Meet the Other Phone. Flexible and made to last.

Meet the Other Phone.
Flexible and made to last.

Buy now

Please or to access all these features

General health

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

The Back Story Continues

999 replies

Matildathecat · 09/02/2014 06:04

This is the support thread for all sufferers of back pain. Everyone most welcome to join.

Here's our first thread

www.mumsnet.com/Talk/general_health/1871592-The-Back-Story

My story long and grim but basically had failed surgery for disc prolapse, then further failed surgery to attempt to salvage the situation. I have nerve root damage and severe scarring around the nerve at L5 which won't get better. I'm 48, can't work, take a lot of drugs and have a blue badge. Currently battling several different agencies for ill health retirement and other benefits.

But I'm ok, having some fun despite the pain and have made some lovely friends on here.

Please post and include your story if you'd like to. No niggles too small, this is strictly non competitive! Smile

OP posts:
GoodnessKnows · 04/03/2014 21:27

You're on, Pavlov
When the fuck will I be able to sit up in bed??????????

PavlovtheCat · 04/03/2014 21:30

ok. I have a question to ask.

Does anyone find that periods make their back pain worse? Like much much worse? I have just had my first period that I am getting period aches in my groin area etc, for years due to contraceptive implant which now needs to come out (it stopped my periods, god I have not missed them). My back pain has eased, and today I am in a LOT of pain. I don't think the period is causing it, but can it make it worse?

GoodnessKnows · 04/03/2014 21:33

Pavlov - Fucking shit day pain wise. You been doing more than usual for you to get back into that state? Sorry if you've already said something about why you felt particularly bad.
I hope to gd you feel better tomorrow and have some rest time.

LostInWales · 04/03/2014 21:36

Why would you want to sit up in bed? Shock You need an electric blanket and an ipad to drop on your face. Perfect Grin.

Ta Pavlov (I need to write things down too!) I suppose I know I have a right to complain, we all do about a million things, I just feel like I've used up all my complaint points on lovely Bil and DH just doesn't need to hear anymore. He needs a fragrant lovely wife to greet him at the door and take his bag and give him some nice relaxing down time. Come here and have a gentle cwtch and some nice warm wheat bags. Have you had paracetamol, oddly it's the only thing that helps me with the fluey bits.

GoodnessKnows · 04/03/2014 21:40

Just read back some of your posts. There's been a LOT of 'fuck'ing going on tonight, ladies - me too!

Maybe more chic minimalist than glam: Look at this on eBay:

7 Day Pill Wallet Box Medicine Tablet Holder Organiser Storage Travel Dispenser

bit.ly/1d1fg5M

Okay, I was making the most of things.

GoodnessKnows · 04/03/2014 21:40

Anyone here live in Hertfordshire?

PavlovtheCat · 04/03/2014 21:47

I agree, no sitting up! laying is the best way to go. Mind you, I have always loved my bed. Just, pre-children I would sleep 11 hours straight, not waking in the middle. Ha! That was me catching up on my sleep in advance. As I can't imagine ever sleeping longer than 3 hours without waking ever again Grin

I love 'cwtch' ! How do you pronounce it? yes to paracetamol. but only just, I have been doing goodness trick of being stubborn with the meds.

goodness I have attempted to pretend I don't have a back problem and tried walking a little bit faster/stride importantly at work (hehehehe thats even funny thinking I can do that now!, sat down a bit more, stood up a bit more, not taken meds.

And fucking cramp!!! in my toe, I have a hammer toe, sort of, due to it being longer than the big toe (both feet) and I suspect it's been broken a few times in my life. It often goes into spasm and sticks out at an angle. DH hates feet, he does not do foot massage or nowt but as I can't bend, couldn't reach it to try and bend it back and he had to sort it out! He actually offered though as it was really really sticking out the wrong way! fuck knows what that's all about Confused

PavlovtheCat · 04/03/2014 21:49

I have this fancy looking filofaax type pill box btw. I needed it to have 4 sections for each day (morning/noon/evening/general) for the whole 7 days. But it's too big. I want pretty.

We definitely need to do a business for glam looking things like this. Honestly, we really probably could. And design a handbag with the proper compartments to put these things in without them looking like a rucksack, sleek, slender, but designed properly for gel packs, pill boxes etc Grin

LostInWales · 04/03/2014 21:57

Cwtch like this but I say it with a tiny bit more 'oo' to the 'w'. It just has so much more soul than cuddle I think Wink and can be used for areas of the house as well as giving a comforting yet forceful hug.

Hmmm, nicely practical but not exactly orange snake skin there goodness, I think we may have a plan. I don't even know where Hertfodshire is but then unless it is the north of England or Wales I am fairly clueless! Anyone live on the south west coast of Wales (I know the answer to that btw no one lives here!)

LostInWales · 04/03/2014 21:58

One more thing (see I should write this stuff down) I don't have periods because I have a mirena coil, it is a thing of great joy to me Grin

GoodnessKnows · 04/03/2014 21:58

Pavlov, that'll teach ya for doing the work-stride!

Next week, I'm teaching all day in a school. Boy oh boy! But I reeeeally want to do it. Newish supply job I get just pre diagnosis. Wonderful school and I like to keep my hand in.

And I thought my Filofax style was glam (it beat the one my mum bought in that it has a cover and clasp)!

I need one with six compartments. Not 4
As if!

I'm daring tonight: taken 10mg less of Ami.

Scared.
Stupid?

I hate not being able to sit up in bed. How's a girl meant to ... watch TV

Don't tell anyone but... I'm not doing my Physio.
Any of it!

PavlovtheCat · 04/03/2014 22:00

lost is cardigan bay on west coast of wales?

goodness I sort of know where hertfordshire is. It's just north of london isn't it? (watford? wellyn harden city?)

I am also a zillion miles from anyone on here apart from matildas parents Grin

PavlovtheCat · 04/03/2014 22:04

at goodness now now, you got to do your physio !

Losty - I had a merina coil. It was not fitted wrong. It slipped. Wow. I could feel the metal. For several months, told it was just my body settling in. My female GP was like this Shock when I got to see her (rare) and she felt it. She said to me 'i have no idea why a woman would chose to put one of these contraptions inside her vagina' Grin she was very anti them and that just re-enforced her view Grin I am in agreement with her, yet, quite happy to have some cyber implant stuck under my skin Grin

PavlovtheCat · 04/03/2014 22:06

ok, having heard that voice saying it (both of them) I love it even more now!

GoodnessKnows · 04/03/2014 22:17

Yes Pavlov
It's there.
Shame you're not near anyone on here

Matildathecat · 04/03/2014 22:19

pavlov I feel your pain and frustration. Having a few 'good', for us, days then relapsing to the usual bad is somehow, every time, crushingly disappointing. I hardly like to ask, but have you heard anything from your stupid bastard lovely neurosurgeon? If not, please get in touch with PALS tomorrow. There is no point in the whole world having expensive investigations without having the results and a plan of care discussed. You have been failed by him and your pain clinic and I am fucking angry for you. Please take the meds if you need them. My back and leg are screaming and I've had mine.

However, I realise it's very personal. Maybe I'm 'surrendered to pain'?

Pastel drug boxes, glam handbags, groovy shoes...we are on a roll.

'We'll be millyonaires, Rodney'!Grin

OP posts:
LostInWales · 04/03/2014 22:36

Cardigan Bay is pretty much the entire west coast of Wales Grin I live near the namesake town.

My boys call me a cyborg because I have my hearing aids (god could any thing sound more old fogey than that?) so I am all good with the mirena. I think if it works for you it is amazing, I have been really lucky in that respect (YAY I do have some luck) it's worked so well for me and my old hideously heavy periods have gone and I can have it through the menopause which should help with that as well. I can understand not wanting a bit of plastic living inside you though.

We WILL be millionaires this time next year, we are due some luck surely?

aaliyahmacgo · 05/03/2014 06:39

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

LostInWales · 05/03/2014 08:03

Morning creaky people! And good morning to you, strange spam bot person, I have pointed MNHQ in the direction of your post, just in case Wink

GoodnessKnows · 05/03/2014 08:30

Aaliyah... What?!?!

GoodnessKnows · 05/03/2014 08:34

Matilda - millionaires? Better be, this internet shipping while stick at home / in hospital ring is mighty expensive!

I took 10mg less of ami last night. Slept! Yaaaaaay
On a rooooll
Gonna kick that gaba soon and then the rest of the ami and the other stuff maybe. Confused. Have filled stylish Filofax case pull box so don't really know what's what. Lol

PavlovtheCat · 05/03/2014 08:43

In that case losty you need to check this festival out look at who is headlining! I sort of feel hasty for getting my bd tickets now, as this not only looks fab, and has my band of the year playing, he is playing On My Fucking Birthday! I don't think I can do the camping though, it's just too much, and we can't do two yurt festivals, due to not yet being a millyonaire! But, is it close to you? If so you can get local residents tickets. I would be so jealous of you if you did, but you must do it, for me!!

PavlovtheCat · 05/03/2014 08:49

I love the odd random post in threads like that!

goodness Yey! For sleeping, 10mg reduction on Amitryptiline is ok I reckon. Glad it has worked ok.

matilda sorry you are in a lot of pain even with meds Sad I don't even know what to do about neuro. He clearly thinks there'd nothing to talk about so pals will just mean he gets his arse in gear to tell me there is not much going on with the disc or whatever. The secretary promised me on Friday she was writing and sending the letter on Monday, and would call me to tell me what it said on Monday. More lies.

I have snuck on here. Yesterday I was at work this time. Today, not even dressed. I am sore. Not to sore to not go to work, but too sore to rush and not really want to get in the shower and move about bending and stuff while getting dressed. Shane I can't go in my Jimjams! Best crack on before I am really bloody late. Good job I am on flexi and have no apps early this morning. I don't think...

Have a great day everyone.

LoonvanBoon · 05/03/2014 13:58

Hi, can I join the thread please?

Have had back pain since May '13, but the leg pain (right leg, down to the calf) is much worse. Early 40s, no history of back problems. It started after I fell on my arse on slippery ground - soft landing, didn't hurt much at the time. Back pain the next day, leg pain started 2/3 days later.

I'm mobile & still walking quite a lot but in pain (variable amounts) every day. NSAIDs do help, as does co-codamol, but I've not seen any real improvements over the months. Have seen a chiropractor & had NHS physio (neither helped) & have been doing exercises (mainly yoga-based) religiously for months. Read Sarah Key's back book & have tried her exercises & the back block too. Some of the exercise gives relief at the time but there's been no lasting effect so far.

Eventually had an MRI (late October, & took 6 weeks to get results) that showed my bottom disc (L5/S1) is dried out & degenerated, & bulging out -particularly on the right - so that it impinges on the S1 nerve root. There is also facet joint arthritis at the same level. Other discs seem fine. The report said that, given my presentation, this was almost certainly symptomatic.

I was surprised that it seems to be disc-related as I haven't had numbness or loss of sensation in the right leg. Do have odd sensations like tingling, though, as well as the cramping, pinching pain. My GP says there is some loss of strength in the right leg (though I can't feel this) & there is some visible muscle wastage on the right side of my bum/ hip area.

Anyway, I'm seeing a neurosurgeon (NHS) next week but don't know what to expect or, indeed, what outcome I'm looking for. As I said, I'm mobile - walked nearly 5 miles yesterday (more than usual, admittedly, & with the help of 30mg. codeine) so I realize things could be a lot worse.

OTOH, I'm in pain that is severe at times, & hard to manage on a daily basis. I can't stand (still) for more than about 10 mins. - have to divide up ordinary tasks like preparing a meal into manageable chunks. I can't drive - can't extend my right leg adequately in a sitting position. Can't sit comfortably in most seats. And the pain can worsen unpredictably - eg. when I'm walking - to the point where I want to lie down on the pavement. I can't do long journeys & am in agony after sitting in the car (as passenger) even for an hour. It's affecting my life & the lives of the rest of my family.

Does anyone have any idea what, if anything, the consultant is likely to want to know & what, if anything, might be offered. While I know I'm fortunate that I'm not incapacitated / in constant agony, I would also like to have a normal life back. I suppose I just don't understand why my back won't heal. My mum had major disc prolapses 3 or 4 times in her adult life, & was much worse in the early stages than I've been with this. Yet she was fully recovered within 4 /5 months each time, yet I'm still like this 10 months on from such a minor incident. I don't get it.

Sorry for such a massive post. I've only just discovered this thread & haven't had chance to read it all yet.

GoodnessKnows · 05/03/2014 14:57

Loon, welcome! Good name Wink
I have absolutely zero help or advice to offer on the 'what might be offered front. But best not to mention the long walks and to tailor your description to your worst days and the limits on your daily functioning and tasks, when you see neuro guy?
What do the others think? They now more than me. I'm v new to all this.

Swipe left for the next trending thread