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Pt 8 (Oct13) Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc (994 Posts)

838 replies

gottagetthroughthis · 19/03/2014 00:24

Welcome to thread 8 (again - see below) of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

With apologies for confusion in thread numbers - an earlier thread was called part 7 but it was actually the 6th thread.

Here are the previous threads:

Thread 1
Thread 2
Thread 3
Thread 4
Thread 5
Thread 6
Thread 7
Thread 8

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
Batbear · 16/02/2015 21:51

Thanks Hazelnut. How are you now?

Hazelnut55 · 16/02/2015 21:55

I've had almost 2 years of being pain free and comfortable with no leaks. But I can feel that dragging again (had an awful cough for 3 weeks) and I'm worried that it's coming back. Off the the GP on Wednesday for (hopefully) some assurance.

Batbear · 16/02/2015 22:30

Hope you get the right answers this week Hazelnut. It must be worrying.

Batbear · 18/02/2015 10:10

I'm being referred. It should take a couple of months, but he examined me and was clear that there was a prolapse so I'm not surprised.

How did you get on Hazelnut?

Hazelnut55 · 19/02/2015 09:14

Glad you were listened to Batbear.

I chickened out and cancelled my appointment. It's been a bit better this week and it's certainly not as bad as it was before the last op. I didn't want to bear my nether regions to the Dr, just for him to say it's not bad enough.

Cowardice I know. Perhaps next school holiday...

Batbear · 20/02/2015 08:01

Hazelnut, it's not cowardice really, it's knowing that you aren't at a point that they'll bother much so saving the indignity for another time.

Hazelnut55 · 20/02/2015 08:49

Well put, I'll go with that.

Batbear · 23/02/2015 20:03

I've booked my appointment with a specialist already - had a call today and appt is in a fortnight.

I'm glad it's coming but nervous about the outcome. Not really sure what I want to happen.

I

wishihadawilly · 26/02/2015 12:03

Hi everyone, this is my first time posting here and really hope to find some positive surgery outcomes from anyone! Since being told that I need surgery I've done nothing but search the internet for any information that I can find, and to be honest it's draining! I'm sure a lot of you feel the same and I was so glad to have found this thread, all 8 threads of it lol! It's just a shame that not as many seem to post on it anymore?
Anyway, I have what my urogyn calls a global prolapse which basically means everything has gone down south :-( He says that I will need an abdominal sacrocolpopexy, with mesh and a hysterectomy too. I had such a shock when he told me that I left not having asked all the relevant questions and I won't see him not until the surgery! Of course the first thing I did when I got home was search the net and for every positive story I read, a horror one would follow. I've talked myself out of surgery all together a few times, especially after reading the other well known site that's American based......you know the one I mean :-) UK surgery stories seem much more positive, or is that just me?
Anyway I have decided to do loads of research and write down lots of questions, then getting in touch with the urogyn before he does anything. I certainly won't be having a hysterectomy unless is absolutely vital and I'm not happy about using mesh either! This is the reason for coming on here. Is there anyone else having/had abdominal sacrocolpopexy with mesh?

One last thing, when I try to click on your usernames to see last posts it won't let me see anything? Is this right? All other sites lets you do this, even QVC lol! It's frustrating because when you find someone else in the same position as you, you want to find out their outcomes!
Perkins08 and shakey1500 in particular sound in sort of the same situation as myself....facing surgery for rectocele/cystocele. Please get in touch or maybe PM each other?
Right off I go to wait for anyone to respond lol
x

FilbertSnood · 10/03/2015 13:34

Is anyone posting on this thread? I have to have a laparoscopic hysteroplexy sometime soon and wondered whether anyone else had had experience of this?

Batbear · 11/03/2015 19:00

I'm watching Filbert - have my gynae appt tomorrow to find out exactly what is going on.

wishihadawilly · 11/03/2015 19:16

Good luck for tomorrow Batbear. Nothing to worry about, hopefully yours won't be too bad :-) I posted on here ages ago now but it's all gone quiet round here. Hope it wasn't me that killed this thread lol!
x

Batbear · 11/03/2015 20:07

Thanks wish

I did see your post but clearly can't help much! Hopefully this'll bump it for you

Hazelnut55 · 11/03/2015 20:34

Yes it is very quiet. Perhaps everyone else has a pelvic floor like a trampoline. Unlike mine which is like a deflated balloon!

nowitsenough · 11/03/2015 21:01

Can I ask a question? (I've posted before, but name changed since).

I have a moderate (I presume so, no one actually said) prolapse (rectocele), diagnosed by gp and I've seen a physio, but no specialist. I've been given the usual exercises to do, but I'm not good at remembering to do them or indeed very good at them - I can't tell if I'm doing them right.

I'm 50 and have peri menopausal symptoms, night sweats, tiredness. Dh and I have had a couple of difficult years, our marriage has suffered a bit and I'm trying to get the feeling back. We have sex once a month at the most at the moment. I'd like to want it more often, but it seems like so much hassle, I'm always tired, sometimes it's uncomfortable, I am very embarrassed about the whole thing, I just don't feel at ease anymore, with this changing body Sad

How do you all cope? We mainly stay away from penetration due to the prolapse. Is there a good position we can try? Any other tips?

wishihadawilly · 13/03/2015 17:31

How did you get on yesterday Batbear? Hope you're ok x

wishihadawilly · 13/03/2015 17:35

I agree with you Hazelnut haha......mine is definitely a deflated ballon :-( I'm having a particular bad day today, not sure why? That's the thing with prolapse.....some days are a lot worst than others aren't they. Are you having surgery? It's all rather scary if you ask me and since being diagnosed I seem to be like a woman possessed lol.

Hazelnut55 · 13/03/2015 18:07

That is odd isn't it Wish? I find that I go 2 or 3 days where it's really bad and I really hate having to walk around the work building, it's so uncomfortable. Then it improves for a couple of weeks. That's why I haven't gone back to my GP yet (had surgery 2 years ago) as I think it's got to get worse before I need further treatment.

Also, I'm overweight, so I'm trying to lose a bit as I'm sure that doesn't help.

wishihadawilly · 14/03/2015 13:02

Hi Hazelnut, reading back on your posts I see that you've had surgery twice already.....oh god it's never ending isn't it! Sounds as if I should be grateful with the surgery that's been offered to me then i.e doing everything all at once. They say that being overweight is a main factor but I've always been a size 6 to 8 so don't think it really makes a difference. My main problem has been carrying heavy things and the forceps delivery I had 19 years ago can't have helped lol!
I'm glad to see a couple of others have decided to post on this thread again now. I even had one lovely lady message me personally telling me all about her success story after having surgery similar to what I'm having. More success stories are needed on here so if there are any other ladies quietly reading this thread, who are great now after surgery, please tell us :-) I'm fed up of reading the horror stories now!
Nowtisenough....I can't really offer much advice apart from get yourself seen by an expert asap. My doctor told me "oh it isn't that bad a prolapse but I'll refer you anyway" Turns out it's very bad and now I'm waiting for surgery for full repair. I'm not saying that's true for you but get checked out. I'm just sorry that I left it this long before doing anything.

lauren6283 · 14/03/2015 20:57

Hey everyone
It's been a while since I've been on here but this is the only place I could think of to get some support.
I have to have a defecating proctogram in the next few weeks, which needless to say I'm dreading.
I was wondering if anyone else has ever had anything like this?
My son is 16 months old and ever since he was born (I had a third degree tear) things just haven't been right. I'm convinced it's a prolapse/rectocele but I've been examined so many times now that I just don't know any more.
Feeling fed up at the moment.
Hope everyone else is good ??

Batbear · 14/03/2015 21:28

Hi wish and everyone else

I met a really lovely consultant - he was very kind and made me feel very comfortable.

I do have a rectocele prolapse, but not at a level that he would operate on yet. He can see why using menstrual cups etc feels uncomfortable though.

He said that approx 40% of women who are late 30's like me with 2 reasonable size babies would probably have similar.

We talked through how best to manage where I am. Yes to not gaining weight and yes to trying to do pelvic floor exercises (he said this was worth a shot but not conclusive).

We expect it to deteriorate, but hopefully if I avoid straining I can keep surgery away for a while.

He did say that I should go back if I have any concerns so I would suggest Now that you go back to the doctor.

lauren6283 · 14/03/2015 22:11

nowitsenough just read your post, my physio said to try doggy style and lots of lube.
Hope that helps.

alteredimage · 16/03/2015 18:44

May I join you? Vaginal hysterectomy and various bits of repair is scheduled for Thursday. Its been pretty quick. I only saw the GP in December and only got a date 2 weeks ago.

I too should have stayed away from Dr Google. There is some scary stuff out there. However I had a dull stomach ache all day and know I don't want not to do anything.

I have some sort of blood test tomorrow. In the meantime I have picked up a bit of a cough. So an early night and then see what they say tomorrow.

Incidentally having put off seeing the GP for ages he did not examine me but took my word for how bad it was and simply gave me the referral. I was quite relieved.

wishihadawilly · 17/03/2015 11:34

Good luck for Thursday alterdimage and hope the blood tests go ok today. I hate that part because they always struggle getting any blood out of me! Gosh, you were lucky to get this far so quickly, much better that way imo.
I'm glad to see that things aren't too bad for you Batbear. If it's not too symptomatic then surgery can wait. Unfortunately for me everyday is a struggle so something definitely has to be done X

alteredimage · 17/03/2015 15:29

Spoke too soon. Apparently I had been added to the wrong surgeons list. This surgeon apparently does not do the sort of operation I need. Just as well they spotted their error. Otherwise I might have come round to find the wrong body part had been removed.

Its a bore though. I had a madly social, and very enjoyable, couple of weeks and now have empty diary. I was also invited to stay with a lovely friend in May as something to look forward to but have to cancel. Plus my older teenagers would have been around over Easter and able to help. Indeed I saw real advantage in the younger one having to stay home to look after me..... and do some AS revision.

I hope they get their act together quickly. My experience has been that once the prolapse started getting uncomfortable it has continued to get worse. This dull stomach ache is wearing.

Willy (may I call you that!) I too had a forceps delivery 19 years ago. Then an over heavy suitcase last summer seems to have been the final straw. Its surprising how many of my contemporaries have similar histories. I have been hearing lots of positive stories.