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Pt 8 (Oct13) Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc (994 Posts)

838 replies

gottagetthroughthis · 19/03/2014 00:24

Welcome to thread 8 (again - see below) of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

With apologies for confusion in thread numbers - an earlier thread was called part 7 but it was actually the 6th thread.

Here are the previous threads:

Thread 1
Thread 2
Thread 3
Thread 4
Thread 5
Thread 6
Thread 7
Thread 8

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
Impala77 · 30/07/2014 23:42

Pinkfrocks I'm 37 and have suffered rectocele and cystocele after the forceps birth of my only child. I have had a repair (don't think it's worked but that's another problem) a friend of mine had 2 sons 14 months apart, she was running and playing football 8 weeks after second child.
I totally sympathise with you, I get so angry and jealous when I see new mums exercising and dashing about. Why did this happen to me? I was fit and healthy now I'm depressed and feel like I'm disfigured and useless.

Pinkfrocks · 31/07/2014 08:28

I know. Sorry to hear about your problems.
I had my repair at around 35-36. I've been lucky in that it's lasted though think things are not quite so good as they were. Doing my PF exercises all the time now.
I had very easy births though the first was under 3 hours start to finish- DC1 shot out so maybe that was the problem, or the fact that I am a tiny person.

I've 2 friends who had 3 DCs each and they jog/run and do all kinds of stuff. I used to do lots of sport too but can't now- not feeling sorry for myself but just curious how other people who seem to be the same build as me have much better PF!

Fleur40 · 31/07/2014 09:15

Hi everybody I have been following all your posts now for a couple of weeks. I am two weeks post op for posterior repair and tvt sling. B4 surgery my gyn said my vagina was open and the posterior repair will narrow it . Has anybody else had this and was they happy with results? Thank you

Impala77 · 31/07/2014 10:30

I'm 4 weeks post op for posterior and anterior repair, my surgeon has told me that scar tissue shrinks and I shouldn't leave sex too long in case it shrinks too much and sex will be very hard/painful. I can't say that sex is my first priority as I now think my uterus has prolapsed as 4 weeks on I still have that "something coming out" feeling, but it's intamitant and worse in the evening, if it was still swelling from the op surely it would be all the time. I've read on here about people having repairs only to end up going back for hysterectomy! Why oh why don't they check the uterus during a repair???? I can't afford another 3 months off work.

happylilme · 31/07/2014 11:49

Hi all I'm 7 months post op for posterior wall repair and perineum rebuild due to big baby. Impala I had that feeling of something falling out at the end of the day, I think it was as I got a little more active things would swell again. I still get that feeling during my period. I know at your stage sex is the last thing on your mind but from I felt comfortable sex ha greatly improved x I hope this is the case for you.
Regarding exercise I have gone back to the gym as my consultant and physio said that this is fine after the 6 month Mark. I don't run on the treadmill I do a high gradient usually 5 or so and a speed of 6.5 to 8, bike seems absolutely fine no undue pressure on my pelvic organs I can happily cycle up to 15 k with no pain. Again the rower I tend to squeeze my pelvic floors when pulling weight out. This seems to hold things. I do upper body weight machines again only 10/15 kg. I don't do any sit ups as this was one of two thing the physio said to avoid the other being squats and deadlifts.( I can live with this as I never liked them ) the only thing that shirnks the tummy area is good old fashioned diet so we don't actually need to do sit ups.
I must say I have stopped running outside as the impact is too much. I know we are all different and what I can do others might not but just thought I would share my fitness experience.
Wishing all you ladies well in your recovery xxx it does get better

Pinkfrocks · 31/07/2014 12:59

I wonder why we all sometimes feel looser around period time?

Impala77 · 31/07/2014 14:31

Thanks happylilme, nice to hear a positive story. I know it's still early days, i'm just scared that it hasn't worked or whatever. I just want my life back, my daughter is 19 months and I feel like I haven't had chance to bond with her cos I've been so wrapped up in my own problems!
Pinkfrocks things feel worse around periods because your cervix moves down during periods so if it's a bit low anyway when it drops you can feel it. (I think that's right anyway)

jessandme · 31/07/2014 20:30

Izzy I've just seen your question re my surgery. I was in hospital for 2 nights. This was 2nd surgery as I had transvaginal hysterectomy and posterior/anterior repair without mesh 2 years ago which had started to fail. I was in 3 nights with that surgery.
I don't think having the hysterectomy at the same time as the sacrocolpopexy will make any difference to the length of your hospital stay or recovery time.
I am feeling quite well now but obviously the incision site will take a while to heal.
Have you a date yet?

izzybizzybuzzybees · 01/08/2014 20:29

jess still no date. I'll likely need another Pre op appt as well if it's any longer. So annoying. I think she's doing a posterior and anterior repair as well.... I certainly hope she is as I've uterine, bladder and bowel prolapse. Although I do remember her saying that she couldn't do too much at once.

It's all such a nightmare as my uterus dropping I was told about the day after the bladder repair! I have no idea why he didn't just fix it then!

Shakey1500 · 03/08/2014 20:28

Hi ladies

How long was the wait between GP visit and a referral to a consultant? I know it varies per area. Just out of interest.

It's been over 2 months since my GP visit. I've rang the appointments dept only to be told "there's no appointments at the moment" Confused

Impala77 · 03/08/2014 21:49

Hi shakey I can't really help as I was under consultant anyway from the birth of my daughter.
However 2 months seems a long wait, I only waited 3 months for my operation.
Mind you this particular area of problem seems very common therefore very busy.
Sorry I'm no help hun but didn't want to read and run.

izzybizzybuzzybees · 03/08/2014 21:55

I can't remember waiting time the first time I was referred. However when I was referred for a 2nd opinion the waiting time was 10 weeks.

happylilme · 03/08/2014 22:32

I went to my gp end of August last year then had first appointment the end of September was told surgery was only option. Had pre op middle of November then had operation 6 th December last year.

LoveBeingInTheSun · 03/08/2014 22:40

Pinkfrocks Thu 31-Jul-14 12:59:21
I wonder why we all sometimes feel looser around period time?

I assumed it was yo do with hormones, about like when you are pregnant

mrsclairet · 06/08/2014 19:35

Hi, sorry I have not had a chance to catch up with the thread. I am 4 months post 2nd op for anterior and posterior repair and was told after this op that they might have sewn me up too tight which would make sex painful. I haven't tried it yet but sorry if tmi had just tried being touched and that was uncomfortable and they said they could cut some of the skin away but I couldn't face letting the surgeon get his hands on me again. Anyway I was on my period at the weekend and let my dh touch me and it was so much better. I know it's not something that is talked about much but I was really worrying at the age of 33 that my dh might get fed up and go elsewhere and it was really nice to feel like maybe we might be able to have sex again in the future without it hurting. I know it's not the be all and end all of a relationship but it is important and my poor dh has had to put up without it for nearly 4 years!

Hope everyone is ok xx

Impala77 · 06/08/2014 21:29

Mrsclairet it's not the be all and end all but I totally understand, i'm 38 and we have done it about 3 times in 2 yrs. I have the exact same fears that hubby will go elsewhere. I'm 5 weeks post op, posterior and anterior repair. I'm still suffering though. My main issue was urinary urgency and frequency and since my op it's worse.
I'm very low at the minute as I had all my hopes on the op helping and it hasn't. I don't know how much longer I can carry on like this, I have no life.

Shakey1500 · 06/08/2014 22:19

Thanks all. Spoke to the appointments clerk today and it's about an 18week waiting list just for the initial consultation Sad

Impala77 · 06/08/2014 23:29

Shakey that's quite a long wait! Hope they get you sorted when you finally get to see someone.
I know how hard it is waiting and then counting down the days till your appointment praying they'll give you some good news/help.

kianaidan · 08/08/2014 14:44

Clairet - I.m so pleased things are a little better for u. Hopefully things will improve more on the sexual side. Do u think it cud be partly a mental issue too. I only ask as I haven.t had any surgery but can.t stand to be touched. Its def a mental hurdle for me. Xxx

Perkins08 · 10/08/2014 15:47

Hi all, thought I'd join in here. I had my second baby 16 weeks ago. Had a progesterone coil fitted 10 days ago, and gp said I was a bit weak down there but no problems. However, when I went to put a tampon in on Thursday there was something in the way - had a look and saw something blocking the entrance to my fanjo (love that word!). Panicked, went to A&E as we're away from home, and was pretty much told there's no treatment and what do you expect if you've had two babies? I'm seeing my gp on Tues when I get home, but I feel awful - idiotic for going to A&E, but also very sore and uncomfortable and having the longest period I've had for years. Sorry to rant on - I'm just so glad to realise I'm not the only one.

Impala77 · 10/08/2014 22:26

I feel your pain, it's awful how these things happen after having babies yet they aren't talked about. I had no idea this could happen and if I'd have known I may have decided against children.
I expected after only 1 baby that everything would go back after a few months, how wrong was I. Hope your gp is more sympathetic.

gottagetthroughthis · 10/08/2014 23:27

Impala just for the record there was a lady on here a while back who had no children and it was happening to her! I just think that maybe some of us have weak pelvic floors Sad

OP posts:
Impala77 · 11/08/2014 13:41

Gottagetthroughthis, oh dear that's even worse!
I'm sorry if I seem like I'm feeling sorry for myself, but I feel so annoyed and angry, at everything and everyone actually!! I just keep thinking why? If anything was to go wrong for me it would as it always does!!!

gottagetthroughthis · 11/08/2014 23:06

All girlies - Well I don't know if these facts are right but my gynae dr said that 80% of women are affected... I feel you have to physically put it out of your head for a while - anyways that's what I have to do and it works for a while - what else can I do? At least I am not alone - yea I went to the gym, run, jumped, did all my own gardenibng and I would give everything I have financially to be able to do it all again but this is what I think - I've got my arms, I've got my legs, I can still go for a walk, I can see, hear, smell ..... do ya see what I mean??? Smile

OP posts:
Perkins08 · 12/08/2014 11:41

Gottagetthroughthis - thanks for the positivity, right when I needed to hear it! My GP was thankfully lovely this morning, thinks I have a rectocele and has referred me to the Pelvic Floor Unit (who knew?). While I wait, I'm to avoid lifting my 2 year old and my 16 week old baby. Hah! I'm very sore and amazed at the power of the psychological effect of this - Impala, I hear you! It feels particularly unfair as I've done Pilates for over 15 years and thought I had a pelvic floor of steel...