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Hysterectomies - it's gotta be done but over here for hand holding part two

992 replies

Oddsocksrus · 09/12/2013 22:57

Over here for the hand holding.
One in five women in the uk will have to have a hysterectomy at some point in their lives.
Come and join us if you are waiting, pre op, bleery eyed on the ward or recovering afterwards.

OP posts:
Twinkletights · 03/02/2014 19:22

That is amazing to hear Ledkr!

Right now all I can say is OUCHHH
How do I sneeze without it hurting like hell and feeling like something is trying to escape out of my belly button Sad

Ledkr · 03/02/2014 19:45

I know!
See I can understand people feeling great after if they had heavy periods and suchlike but I was fine, just a bit eggy Grin
I just hope it lasts.
My tummy is still quite tender especially with tight clothes, I'm a bit fed up with my tender fat belly. Did an exercise DVD today so god knows how I will feel tomorrow,

gingeme · 03/02/2014 19:47

Shock Ledkr

fullasagun · 03/02/2014 20:13

Shewhowines - I have just had the call this evening
and have been given the all clear. Just need 3 monthly check ups now. We are so relieved and I cried when I got the news even though I had convinced myself I was fine anyway.

Does anyone know when swimming and cycling is allowed? I'm waiting till after my six week check before running again but I'm bored just walking.

Ledkr · 03/02/2014 20:25

Congrats fullers that's amazing news, wow!

gingeme · 03/02/2014 21:17

fullasagun Grin Wine

shewhowines · 03/02/2014 21:37

Fantastic news ful I remember crying with relief too, but at the same time I didn't feel how I thought I'd feel. I was kind of flat. Couldn't quite believe it, I suppose, after everything that I'd gone through.

I had my three month check last week (previous one was my 6week check) which was fine. Fingers crossed for us both staying in the all clear. Wine

I couldn't even drive until 8 weeks because of my sore thighs so I wouldn't have even been contemplating running. In fact I still haven't attempted my favourite Zumba yet.

Ledkr · 03/02/2014 21:46

When I got my "all clear" after breast cancer I was bloody furious that if had it at all Grin no pleasing some people eh?

fullasagun · 03/02/2014 23:18

Guess theres no right way to feel eh?.... relieved yet still angry at having to deal with crap we don't deserve maybe.

Im driving fine and feeling great considering... three month check must have been a worry though shewhowines and for you too ledkr, I can't imagine ever taking my health for granted again... my diagnosis was such a shock It will take a long time to get over.
I think that's why I'm so focused on regaining control over my health

Ledkr · 04/02/2014 08:36

Yes ,it does burst your bubble and make you aware that "it does happen to me" but you get on with it and I'm pretty sure it changes you to be more adventurous and cram more into your life.

Life's too short means more to us than just a saying.

Not always a bad thing though.

shewhowines · 04/02/2014 09:51

I'm not so much worried about this one returning; I'm more conscious of the chance of getting another totally unrelated cancer, if that makes sense? If it's struck once...

Ledkr · 04/02/2014 10:16

Yes. I'm afraid you will live like that, but it gets easier.

fitflopqueen · 04/02/2014 10:28

Full. Great news, that must be such a relief.
Now 2 weeks since my op, have been feeling very well but....
Overdid it yesterday, walk was a bit bumpy and then changed a bed, feeling very sore today.
So walking on smoother surfaces for now and no undue shaking of duvets.
Hope everyone else is doing ok

Twinkletights · 04/02/2014 13:18

full that is amazing news for you Thanks
The physio at the hospital told me walking only for the first four to six weeks and then build up gentle exercise until 12 weeks with a definite no to high impact prior to 12 weeks.

Hope that you are getting some rest Fitflop it is so difficult not to over do it.

I have been just about coping with the school runs etc but was really sore last night and had to go to bed early. DCs were not impressed.

gingeme · 05/02/2014 20:09

I've just been talking a lady who had a full hysterectomy about this time last year. She said its the best thing she ever done. She had a prolapsed womb and had the whole lot removed. She has since lost 2 stone in weight. She swims every day and ran a half marathon. I'd be happy to make it till 3 o'clock without wanting to take to my bed thanks Smile Oh and she's the same age as me (43)

Ledkr · 05/02/2014 22:58

I'm on day four of my fitness DVD, bit sore of belly buy feel quite good.

Twinkletights · 08/02/2014 16:02

That's really positive to hear ginge ,apart from still being very tired I already feel so much better for having had the hysterectomy, no more back and pelvic pain so I am so glad that I have done this.
Not long now until your appointment.

ledkr wow that is fantastic! You sound so much brighter x

I saw my consultant last week and all healing well here, during the operation he noticed that an area that he had previously repaired has come apart again so I am hoping that he can fix that soon. It would be much easier to have one recovery and time off work etc.

Still enjoying sofa surfing, reading and trying not to eat too much chocolate.

How is everyone else doing?

Ledkr · 08/02/2014 19:06

Well, consultant rang me last night! Felt scared but he quickly reassured me that my ovaries and tubes were cancer free yay hey.
He was impressed as my lack of meno symptoms and described me a a one of the lucky ones, but today I've been wondering if I've already had it as I had sweats and flushes 3 yrs ago after I'd had dd, I have also struggled with mood swings and a vile temper for ages now the on,y thing was regular periods but I'm wondering if I'd been through the worst already?
Still have decisions to make re hrt but I'm seeing the specialist mid march.
Weighing up the risk of breast cancer recurrence with the benefits of hrt for my bones.

wellcoveredsparerib · 09/02/2014 09:10

Can I come in?
10 days post TAH. All in all I feel pretty OK. I am no longer on regular painkillers, and wound is healing well. Dp and I have v different ideas about what I am capable of, and I can see us clashing about this before too long (he wants me to do nothing!) Can I ask what others were doing in a typical day in the first 2 weeks? Thanking you.

Ledkr · 09/02/2014 11:21

Hello, what did you have done? And how?

wellcoveredsparerib · 09/02/2014 11:34

I had a total abdominal (leaving ovaries intact) I have about an 8 inch horizontal incision - surgical clips now removed.

gingeme · 09/02/2014 15:17

Hi wellcover. Im still waiting for my op and very interested in the answers to your question x

thekingfisher · 09/02/2014 17:29

Hi wellcovered I am now 10 weeks and a bit post- op from the same op as you. It's a bit of a blur now as it seems such a long time ago although to be frank it isn't !

So first two weeks very very little generally bit of brekkie in bed followed by a very slow getting up so generally downstairs by lunch time ish then shuffling around as and when I felt like it - doing a few exercises from the physio as necessary .

I had my op on nov 29 th

I found weeks 2-3 startling in terms if recovery and I was driving at 3 weeks and pottering round fairly reasonably . Walked the dog a bit , sat on the sofa a lot. However I def over did it as by Xmas week (4eeeks) felt shockingly bad and achy - we went away for a week which was great as it meant I really had proper rest interspersed with sensible light exercise (and loads of wine)

Now at 10 weeks I would say virtually back to normal . I tried a body balance class last week and did it but felt wiped out afterwards, so I have parked that for another couple of weeks but have been having 1-1 Pilates classes for about 3 weeks since I was signed off from physio.

You really do need to see rest as a proactive recovery plan - however push yourself incrementally. My consultant said I had had an 'remarkable' recovery ( I had big emergency op with blood transfusion 1 month before hyster so in a poor state physically really)

So I would try to set some ground rules with yourself - some activity whilst you feel good but stop whilst you still feel good iyswim and if you do overdo it plenty of rest before you go mad again.

Let dh do the dull stuff like cooking, cleaning and washing and you do nice walks and pottering about don't establish anyone expecting anything from you.

I hope that all makes sense all a bit ramblySmile

wellcoveredsparerib · 09/02/2014 18:15

Thanks kingfisher, really useful to hear your experience.

gingeme · 09/02/2014 19:24

Made perfect sense to me Smile