Meet the Other Phone. Child-safe in minutes.

Meet the Other Phone.
Child-safe in minutes.

Buy now

Please or to access all these features

General health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Back Again! Back Pain Support Thread

999 replies

PavlovtheCat · 09/04/2014 17:01

Only right I start the new one seeing as I was responsible for the last one ending so abruptly !

This is a support thread for people with back pain (that does not even cover the description of hell that back pain causes). It's for all types of back pain, for long term posters with chronic pain (including those on the upwards journey to recover), short term advice through tough acute episodes and all the in betweens.

We moan, winge, share successes, guide each other and hand hold through the maize of a million medical routes and options, treatments, investigations. We internet shop as a form of pain relief, drink wine, take strong painkillers, eat cake and we go through lots of heat packs!

We don't always have the answers but we do have a lot to say about it all Grin

Here are the links to our previous threads:

www.mumsnet.com/Talk/general_health/1871592-The-Back-Story
www.mumsnet.com/Talk/general_health/1992406-The-Back-Story-Continues
www.mumsnet.com/Talk/general_health/2023274-More-Terrible-Back-Stories

OP posts:
livelablove · 30/04/2014 00:24

pavlov good luck with work tomorrow. I am sorry you can't go body boarding alone, but its a good idea to find something you can do and take a bit of time for yourself. Maybe just spending some time outdoors in nature, just enjoying the scenery would be nice.

queen let us know how you get on with the new drugs. Hope you sleep well.

Matildathecat · 30/04/2014 09:44

stargirl, just re reading your posts. The leg pain is nerve pain so you need to ask your GP if there are any nerve pain meds you can take. The pharnacist might actually be better to ask then you can ask the GP for specific meds. Codeine just isn't that great at controlling nerv pain.Sad

Your physios hypothesis sounds very likely indeed. At least there's a good chance of improvement after pregnancy.

queen just a thought about your DH???I always find it works better if I describe my pain 'like' something. My back pain is like I've been hit with a cricket bat. Pre surgery it was like a gunshot wound. It's a bit easier for others to imagine than 'my back hurts'. If he's still calling you lazy I will send him a small hex and our pain transfer device which bestows a dose of pain upon unsympathetic individuals Wink. It's had a fair amount of use on these boards!

Have a good day everyone. Smile

Nancy66 · 30/04/2014 11:33

just back from GP who wasn't brilliant. I said the codeine was ok for days when the pain was moderate but on days when it's very severe (as it was yesterday) it just isn't enough.

She's giving me some Naproxen which just seems like a high ibuprofen and I'm not sure what good that will do. My surgery is a practice of 5 doctors and this lady is by far the worst so - of course - she's the only one you can ever get in to see!

livelablove · 30/04/2014 14:24

Hi nancy I find naproxen very good for pain related to inflammation, so it really depends what is causing the pain. For me the naproxen doesn't kill the pain quickly like codeine but if I take it regularly for a few days it really helps. I think this is because a lot of my pain is caused by inflammation, I can feel a swollen spot when it is bad. So really I think of naproxen as something you need to take regularly until you are quite a bit improved, not a top up painkiller for when you are feeling worse. But I think it would be worth trying now you have it and take it for at least a few days to give it time to build up.

Nancy66 · 30/04/2014 15:32

that's helpful to know livelablove. I'll give it a go and see what happens.

LongTimeLurking · 30/04/2014 15:39

Ask for a pain management referral if the GP isn't willing or able to manage the pain adequately.

In my experience Naproxen is useless. Maybe it is good for those with inflammatory disorders ?

Nancy66 · 30/04/2014 15:51

Longtimelurking -I think that will be my next move but my MRI results are due next week so may as well wait and see what they show.

PavlovtheCat · 30/04/2014 16:31

nancy I personally cannot function without naproxen, I don't think it's psychosomatic. But, as live says, it's not really a painkiller in the same way as opiates, or even paracetamol, but as a an inflammatory reducer, and should be used regularly, not to address the immediate pain. Your GP should know that too and should know it takes a few days to build in your system and give you something else to help with the immediate pain. Remember, as sometimes we forget, to take paracetamol on top of other meds if they don't already have paracetamol in them. So, you can take an opiate (say Codiene or tramadol) plus an anti inflammatory (eg naproxen) plus paracetamol, plus a nerve blocking painkiller like gabapentin, if prescribed. Co-codemol already has paracetamol in though as you probably know. And you also need to add a stomach acid reducer like omeprazol if taking naproxen etc longterm.

Ok drug education over.

Survived work. My manager is on annual leave and has been for over a week then as of Tuesday when he returns is probably not my manager any more, or certainly not as it is now. The whole building is moving floors around/desks around Friday and Monday, into our new teams, but don't know what team I am in, who I will be working with, and desk plan shows me pretty much on my own on a little bit of the office, the only place my desk can fit. I told the only manager in the building that if I am isolated I want a normal desk. No one thought to tell me while off that these changes were happening, none of cases are in any kind of order, work has not been done in my absence apart the absolutely most urgent cannot avoid (like recall to prison), have a homeless guy who is at risk of causing harm to others just wandering the city, none of my target driven risk assessments haver been done, and the only manager in the building didn't even know I was off sick until I said hello in the absence of any other manager. He sits right next to my current manager who is on leave, and said he was not told by him I was off despite them talking daily and this manager covering his work! It's fucking chaos, and needless to say I am not a priority. Straight into work today, no chance to catch my breath or read through my 420+ emails. Nt even reception knew I was off officially, or coming back, only because I told them when I called the office.

So. A normal day at the office Grin I stood up the whole time. My new desk is not available until Tuesday. I fucking hurt, but I expected that. I stood there trying to focus on my work, wondering how the fuck I am meant to do this for another year, five years, twenty five years...

live problem with just sitting and enjoying nature! is that I am not a natural sitter. So I find myself sitting looking at the sea which I love, and instead of enjoying it, I feel sad that I am not out there with the other surfers/swimmers, or on the moors watching ramblers, wishing I was doing that. I have to get those things out of my head and just enjoy being for the sake of it.

matilda how was the additional guest today? Bet you are worn out now!

OP posts:
Matildathecat · 30/04/2014 17:21

pavlov (((((hugs))))). That's all really. How utterly shit. Hope you can rest this evening.Sad

Nancy66 · 30/04/2014 18:11

thanks for info Pav. I'm at my most comfortable when standing - maybe we should do a job share?!

stargirl1701 · 30/04/2014 19:29

Thank you all.

Lots of helpful advice for me and ideas to take further with the GP and the physio. Thanks

PavlovtheCat · 30/04/2014 19:42

nancy Grin it makes my colleagues nervous, although I think they are now getting use to it. My current desk is cobbled together to allow for me standing, but my legs/feet get tired so I need to sit down a bit, but that hurts and so I stand up again. I have a desk that moves up and down sourced, it is not assessed for me as such by OH etc, it's been moved from another office as spare, so might be shit, but apparently is stupidly expensive so it best work! Is your job compatible with standing?

I found the hardest thing today was moving around. I didn't use my stick for short walks to get a drink etc, but to see clients I needed to go through many doors, heavy ones, with my crutch, diary, notepad, paper, and then the last two doors with the room safety alarm (and then sitting in the seat as it's really awkward to stand when clients sit, and can't make notes, its just not professional. I need a bag. But feel silly with a bag for my stuff. But, fuck feeling silly. I got to do what I got to do.

OP posts:
17leftfeet · 30/04/2014 20:26

Just had a massive thunderstorm and I felt it in my back an hour before it started -very odd

Now got the obligatory post thunderstorm migraine coming on

My body is weird, I can't be the only one!?

PavlovtheCat · 30/04/2014 20:31

17 that's wow! I wonder why that was? I wonder if it's something to do with inflammatory markers or something, given that sometimes people get storm headaches (I do). I have never paid attention to if pain increases during a storm, I might observe next time that happens. We would make such an interesting study group wouldn't we?

OP posts:
PavlovtheCat · 30/04/2014 20:47

weather pains no scientific evidence for the claim of 'majority of arthritis patients, but a good theory nevertheless!

OP posts:
Matildathecat · 30/04/2014 21:03

When I was midwifing we always had a rush of mums with ruptured membranes before and during thunderstorms. There's a rise (or drop?) in atmospheric pressure I think. So maybe some individuals are sensitive to that?

pavlov I have a little bag for carrying things around the house. Trouble is I forget to use it Hmm. Actually my memory loss is lately concerning me as much as my pain. In the last week I've left a pan on then gone upstairs to lie down and also left the iron on for several hours. I just get distracted and go off and do something else. It's both dangerous and annoying. I keep forgetting arrangements and so on as well. I really hate it as I'm an organised soul and generally reliable. Anyone else relate? I guess it's the meds but I can't bloody manage without them. What to do.

Have three assessments in the next few days. Need to be so prepared but know I'll get refused even after all that stress. Blugh.

PavlovtheCat · 30/04/2014 21:09

matilda I gave birth to both my children just before a thunder storm! DD's was particularly memorable as I was wheeled down to the ward as the crest {?} of the storm was happening, and my BF who was with me and DH, then DH came to say goodbye, and it was followed by an epic heatwave. With DS I remember it, as DD got soaking on the way in to see me and we have photos with her drenched and we had a giggles about the coincidences of a storm both times. It was sort of magical!

How mad is that?!

OP posts:
QueenChrysalis · 30/04/2014 21:14

Pavlov - a bag is a great idea, something stylish if possible. I do remember my Dad broke his leg and as he lives alone (well my sister moves in and out depending on her job situation) my aunty brought round a little rucksack for him to carry stuff around while on crutches. Very amusing as he's a very grumpy and usually ferociously independent who'd never wear a rucksack!

I also worry about how I could work when I need to alter my position so much - sitting, standing, rocking back and forth, lying down...

DH back with patches so will read and report back, although I've taken cocodamol and was told to stop when I use them (although people on forums appear to use butrans and cocodamol together and it's a low dose). I'm thinking the morning would be best or perhaps lunch time as my first cocodamol often sets me up for the day, that initial morning stiffness.

No idea about the weather forecasting things but it was lovely to have the warm sun on my back earlier.

Matilda - yes I'd love to get DH to better understand the pain, but also the duration, the grinding, constant pain and how difficult normal movement is. He has moments he is nice but is just fed up, I can understand it but it's not a good sign long term and I don't see us surviving as we are for many more years, it's a kind of rotting decay that needs careful monitoring and treating. I don't know if it's sexist but I have heard a lot of men struggle with long term empathy and just want an easy life. Mine is much happier if I don't ask him to do anything because I do it myself.

QueenChrysalis · 30/04/2014 21:21

Matilda - I struggle more with memory on the medication. I'm only on cocodamol at the moment (well first dose back on amiltripiline tonight) and I am much less hazy and sleepy even if I'm getting less sleep.

17leftfeet · 30/04/2014 21:23

Pav it happens everytime, or if its been cold for a spell and then suddenly warms up

Matilda that's very odd about people's waters breaking???!

Matildathecat · 30/04/2014 21:38

Oh yes, lots of strange things happen in maternity units Wink.

queen it's really odd! my DH doesn't do the emotional stuff. Luckily I have good friends who do that. But, he has stepped up to the mark quite amazingly in terms of practical support. We've been married very nearly 25 years (I am a bit old but don't feel it) and in a very strange way it's made us stronger. I think the fact that we've been to many very grim medical appointments together that have offered very little hope plus him seeing me quite beside myself with pain has helped him see it how it is. Anyway I hope you don't have to go through all that to get some empathy. Trouble is young dc make you both so stretched. All very hard.

candycoatedwaterdrops · 30/04/2014 21:52

Hello! I am new to this thread but not new to chronic pain. I've had severe, unrelenting and stubborn Rheumatoid Arthritis for 5 years. Up until recently, I had very minimal relief from meds and sustained fairly nasty damage in many joints. I started a triple therapy combo in August '13 and had a few months of low inflammation but bad side effects, so they switched my treatment again.

I've had nearly 2 years of non-specific pain in my right hip/thigh/lower back. Consultants (one rheumatologist and one orthopaedic surgeon), 2 physiotherapists and 2 rheumatology nurses said it was RA in my right hip. I had a (completely normal) MRI scan. They decided that it was inflammation that settled down with new meds and basically told me to carry on managing my condition as I have been.

Finally, I have what appears to be a better diagnosis. The problem is with my sacroiliac joint and lower spine. Basically, the joints are barely moving and the pain is from muscles. The concern is that the RA has been quietly niggling away in my spine.

I'm seeing a private osteopath and having physio on the NHS. I'm waiting to see if/when I can be referred to a spinal specialist. I can barely walk. I am miserable as hell. It has built up and built up to the point where my daily functioning is deteriorating. I'm sure life as a 25 year old isn't meant to be like this. Sad

Matildathecat · 30/04/2014 22:19

candy welcome to a group you never wanted to join.Sad. But I do hope we can at least offer some support. Firstly heat...are you using heat patches as they can be hugely beneficial. Secondly, I had an SIJ injection earlier this year with some success. Lots of nerves run through the SIJ so it's a good candidate for injections. Also, if you have nerve pain from this area it's possible that nerve meds might help. Sorry, I'm sure you aren't looking for more meds but using the correct meds for different types of pain is vital.

If none of the above any use we like shopping here, too. Smile

QueenChrysalis · 01/05/2014 11:54

Morning,

Patch went on just over an hour ago. I felt ok not to take any cocodamol so thought I'd pop it on - better to have help for this as it's tricky putting it on my mid back solo. Nothing to note so far. Took one amiltripiline and over slept but didn't need more cocodamol in the night.

Matilda - I think the kids are the big difference. Jobs need doing, need doing quickly while the kids are demanding every moment of the day, even the middle of the night on occasion. It's more like being collegeagues who have a demanding job and an unequal deal - if he really knew what my life was like he would help me less begrudgingly. Plus the kids don't let us talk until they are in bed when we are exhausted and just want to switch off. I'm waiting for the time it supposedly gets easier being a parent, but some say it never does, so far it's just been getting harder. I don't enjoy parenting and I do resent having to give up my career - childcare is more than I could bring home. Not helped by being told the back was caused by pregnancy so having kids is the end of my ok life. When I'm being positive it is more of a chance to start over, if my back lets me - there needs to be a back pain career service for jobs suited or adaptable to back pain sufferers.

Candy - I hope the referral happens and comes soon. It is horrible to think of all the years ahead and without an answer as to whether you can get better or manage the pain.

QueenChrysalis · 01/05/2014 14:38

I'm so sore. So tempted to get a couple of cocodamols as the patch takes days to kick in properly. Also withdrawing from the opiates - going to the loo a lot with tummy cramps.