounds like a bloody nightmare!

foxinsocks · 28/10/2006 10:12

spacey, so pleased you have a diagnosis. I only hope the vestibular rehab will help you on the way to recovery. I had some inner ear damage after a particularly nasty ear infection as a child (treated too late - my parents weren't great believers in taking us to doctors) and unfortunately, I still suffer from travel sickness quite badly but other than that, I don't notice it at all.

Well done for getting to see the specialist. Is she going to be the one that treats you now?

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