*TAMOXIGANG* 43 *

[MaryAnnSingleton]

New thread !!

well done little-malt :)

Aches are gone thanks smee - just feeling seriously knackered now. Just got the washing in and am now having to have a rest I'm so tired. feeling quite pathetic today I'm clinging on to the fact that`in a fortnight's time I should be over the worst of my last tax truck :)

I will miss seeing the lovely nurses on the oncology unit, but I definitely won't miss being pumped with chemicals, or the smell of the unit (feeling sick just thinking about the smell...)

x-posts

kitkat - I've found you really have to just go with what you feel like doing with the tax, so sleep if that's what you feel like - it definitely seems to wipe me out more than the FEC (but marginally better that being sick? hmm maybe )

green well done your DS - we will wait with you :)

I haven't noticed the smell of chemo unit, and I do go into the administering bit to chat to my pal having her treatment...but maybe my nose is odd? some things generally do smell strange/strongly...
Well done for lovely dcs

Mum still waiting for her op but in good spirits. Hospital v quiet and empty being the weekend..we're feeding dad tonight,poor thing. (food will be nice !!) amber of course you aren't showing off,blimey- you deserve a nice cruise and we love hearing about your adventures and seeing the pictures

Green eyed cat well done to your ds that's brilliant
Smee she did 9km over fields came home for half an hour and now she's out with friends !

Kitkat hope you recover soon, rest lots

MAS best wishes to your mum

I hadn't anticipated how tired I would be this cycle, it's frustrating. And will only get worse for the last 2 I suppose. Though have been lucky and apart from the oral thrush and the metal mouth have escaped the other side effects so I should be more thankful and not so whingy really !

And my chemo unit doesn't smell either !

my onc unit has a chemically. cleaning potiony type smell which is different to the rest of the hosptial (which has the usual hospitally disinfectant smell) I do have an incredibily sensitive nose for smells though

Betsy I am sure JS publishing her book in October is a complete coincidence, talk about using Cancer to get attention.....

I had a couple of friends who were very down at the end of chemo. It is quite common, especially if the joys of Tamoxifen don't await. They felt sort of abandoned and left alone to cope, this was before they gave Herceptin for Her2neu if there were no mets. It is something to watch out, personally it was one of the happiest times of my life, I was so happy to feel well again.

had chemo in posh private room so smell was of designer interior circa 1983 (think shades of peach and blue), that made me feel sick too

well done to little malt and little green eyed cat (kitten)

malt It is frustrating, the tiredness. I was lying around most of the day in the end but you are getting there, you might even miss it, apparently

Bit cross with M&S, they have pink ribbons everywhere and a special sexy bra and knickers set in pink and black that they will donate 20% from the proceeds to Breast Cancer charities displayed in the window and the front of the department but after I finally found the mastectomy bras hidden in the bowels of the shop (actually moved even further into the bowels than they already were), they didn't have a single even vaguely sexy mastectomy bra in 36B To get one of the sexy ones it appears I will have to get new boobs with at least a DD. May have to do one of my letters....

.

I agree with the feeling down at the end of treatment - it really hit me after rads- felt quite abandoned- but this is very very common.
Poor malt - you are allowed to grizzle.
pigeons - bah about nice mastectomy bras- the fancy pink ribbony bras would irritate me hugely... haven't noticed them in our M&S yet.
Mum in operating theatre -so fingers very crossed for her xxx

well I'm back with you all now. slept on and off all day until about 6pm and since then have been feeling much better (even did some ironing and had tea!!).

So - Happy Birthday to the birthday twins. Topsy I hope the mexican feast is going well - the food looks great. Gig - did you have a family meal planned?

MAS - hope your mum is sorted now- fingers crossed.

Betsy - so far I'd say anything is better then FEC nausea but I am only 1 down 8 to go on Paclitaxel so I reserve the right to change my mind on that if necessary.

Pigeons - M&S bras sounds annoying - def worth a letter.

I am actually very concerned about how I will cope once all the treatment is finished - so far I've just plodded along getting on with everything, no drama, no upset but I am worried about being 'cut free' so to speak - I'm sure it will be the biggest challenge for me.

Plus I like all of my team so it will be odd when the routine ends.

On the positive I'm counting down to LGFB which is on Tuesday morning - yippee. In fact I'm out on Monday, Tuesday and Friday next week so stuff to look forward to (plus chemo on Weds ).

There really should be a kind of follow up thing for the ending of treatment - after months of being loo ked after you are more or less cast adrift. It is really very difficult to adjust... I relied a lot on my bcn for support- I do realise now how lucky I was with her.

topsy & hnd those churros look magnificent

Groundhog Day. Awake at 4.30 again, but nobody to blame today!

Morning foofoo are you still awake?

Yes, did a bit if painting but now back in bed. Not much planned today so can snooze when I choose.

I'm awake too would love a full nights sleep

Morning again
Foo foo what so you paint ? Did you and Jchoc get back to sleep? I did and am still not up
I am miserable still enough said about that
Hope everyone has a good day
MAS how's your mum ?
Topsy and Hnd any hangovers this morning ??
Gigs hope you had a nice day and meal

Morning all. Too much coffee here. Special hugs for all those who didn't sleep. Malt, have you anything to look forward today? Supposed to be sunny, so maybe that'll help.

MAS, did your mum's op go okay?? Expect you're visiting, but really hope she's okay.

End of treatment is really tough and you're so right kitkat, as not having the slog of treatment leaves reality room to flood in. When I was making the decision about preventative mastectomy, I had to see a psychiatrist as part of the consent process. She likened it to Post Traumatic Shock Syndrome, as at the time of the trauma you're hunkered down surviving, but once you're free is when it hits. I thought that was ott at the time, but with a bit of distance can see it makes sense. Does get easier as the years go on, but it's no surprise that I'm still on this thread 3 years on...

Anyway, sun's shining. Better get on. Am wondering how shoddy, Topsy and HND are feeling today.

Malt I am just painting random bits of furniture! Painting all my old pine stuff for a revamp. Sometimes wish I hadn't started. Met a friend for coffee just after eight, then mini snooze on sofa.

Sorry your miserable malt: I'm feeling a bit bleugh myself. Bit fed up of this so called 'journey' already.

Morning smee

waving to foofoo. You must be knackered. Can you find a good film to watch? Deflect the bleugh..

dad and T off to visit mum- am assuming all went well-dad will report back !
Am going to visit tomorrow as didn't want to have too many of us squashing around the bed...

I am not hungover !
Mainly because I ate soooo much food I think it soaked up all the booze

phew topsy !! all looked delish xxx