Huntingtons disease

[Sixpencenonethericher]

Hi , I have been diagnosed with this today and was wondering if anyone here had ? Xx

I can't help you but am replying to bump this in active convos for you.

I haven't but its a genetic hereditary condition, which would suggest others in your family have it too? How have you as a family managed it so far?

Do you have symptoms or have you had a genetic test ?
I have worked with people with this condition.

I've known that it was coming I tested positive for the gene 16 years ago and I was tested every year but today was the first time any symptoms appeared
My mum and my grandad had it one of my mums brothers has it the other hasn't

I'm 44 and my symptoms are balance and co ordination and memory problems , fidgeting depression and I've fallen down most weeks in the last 6 months x

Have you got support ?

Yeah all my family and friends have been kind also my dh and dd x

Hi. I'm sorry to hear of your diagnosis but it's great to hear that your family and friends are supportive. Which area are you from? There is support from the huntingtons disease association in England and the Scottish huntingtons association in scotland.

I don't have HD but do know about it, so sorry sixpence, and sending you a huge hug over the airwaves x

My neighbour had it, as did her dad and her son.

Hi. My mum has HD, and has symptoms. One sibling has tested positive, but no symptoms as yet. I am negative. My other sibling is soon to be tested.
We are all similar ages to you.
How are you feeling?

Hello sorry for you being in the same boat lovely your negative but your worry for your sibling is still there
I'm all over the shop and my husband bless him has head firmly in the
I've been trying to explain to him how my brain isn't taking in things anymore but it's hard xx