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*TAMOXIGANG* 43 *

993 replies

MaryAnnSingleton · 01/10/2013 08:24

New thread !!

OP posts:
MaryAnnSingleton · 14/10/2013 11:09

hugs too from me for topsy and loads of luck for surgery tomorrow hnd -really hope it's the very last one !

OP posts:
Lilymaid · 14/10/2013 11:09

Hi All - worst day of the cycle for me today (and probably for all the others who had chemo Thursday/Friday). I still have thinned eyebrows - but they look fine with a bit of eyebrow pencil. Eyelashes also thinner, but have decided to use eyeliner rather than mascara at the moment. Leg and arm hair definitely given up for the moment ... as has other body hair.
Finger nails are not good, can feel them (very strange) and have now painted vasted amounts of nail varnish on. Ends of toes also a bit numb. Just hoping that this will be my last chemo, or bits will start falling off me.
I'm drinking water like it is champagne. So looking forward to getting rid of the chemical taste and feel of everything.

kitkat1967 · 14/10/2013 11:26

Good luck for tomorrow HND - hope thi swil be your last Op. My DS will be 10 on 28th.

Hopefully you won't need any more chemo then Lily - you have done very well to hang onto all your nails for 6 Tax cycles so fingers crossed you're done now. When my eyelashes started to thin after FEC I used eyeliner rather than mascara and was quite happy with the result.

hugs for Topsy - glad to see that HND is keeping you well fed Smile

Smee - as my chemo was split and all my body hair grew back quickly in between I suspect I will carry on with leg hair at least - ironic isn't it. I'm hoping to also hang on to my eyebrows as they didn't go last time but we'll see.

smee · 14/10/2013 11:48

Lily, are you curled up somewhere warm. It still seems mean to me that you don't know if this is your last or not. When is it they'll tell you? I know you've said have forgotten.

kitkat, strangely losing eyebrows was the hardest for me. I could cope with the hair, but the eyebrows somehow got to me. I did get dead nifty with a pencil though. Really hope you hang onto yours. How annoying the leg hair stuck! Grin

reallyreallyworried · 14/10/2013 11:53

Thanks for all the supportive messages.

Will be glad when today is over. Heading off to hospital shortly. Will hopefully be back on later, to tell you all I worried over nothing!!!

Hope you all have a good day.

Xxxxx

Lilymaid · 14/10/2013 13:17

Smee - I'm languishing on the sofa with a woolly blanket to keep me warm. I'm slathering expensive hand cream on my hands hourly, but the chemo seems to suck it up and turn my hands into those of a 1000 year old reptile!
I see the Oncologist Friday week and the surgeon a fortnight after that ... really hoping I don't need further chemo, but will go with whatever is best for me. I'm not looking forward to further scans in particular the painful MRI scan (this time I shall ask to be drugged up a bit and made rather more comfortable).

smee · 14/10/2013 13:36

Thinking of you, Worried. Hope scans whizz by. Smile

Snuggly blanket sounds lovely, Lily. Have you tried E45 on your hands? Seem to remember that helped mine a lot. Didn't realise you have to have another MRI? How annoying!

Has the plumber arrived yet, MAS?

KurriKurri · 14/10/2013 13:49

Hi all - just dropping in to say hello and wish all those waiting fro treatment appointments etc good luck and love.

I may not be on the thread for a while - my husband has left me - I woke up to a letter on the doormat this morning saying he has run off with someone else abroad that he met on the internet - she sent him plane tickets for his birthday last week. So I am dumped after 31 years. I am utterly shocked and devastated - and can;t even think straight - but I will post when I can - I just need few days to get over the shock I think,

xx

handbagsatdawn · 14/10/2013 13:54

Really - I have everything crossed that you come back with good news.

HND - everything crossed for you too that this is your last surgery.

Lily - ergh to scaly lizard hands. No one warns you about that do they? Have yet to start chemo but will take note and stock up on E45.

Am currently sitting in Cafe Nero between scans. Had CT this morning - wow wee the dye going into my arm was agony!!! I actually yelped out in pain at that and I'm not a wimp. Have also had the radioactive shit pumped in and going back for bone scan shortly.

I have my next surgery on Thursday and apparently my consultant should have the results of these scans by then. I am so scared at the prospect I've been shaking today. Shaking now in fact. Maybe it's the coffee.

handbagsatdawn · 14/10/2013 13:56

KK oh my goodness, I'm so sorry. Xxxxxxxx

MaryAnnSingleton · 14/10/2013 14:01

kk enormous hugs and love to you xxxxxxxxxxxxxxxxxxxx

OP posts:
MaryAnnSingleton · 14/10/2013 14:04

hang on in there handbags- soon be done.
B Gas man been- was v nice and unblocked the drainy thing from the boiler that lets the condensed water out -all warm again ! lots of mess to clear up but as long as everything is working it's ok.

OP posts:
topsyturner · 14/10/2013 14:04

((((((((((((kk)))))))))))))
What an utter bastard .
I'm so , so very sorry xxxxx

smee · 14/10/2013 14:15

Kurri, words fail me, but (((((((huge hugs)))))) Want to help if I can xxx

Handbags, you're doing amazingly. I had my first ever panic attack on way to my bone scan. Astonishing how it hits you, but normal. Be better once you've got all the results in, I promise. x

Lilymaid · 14/10/2013 14:17

KK what a low, cowardly, scheming bastard. Sending (()) and advice to protect your finances before he or OW fleeces you.

BetsyBoop · 14/10/2013 14:30

reading but not posting today (tax bus) but...

malteserzz · 14/10/2013 14:36

Kurri I'm so sorry what a terrible thing to do and how cowardly to just leave you a note Hmm understand totally if you're not up to posting but look after yourself and I hope that you have some good real life support too x

weebarra · 14/10/2013 15:17

Kk, so sorry, what a coward. 31 years with a note?!
Totally understand if you don't want to be posting but hope you have some good rl support.

foofooyeah · 14/10/2013 15:46

KK sorry you are going through this but what a cowardly bastard. Look after yourself, that man is not worthy of you x x x

Marshy · 14/10/2013 15:49

kk, so sorry to hear your news - what a shock for you.

handbags - feel for you today. Hope it's all bearable.

HND - good luck for surgery

Fingers crossed that really is getting good news.

Smee - I love your posts - make me feel like there may be a way through this.

Hugs for all having tests, treatments or results, or just getting through!

My armpit is sore today. I'm such a wimp, and have loads worse than this to get through yet Sad

I'm trying to keep my panic at bay by doing normal stuff - it's just about working

LadyBeagleEyes · 14/10/2013 16:15

Wow KK what an utter shock for you.
An internet romance with her sending the tickets does not bode well for the future for him though.
What an utter cunt.

reallyreallyworried · 14/10/2013 16:17

KK I'm am so sorry to hear your news. Take care of yourself. Sending you a huge (((((((((( hug))))))))))))) Thanks xx

Just got back from my appointment. Feel a bit bad posting good news, after reading what others have had to deal with today.

But my bone scan was all clear and of the 21 nodes they removed only 3 more had cancer cells present. Surgeon was very pleased with how I have healed Smile don't see her again for 6 months.

Now I wait to see the Oncologist. I had a good chat with my BCN about Chemo and all the side effects etc. Obviously I have been following lots of you on your Chemo journeys. So nothing the BCN said surprised me. We discussed hair loss, and cooling caps. I'm really undecided on whether to try the cooling cap or not! She said it's something I could discuss in more detail with the chemo nurse. Any views on it greatly received.

Right now I plan a nice bath tonight, and some sleep!! I am beyond shattered. I started the day in a panic, and now I feel that I have finally completed the first step in my journey.

Thankyou for all the support. It was much needed and really appreciated.

Xxxx

HerNextDoorAt21 · 14/10/2013 16:35

OMG kk what an utter spineless bastard - I am really effing annoyed an disgusted to read this. Take special care but please do come and tell us how you are - also PM me if ever you want to on here or FB if you need to offload, I have very big shoulders to cry and a listening ear for rants too ..... utter utter BASTARD.

really that is great news, I am so pleased for you, the cancer lark really is a roller coaster ride

smee DS got a new bike with gears (very important apparently) and in true Asperger style, he wanted something weird and wonderful that most of my friends have never heard of ... a Pillsbury Doughboy toy - its a little white cuddly one. I had to order it from America ! He has also got a small inexpensive camcorder to do his "documentaries" in the woods behind our house with the 'haunted house' with his wee friends.

He had a party on Saturday - 15 kids at the bowling alley then mcdonalds .... it was mad ! There are photos of the cake I made on my FB page if you want to look.

Thanks for all your good wishes about my op tomorrow. I can confirm that topsy is alive and well, we went for lunch today (see a pattern here ????) - I last saw her getting on my son's bike in her living room as she is hiding it for me for tomorrow !

greeneyedcat · 14/10/2013 16:36

This reply has been deleted

Message withdrawn at poster's request.

malteserzz · 14/10/2013 16:36

Really that's great I'm so pleased for you Smile
I used the cold cap and I'm pleased I did, my hair has come out a lot and it's v thin now so I've been wearing a wig since my 2nd chemo but personally I feel better having a little hair than none. I don't find it too bad wearing the cap either, I take 2 paracetamol about half an hour before and yes it's cold but not unbearable. Everyone is different though, I wear a wig and others prefer scarves it depends what you are comfortable with Smile
Hope you get some sleep tonight !

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