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**Tamoxigang heading towards hearts and valentines - thread 47**

990 replies

BetsyBoop · 07/02/2014 10:40

roses are red
violets are blue
sugar is sweet
but cakes are better

OP posts:
mildmay · 10/03/2014 11:29

Malts and Wren thanks for the advice.Happy Birthday Wren enjoy your day sounds lovely.

MomOfTwoGirls2 · 10/03/2014 11:42

Happy Birthday Wren.

Dd2's birthday is today also, and also a 0 birthday, 10! Highlight of her day will be getting no homework as her birthday falls on a school day.

It is gorgeous day in south of Ireland, supposed to be lovely til Friday. Yay!! Sunny days always lifts my spirits. And I'm on week 3, so have the energy to get outdoors and go for nice walks. Yay again.

Wren48 · 10/03/2014 13:56

It's a great birthday to have, mom, just at the start of spring, and I hope your dd has a lovely day.

The scarves are versatile, malt, although I was told that they were for headscarves. And yes, they are very very kindly meant. I wouldn't dream of saying anything to the giver, which is why I am very quietly saying something here!

malteserzz · 10/03/2014 15:02

Happy birthday moms dd ! My dis is 10 too, seems quite a few of us with 10 year olds

Wren I'm sure you wouldn't say anything, it is a bit of an odd present. People are annoying me today by saying it's all over, you've beaten it, you're so strong etc. They don't understand and they don't know the half of it !

Anyway rads all finished and I have a bag of creams, gel and dressings so hopefully my poor boob and chest can recover !

kitkat1967 · 10/03/2014 15:25

Malt - you sound just like I was. I did think I would never get past it but I have (despite currently poorly boob).
But hurray for no more frying of your boob - hopefully the dressing and creams will work quickly now the Rads are over.
Have you got any plans for the next few weeks?

malteserzz · 10/03/2014 18:16

Feel better than I did yesterday anyway kitkat ! Plan is just to get back to work and then go away at Easter, hopefully abroad but if not definitely somewhere in the uk. Friend brought me some flowers round earlier for finishing treatment which was lovely

reallyreallyworried · 10/03/2014 19:23

Well done malt glad you made it through the Rads! Now to give yourself some time to heal. A holiday sounds like a great idea!

I got through my Rads appt today. It went okay. Although couldn't help feeling I wanted to be anywhere but there! Now have a few weeks to get back to normal, before starting Rads on the 26th!

Will be glad when all this is over!

Mummywheel · 10/03/2014 19:27

Happy Birthday! Wren Cake and Well Done! Malt Wine

honeybeeridiculous · 10/03/2014 19:34

Does anyone know if you can miss a days Rads or have 2 on same day? DF will ask tomorrow but just thought I'd ask you lovely ladies, as he wants to go to a friends funeral next week and its 100 miles away so won't make appt if he's allowed to go

malteserzz · 10/03/2014 20:32

Honey I had a day off in the 2nd week as they were servicing the machine, that seemed to be quite common so it can't be a problem to miss a day. Or could he ask for a very early appointment and go after that ? My hospital was really helpful when I wanted to change the time so I could go to parents evening

Really how many weeks of rads have they given you ?

reallyreallyworried · 10/03/2014 20:42

Hi malt I'm having 5wks!

ConsiderablyBiggerBuns · 10/03/2014 21:00

Hope you had a lovely birthday wren.
malt I can still remember the feeling of vulnerability 30 years ago when my very successful (although ultimately carcinogenic) treatment completed first time round and I was expected to just get on with things and be celebrating my recovery. I had felt quite secure in a way while I was being treated and it was like losing a comfort blanket - and that was as a cocky 19 year old!

honeybeeridiculous · 10/03/2014 22:17

Thanks maltes thats helpful

MomOfTwoGirls2 · 10/03/2014 22:54

malt I can't wait to be where you are - treatment finished!! Though it seems wrong as a cancer patient to be wishing a few months of my life away...

Openupyoureyes · 11/03/2014 00:00

Hi everyone, first time posting on this board. I finished my treatment 3 weeks ago. Had a lumpectomy and 2 lymph nodes removed in July, fortunately I'd found the lump early on and the cancer hadn't spread into surrounding tissue. I had 6 sessions of chemo, FEC-T, which was vile. I found it really tough going and had to be admitted twice for 5 days each time with infections. Last chemo was 3rd Jan, then I had 15 sessions of RT during Feb. (Honey I had 2 days off in one week, once due to a power cut and once due to machine maintainance).

They told me the RT would continue to work for several weeks after end of treatment. The burn under my arm was really bad after a few days, and due to where it was it wouldn't heal, was so raw and weepy and sore, but I was told not to put anything on it and not to cover it. I was getting a bit desperate by the end of last week - then suddenly it just dried up and healed pretty much overnight! I couldn't believe it. It's gone on to get better each day, with no scarring. I've been putting aloe Vera gel on it since it dried up, which helps with the itching.

I know what you all mean about everyone thinking that's it, all back to normal, they have no idea of the emotional toll it takes and yes Considerably that's just how I feel - like my security blanket has been taken away and left me feeling really vulnerable. But I can feel I'm getting over that more each day.

The big thing for me now is the tiredness. I could sleep for England! I don't wake up until about 10.30/11.00, and have to force myself to get up or I'd go straight back to sleep again.

So now I'm looking forward to building my energy levels back up and getting my life back again. I wish you all the very best during your treatments and beyond.

trice · 11/03/2014 00:20

It took me about six months after the treatment ended before I felt normal again. I was really surprised when my cancer came back so I must have been feeling secure and not thinking about it all the time.

I just had one of those phone calls with my mum. She says she wishes it was her instead of me. I wish I wasnt making her sad.

Wren48 · 11/03/2014 06:32

Oh trice, it's so hard feeling responsible for the sadness of others because of this blasted illness. I hope you got some sleep and have a good day today.

malteserzz · 11/03/2014 08:37

Morning all

:( trice

Open up welcome. We sound quite similar, I've also just finished treatment. Glad you have healed after rads, my boob is red raw underneath where the skin is coming off but they've told me to cover it with gel and dressings, weird how the advice is different in different places !

5 weeks really! How easy is it for you to get to the hospital as the travelling is the worst bit.

Waiting for my head to call about going back to work, he was meant to call after school yesterday but I'm still waiting

weebarra · 11/03/2014 09:24

Oh trice Sad. My mum said the same when I was diagnosed. I know she's hurting but that is not helpful.

reallyreallyworried · 11/03/2014 10:20

Hi malt luckily for me they moved my Rads to one of there linked hospitals, so it's actually a bit nearer! It'll be a ten min ish walk to bus stop then a 5/10min bus ride, depending on traffic!

My bigger issue is work! It's going to be the school hol's! Finding someone to cover just for an hour or two will be a nightmare, so I might have to take the time off. I don't want to make life difficult for them.

How did you feel during Rads? Did you carry on as normal or feel more tired, sore? I know everyone reacts differently, but nice to get an idea of how I might feel.

Hope you hear from your head today! I'm sure once you're back to work you'll start feeling a little more normal xx

trice I've had that conversation with my mum many times! I feel so guilty for making her feel bad, but it's out of our control. I always tell her that it's better that it's me, as I am younger and fitter! Plus I wouldn't be strong enough to see her through all this, but I know she is strong enough to carry me through! Because that's what mums do! Sending you a ((((hug))))

weebarra · 11/03/2014 10:57

I know what you mean re school hols and rads really. I am actually going to move through to my mums for the whole 5 weeks as that will mean, while she will have to look after the DCs, she will have her life back for the rest of the time.

malteserzz · 11/03/2014 10:58

I think it would be hard to carry on with work just because of the time you'll take getting there, waiting for your appointment etc. The actual treatment bit only takes 10 to 15 mins. I don't know if you've had your times yet but mind were all over the place and they changed some of them too so it would be hard to arrange things. I felt fine during rads, bit tired towards the end that's all. My skin has broken down now but it doesn't hurt.
Still waiting for the call but I'm going out for lunch in a bit

reallyreallyworried · 11/03/2014 11:31

Thanks malt I'm starting to think it'll be alot less stressful all round, if I just take the time off Sad Apparently my hospital give you the appt times a week at a time! Sounds like they could be any time of the day! As for running to time!! Hmm highly unlikely I would think!

Enjoy your lunch out! Xx

Openupyoureyes · 11/03/2014 11:36

Hi Malt I had the soreness under my boob as well! not as bad as under my arm. I had one radiographer tell me to use aloe Vera gel on it, but all the others said to leave it and let it breathe and not put anything on it. In the end I just folded a tissue and put that over it, which stopped it rubbing but was loose enough for it to breathe and stay dry. I stopped wearing a bra as well.

Trice it's so hard for mums to see their children going through something like this, and also for us to see the pain it causes them. My mum had just gone through my brother having leukaemia when I was diagnosed. Fortunately we have both come through it, but it has been a tough couple of years for her. I'm so sorry you are going through it a second time.

Openupyoureyes · 11/03/2014 11:41

Really I found the appointments rarely ran to schedule. I was never in and out in under an hour, longest wait was 3.5 hours. Some of my times/days were changed at the last minute as well. If you're able to take the time off it would be much less stressful for you.

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