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Back Again! Back Pain Support Thread

999 replies

PavlovtheCat · 09/04/2014 17:01

Only right I start the new one seeing as I was responsible for the last one ending so abruptly !

This is a support thread for people with back pain (that does not even cover the description of hell that back pain causes). It's for all types of back pain, for long term posters with chronic pain (including those on the upwards journey to recover), short term advice through tough acute episodes and all the in betweens.

We moan, winge, share successes, guide each other and hand hold through the maize of a million medical routes and options, treatments, investigations. We internet shop as a form of pain relief, drink wine, take strong painkillers, eat cake and we go through lots of heat packs!

We don't always have the answers but we do have a lot to say about it all Grin

Here are the links to our previous threads:

www.mumsnet.com/Talk/general_health/1871592-The-Back-Story
www.mumsnet.com/Talk/general_health/1992406-The-Back-Story-Continues
www.mumsnet.com/Talk/general_health/2023274-More-Terrible-Back-Stories

OP posts:
PavlovtheCat · 15/04/2014 13:27

maizie how am I? well. It is 1:15pm and instead of being at my pain clinic I am in tears, in bed.

My day started following a night where I felt fluey, hot sweats and generally pants, migraine this morning (not headache to start, the aura, everything moving fast, head swimming, eyes a bit unfocussed) then felt sick with it, DH got cross at me going to lay down as the house is a mess (except I am off sick so going to bed for half hour is not unreasonable). I then got the headache, threw up, pain back and leg increased. Felt better after throwing up so left for my pain clinic appointment.

Pulled out of the parking space. Drove along for 10 seconds, then BANG!!!! I had hit something, but what?! I hadn't seen anything. Stopped, got out of the car to see a guy checking the back passenger door of his car. I had hit the car door and ripped off the wing mirror and casing from my passenger side. Clean off. Check they were ok as there was a passenger in back seat, apologised profusely (as I presumed it was my fault), confused as to how the fuck I had missed a black car door. The guy said the damage was minimal, said he didn't mind not exchanging numbers. Only as I got back into my car and the woman and man asked if i was ok as I was tearful (at imminently missing my appt) and they said (the woman in particular) 'sorry' that I realised I had not missed it, the woman had opened the door as I drove past. I realised this given how it hit my wing mirror and the fact the car door was shut as I stopped (she had obviously shut it quickly as soon as she saw me but too late) and where the damage to his car was. No wonder he was fine at not swapping numbers! So, as I was already getting in the car I drove back around to park back up, and thought I would go and see about getting his number and they had gone.

Shaken up (never had a car accident before, not even a scrape or reverse into an inanimate object) and got back in.

Some dents in the car which we won't get fixed as it will cost to punch out and respray but the wing mirror easily fixed (DH just driven it to a garage who said we can get it spare and he will fit it for a few quid).

But. Pain clinic can't re-arrange the appt for later today. Next appointment is 9th May. 9th of fucking may! no leniency, even though I was in tears. I said I could come in by 2pm. Then DH got cross with me said I could have got a cab. But that would have involved thinking having just hit a car and not taken their details and not knowing how much the damage was.

So. I am not fine really. And my nerve pain in my leg is irritating me beyond belief, and the pain in my back is increasing and I have a headache and i am really, really, fucked off.

Got to wait another fucking month to have the conversation about injections. I am destined to never bloody get them done Sad

OP posts:
PavlovtheCat · 15/04/2014 13:32

live i drove an automatic hire car for work, and it was lovely. So easy to drive. It also had reverse sensor which was brilliant as sometimes I find it difficult to turn round enough to see behind me and as such my parking is often untidy!

DH has said the last few days my driving has not been good and i think that is why I presumed I had missed the door being open, but I had only just started the drive and the road is quite narrow with cars parked on either side and it would have been impossible for me to have missed a door open. But, the doubt is there and so i might just leave driving for bit.

OP posts:
Matildathecat · 15/04/2014 14:57

pavlov, that's total pants. Poor you. I'm on my bed, too. Heat patch is buring me but can't face removing it. Worst pain in ages. So far today had

Gabapentin 600
Naproxen 500
Omeprazole 20
Cocodamol 60
Tramadol sr 150
Gabapentin 600
Tramadol

Fucking hell, that's shocked me. Oh, and two slices of toast.

What to do? Go to sleep maybe. Ironing piling up, millions of jobs to do.
Sending a big hex on those two idiots and to the pain clinic who think another month is ok to wait.Sad

I drive an auto which is lucky because no way could I use the clutch. If you're getting pip mobility could you look at moterbility? Think you've told me before why not.

Ho hum.

Matildathecat · 15/04/2014 14:58

And DH car has heated seats. Last word in car comfort for back cripples.

livelablove · 15/04/2014 15:48

pavlov sending you unmumsnetty hugs Thanks Cake Cake (2 cakes as you need feeding up!) and moving your dh to the front of the queue for the pain transfer device, followed by the pain clinic and the people in that car if we can catch em, saying that it is sometimes better to do these things without the insurance company, when I had an accident they wrote off my nice Peugeot 306 and we didn't get enough back to replace it with a similar car.
Wow matilda that is some list! Sending you Cake Cake too as you also need feeding ;). Have you been doing anything different to set it off? Could the injections have had a bad reaction in some way?

PavlovtheCat · 15/04/2014 17:29

matilda that's a big concoction, about what I would have been on before surgery on some days. As said by live could it have something to do with the injections, as that was only a few days ago? You said no steroid this time, could it be a problem with the anaesthetic used, especially as nerve pain has increased hugely?

live I wouldn't have gone through insurance, but if I had got their number, would have asked them to pay for respray of the door panel. The wing mirror will cost about £60-70 for part and fitting. Got the part second hand already, so just a few quid to fit it so not horrendous although that is a the cost of a pair of shoes….

OP posts:
Maiziemonkey · 15/04/2014 19:25

so sorry you are having a mega-shitty day pavlov, they were a bit sneaky weren't they- wankers! Has it had any adverse effect on your back- i was worried straight away about that when i read your post. be on the look out for any worsening or new stuff in the next couple days.

I really think it's worth ringing up the pain clinic again tomorrow- try diff time you might get a diff member of staff who might be more flexible. yes they are stretched but it is my understanding there is always a tiny bit of wriggle room that they will give to people when they deem it necesary- darling for you it IS necessary but you soldier on alot and they think you can wait/ will be ok in the mean time. Repeat the fact that you had an accident- it is absolutely not your fault! so mad on your behalf and very mad at your dh, bit insensitive- he's not usually like this is he? usually a bit more sympathetic. Any way it's worth trying them in the am and if they won't and your pain is still high it might be warraunted to go to a&e- you cannot just stay like this for another 4 weeks, and of course leaving you lots of Wine , Biscuit , Brew , Wine , and a confused bunny coz I think they are cute! Easter Confused

Maiziemonkey · 15/04/2014 19:29

also feeling Sad on your behalf matilda - that does sound like a very bad day if that's your schedule before 4pm ((((((((())))))))) and all of the above accoutrements i gave pav to help you feel a little better while you are in so much pain. and i know you don't like cocodamol so it's a bad one if that is coming out of the cupboard too.

The house work will have to wait- you are more important sweetie. Do you think you should ring them and just let them know what is going on as it would be a bit unexpected surely for everything to get so much worse straight after the injections, wish i could give you a real hug but it would probably hurt you at the mo, xxxx

Matildathecat · 15/04/2014 20:44

Thanks for the empathy girls. Having had the injections on Friday, perhaps Saturday and Sunday were ok days, well better than usual. Yesterday was dodgy, I carried on with my plans but saw this coming. Today fairly dire.

So, was my injection 'successful' in that weekend was okish? Did I 'overdo' it causing this? Or is the whole thing a total random mystery? I know he hit the right spots because apparently my agony when the needles were in were a good sign. Hmm

Only got to wait until June to discuss any of this...

Hoping for a better day tomorrow. Cheesed off.

livelablove · 15/04/2014 22:23

matilda could it be that he has irritated your nerves with the injections, the anaesthetic masked it at first, but once it wore off they were still irritated? A bit like after an op? This still might mean the steroid injection could work as maybe he really has found some of the trigger points for your pain. Or did I just make that up Easter Confused anyway hope you feel bit better after a Wine or a whine or both.

Maiziemonkey · 16/04/2014 00:11

aha, i see you are hooked on the bunnies too like they are so cute.
matilda that's such a long time, that seems a bit harsh. Is there no way round that? It may settle in a few days i guess- if it has irritated something in the short term. fx for you that this is just a little blip and will improve soon.

livelablove · 16/04/2014 08:21

Maizie I know Easter Wink. matilda hope it is a bit better today? Could your g.p be of any help, do you think? Maybe they could write a letter for you or summat? I don't know if they can just thinking, it does seem useless that they don't see you till June.
pavlov how are you today? Have you recovered from car accident? Any effect on your back? Maizie suggested ringing pain clinic again do you think that might work?

PavlovtheCat · 16/04/2014 21:53

Thank you for my hugs and eaten gratefully. maizie how are you doing at the moment? Have you recovered reasonably from your surgery, it seems to have flown by since it was done? matilda how are you feeling today? Hope there is some let-up to the pain. live speaks wisely like she should be a medical professional or something with her theory of the injection irritating a nerve? Hope it eases soon and you don't have too long on the concoction of painkillers to keep you going (or lying flat!).

losty how are things with you? are you managing over the holidays ok without your H, has he stepped up and been helpful to you with the children? Hope your pain levels are ok.

denial how are you feeling after your shite appt? Have you got anywhere with the consultant finding out why the other one wanted your meds reduced? Are you feeling any better?

tadaa how are you doing, managing ok on pain levels with your busy schedules?!

Everyone else - I am thinking of you, even though I have not posted. I know there a few newbies who are having some tough times with pain, please do keep posting, I have a brain like a sieve, but a very fine one, so your names and situations will sink in without me reminding myself i do often sit here with a pen and paper to remind myself of what to write and to whom! but not today

My update: Recovered from hitting that stupid car door. New wing mirror delivered this morning, not fitted yet. Passenger mirror so still able to drive legally, although only did so today as I had a passenger to be my eyes!

GP appointment. GP suggested signing me of for another 4 weeks Shock I have said 2 weeks as I really want to get back to work. He agreed 2 and review. Had a good discussion. He was Shock at a) the attitude of the consultant ('arrogant' was his own words, not put into his mouth, I was attempting to be nice 'he didn't have the best bedside manner') and b) his decision to not proceed with fusion. He said that 60% was, in his view not accurate - there is a vertebral slip and the consultant himself has said that it's likely this is causing the pain and what is fusion for if not for fixing instability of the spine? He instantly agreed that I should have a second opinion and started the referral there and then. He also said the consultant should have asked for (can't remember the name he used) a motion x-ray to see my spine moving as it's being x-rayed, as it may be moving at any point during my movements not just in one or two static flexed(?) positions and that the consultant can be present (should be) to see the movements himself. He said I will most likely need to induce pain for them to see what they need to see by moving into positions that cause the vertebrae to move, but feels it would be worth the pain. losty maybe you will know more about those x-rays? oh and c) he refusal to commit to what is likely going on which he thinks is quite obvious (the disc is damaged and possibly prolapsed again and the vertebrae is moving causing pain) so that pain clinic have something to work with.

He has suggested I have the MRI before the second opinion so that surgeon has all the newest information to see what's going on. He thinks, as we have all said, that the consultant already made up his mind before this appointment. GP was not impressed. He suggested I try to arrange a telephone consultation with the pain clinic as i should not necessarily need to be examined to decide on injections, and my nurse friend said they might prefer telephone consultation as they have all the info they need to make a decision/get approval with the doctor who does the injections.

Has anyone tried anti-inflammatory suppositories? My nurse friend has said that these are quicker acting than tablets and are less harsh on the stomach. I might talk to the GP about them.

I decided to go to the beach after my doctors appointment. I felt a little more positive about things as although the GP cannot fix things himself, he does not make me feel that this is inevitably all fucked. A lovely, lovely day with a wonderful friend, her DS, my DC. In sooooooo much pain now! but i have more diazepam in case this does not subside it was worth it. But I was quite tearful near the end that I could not manage to carry a coffee and tea down a steep path (with my stick) without walking pigeon step and stopping every few minutes, I felt so old and hate the children seeing me like that.

OP posts:
PavlovtheCat · 16/04/2014 21:55

sorry for my epic post. really fucking long. tramadol. That's all I can say about it. But, to be honest, I am not known for short summaries, even at work when other colleagues write 3 lines of appointment records, I write 3 paragraphs (how can they write the info captured and a continued assessment of risk factors, current protective factors for harm and offending in 3 sentences?) see, even now I can't do it Grin

OP posts:
PavlovtheCat · 16/04/2014 22:04

OMG. I forgot! I cheered myself up PROPERLY! this morning! How could I forget! I am now officially broke and can spend No More. Ever.

But just had to get tickets to ONBlackheath festival - how could I not?! It's got the one and only FB playing! AND. It's a food and music festival, which is perfect as DH is a chef. AND its in blackheath which is one of my old stomping grounds kissed some boys there as a teen played footie, had picnics, sat in the middle at 1am after being kicked out the local pub, with a group of friends chilling and drinking cider listening to music. Memories! and Frank! (and Massive Attack if any are old fans like I am).

We will stay in London, I think Blackheath is on Cannon Street Line so probably stay in London Bridge or something, for two nights, in a Real Bed (apartment or something else really cheap).

It's our wedding anniversary present to us as it's our 7th Anniversary on 21st Sept and festi is the weekend before (been together for longer, like just under 15 years, met 15 years almost to the day today).

So. So. excited!

OP posts:
mamicar · 16/04/2014 22:27

I am still here. dealing with chicken pox atm Angry Angry me. not the children. so feeling sorry for myself. I didn't like my reaction to amitriptyline. zombiefied me. Back to naproxen and 30/500 cocodomol Smile managing at the moment but very itchy Grin

Matildathecat · 16/04/2014 22:33

Sounds amazing and in association with....Johnny Lou Lou! Something to look forward to.

I'm ok, better than yesterday and deeply jealous of a day at the beach. An hour at Bantham is worth a thousand elsewhere. Less of the drugs since yesterday but still not great.keep enjoying the sun and keep posting everyone.

Matildathecat · 16/04/2014 22:36

Mami, cross posted. Bad news about the CP. Hope you feel better soon.xx

PavlovtheCat · 16/04/2014 23:10

mami unfortunately the amytriptyline takes a good two weeks or more for the side effects to subside, and if you cannot wait that long to get on with living it's a hard call. I personally could not ride through the side effects of being like a zombie, and gave it a good 5 weeks, and had about 2 weeks of no change in pain before it took effect AND the zombie state so felt awful about taking it. But many people here find if they can get through the first few weeks, those side effects reduce significantly, become bearable, disappear completely or you find a way to manage the times you take it etc. I am sorry you have had to deal with the chicken pox too, that's shit when you are dealing with your own pain Sad have some as that might help a little.

matilda glad things are a tiny bit better, I hope you continue to make improvements, even if small ones, as long as it's in the right direction. Are you able to get out into the garden and enjoy some sun?

I only managed the beach (Portwrinkle/Finnigook beach in Cornwall) at all thanks to my wonderful friend, her DS and my DC who carried everything. Friend took the children rock pooling, was the one prepared to run in if DS went paddling too deep, packed everything up, and her DS played wonderfully with my DC so that I could natter, and relax in the sun (actually really bloody hard to do as I can't sit, or stand, or walk for long without having to move/stop). Thank goodness for fantastic friends. BUt I felt like such a burden. And daft as it sounds, i don't want her DS to see me as a hobbling wreck of an old woman. He is like my nephew and I want him to grow up feeling sorry for me or that he has to 'take care' of me.

I love Bantham! great for surfing/bodyboarding, not so great for kayaking (big tidal pull through it). Did you know it's up for sale? The entire village? It's a privately owned estate and up for sale for £3m or something, maybe already sold (might be guide price at auction, i mean, i don't have £3m lying around or anything, but it's not a huge amount for an entire village by the sea is it?!). Have you ever been to the Oyster Shack on route to it? If not, next time you are down, you must go. Amazing. I hate seafood personally, but those who love it say it's amazing (they do 1 lb of mussels for children without the white, in a proper seaside bucket! DD ate the lot last time) and they do fab fish pie which I eat.

OP posts:
PavlovtheCat · 16/04/2014 23:12

mami oh Shock just re-read and saw that you have chicken pox not the children! Oh no! I hope you have huge amounts of help around you? Hope you don't feel too awful with it as it can kick an adult in the butt hard can't it?

OP posts:
mamicar · 16/04/2014 23:20

I was fine until spots came out today. luckily mil has youngest boy abd a friend has taken oldest boy so I just have middle boy home. I feel crappy but cant sleep due to itching. its going against all my instincts not to scratch Grin

PavlovtheCat · 16/04/2014 23:28

mami you need to take the advice given for the little ins - porridge in a sock/pillow case and run a bath with the water pouring over it, so the porridge milk seeps in, then chuck it in the water, soak in the bath for as long as you can, as often as you can. If you let the DC squeeze the case the oats are in, the milk comes out gooey and it entertains them for ages too. The hot bath is also fab for back pain, as long as you have someone to help you in and out of it and it doesn't hurt too much to be in it.

Add a couple of tablespoons of bicarb of soda to the bath water too if you have some to help dry the spots out (that's not a scientific amount, it's guesswork!) and take some piriton for the itching. If you have long hair, put it in a french plait, so that if you have spots in your hair you won't have to brush your hair for a while without getting dreadlocks! (DD had her hair in a french plait for 10 days, she just had very curly hair when it came out, no knots!).

OP posts:
mamicar · 16/04/2014 23:34

Thanks have done sock porridge tonight and have taken antihistamine too. And my pain killers. I just uncomfortable. Will try to get some sleep.

PavlovtheCat · 16/04/2014 23:44

oh good. I shall stop teaching you to suck eggs then Grin hope you feel more comfortable soon.

I am in less pain, or perhaps I care a little less. not sure. Have taken 100mg SR tramadol. Great for pain, not great for sleeping. Boo.

OP posts:
Maiziemonkey · 17/04/2014 00:30

hi y'all, are you still awake on the trammy pavlov?
that beach trip sounds amazing- sometimes you need those type of excursions evn if you kind of cant easily manage them- good for the soul.
thanks for asking after me pav, hmm dunno, everything is about the same as before the op- maybe a bit worse actually, taking more codeine than i was but is that tolerance increasing or pain increasing? I feel like the days are something to "manage" constantly and it only takes a little slip of memory or judgement to get "stuck". My new meds regimen every day;

omeprazole on waking
1000 paracetamol (3 or 4 times/day)
60 dihydrocodeine -same
diclofenac 3 x 50 after each meal (x3)
Gabapentin 100 3 x a day
amitryptiline 50 each night

I have found lately that the diclofenac works best if taken alone- not with the dihydrocodeine and so this means i am usually taking something every couple of hours. This is about how long it takes for me to feel i need to as well- so in some ways it's better managed but i know thw doc wants to eliminate the opioids completely- maybe i will be able to increse the gaba. 100 is pretty small dose. I rang the surgery for a call back appt to ask if i could but the doc (apologetically) said i had to ask my doc as there were so many drugs in the mix! i have pt myself on tomorrow's so he can call me. Gaba does semm to work quite well (but partially) so that makes me hopeful I am heading in the right direction.

I don't think i ever get the awful intensity you suffer pavlov- cant imagine what that is like, but the constant-ness is wearing, very tiring and depressing. Before the op I felt ok-ish on waking- now it does leap on me a bit as soon as i wake up nd days are better if i get onto taking something quickly- kids brekkie permitting! so that is an eg. of a creeping change for the worse. I have gone back to using a crutch, to see if it helps. I know i am doing too much but find it hard to stop. Went to library today and stood far too long in the book aisles looking for info- painted myself a bit into the corner. It's deff starting to affect my work more. Finding it hard to stay focused and concentrate. I got a result for last timed essay today though and it was very good so trying to just keep plodding on. Using my hottie lots of course. sorry to make a very me-post- feel bad as dont get high level pain- I know no-one on here is judging but i still feel that way (my problem :) )

sorry if this comes across a bit moany- has been a long hard day as dh's mum is very ill, taken to hosp with kidney infection and now has been told she is having another liver scan tomorrow as they "found something" but no idea what that means. Last thing he needs right now with a terminal sister, too much stress for one poor family. I just try to be there but do feel very useless to help. Also got text today of school offer for ds of a place not very near us, ofsted report "requires improvement" and said report mentions areas not ok are support for SEN and leadership structure and delivery are not adequqte- wtbf??? have to sort that out pronto, add it to the list- very big list of stuff to sort out. And thirdly found my credit card bill has jumed up- feel they,ve made a mistake except I am a dreadful clutch sometimes and might have forgotten about it due to op, grrrrrr

Had a good chat to my sis about the school thing- helped me to reach an "assertive" viewpoint on it. Good to have someone else just know how scary this stuff can be coz it's about your kids.

As pav- with an excellent memory- has said, how is everyone doing that have been a bit up and down lately? seems the thread has gone a bit quieter in last few days, but maybe you are busy doing stuff Smile
Soooooo glad to hear today was a bit better matilda- last few days really sounded awful, hope the trend continues Grin
I am out in the eve tomorrow seeing Russell Kane, taking a friend as we couldnt get a babysitter (has to be friends or family really) - meeting 5.30 so we can eat/drink/chat couple hours!
I went to the chocolate festival at Angel last week- oops did i already post that? terrible memory, please excuse.
hope you are all having a calm and pleasant slumber zzzzzzzzzzz