Gilbert's Syndrome

[RnBloody]

Has anyone here been diagnosed with Gilbert's Syndrome? Also known as familial hyperbilirubinaemia? My mum has just been diagnosed and as it is caused by an autosomal dominant gene I have a 50% chance of having it.

All the info says it is relativley harmless but can have side effects such as nausea, chronic fatigue, IBS jaudice etc etc. These are all things I have suffered from regularly throughout my life only to be told there is nothing really wrong with me. I am going to be tested asap.

Would be interested to talk to anyne with this condition to see how you manage it.

hi,
my friends dd2 and dp have this. all i know is that they are always sick after eating . they are not slim either . her dd is always eating and constantly hungry and thirsty. they cant bear to have anything around their necks either and fell like clothes are strangling them .
hth???