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Hysterectomies - it's gotta be done but over here for hand holding

993 replies

Oddsocksrus · 30/09/2013 00:13

LetsFaceTheMusicAndDance
I guess I start..
My cervix is on the outside, it can't all hang where it should and no manner of pelvic floor exercises or devises will get it back there.
I'm 41, one fab dd and wanted more but there you are, can't now can I?

This thread, hopefully, will be for those waiting, recovering or supporting

OP posts:
spudmama · 29/10/2013 07:49

I found you last night but didn't get to post, the drugs kicked in and i fell asleep...

42 sub total hysterectomy and mesh thing done (will find correct name) all needed because nothing went back in place after my 2nd ds.
Feeling better than i thought but have not let up on the drugs yet, but was just wondering does anyone else have or had really bad stinging sensation along the cut/scar not all the time usually when i move?

LetsFaceTheMusicAndDance · 29/10/2013 09:21

Welcome spudmama How far post op are you?
Is it a horrible stinging burning ripping sensation especially wheen you try to turn over in bed or twist your body in any way?
If so - yes I had that. It was vile but it went about 2 weeks post op. It feelt as if it was inside behind the scar a bit. I googled and it's common.

I found it easier if I put my knees together, rolled onto my side and let my legs ease down to the floor while pushing up on my arms till I was sitting on the bed and could then stand up. Knees together while rolling over in bed helped too.

LetsFaceTheMusicAndDance · 29/10/2013 09:31

Cremola poke the fecker with the sharp end of your sickle. Grin

Cremolafoam · 29/10/2013 11:18

Rescheduled to today. Have sickle in handbag . GrrrAngry

OvercomeByGravity · 29/10/2013 11:51

This reply has been deleted

This has been deleted by MNHQ for personal reasons.

spudmama · 29/10/2013 11:56

letsface had the op last Tuesday and yes you have described it better than me., glad to know thats normal. I don't want to be at the docs every 5 mins with each twinge.
As the weather has selltled i am off outside for a walk and see how that goes.

LetsFaceTheMusicAndDance · 29/10/2013 13:01

Just had a massive row with DH who thinks it's ok to leave me at home with the kids during half term with nothing sorted for them to do and the older one has 1001 A level things to do and has all the focus/time management/organisational problems that can come with Asperger's.

I did tell him last night that I needed him to step up with this. Water off a duck's back.

So it seems I must be better ladies Hmm

I am absolutely raging.

fledtoscotland · 29/10/2013 16:06

Afternoon all. Nerves reaching new heights now. GP given me diazepam but starting a set of night shifts tonight so can't take them :( Will add lack of sleep into the mix.

Plus side- sainsburys have 25% off clothes this week so going to head for a post-nightshift splurge on Friday after school run Smile

Cremolafoam · 29/10/2013 16:31

Lftmad I am FURIOUS at your dh on your behalf. I have an A leveller here too btw. Put him on here and I'll have words . .... I really will.

Fled I am so so sorry that you are feeling so apprehensive. It will all be over soon. Looking back most of it is a blurr. You will be fine , pet I know it.

Occ health Doc was lovely, helpful and recommended to HR that I'm to stay off work for at least another 6 weeks. Phew, no compass needed.

LetsFaceTheMusicAndDance · 29/10/2013 17:43

Cremola I have already had words, don't worry. Loud and angry words.
And my DSis has offered to have DS3 (12) overnight and all day tomorrow. So when DH got in and saw me sitting by the table helping DS2 - where I have been most of the day - and asked if I wanted to come down and say hi to DSis, that was it. So how the buggery fuck am I supposed to do a 1 hour car journey, say hi to DSis - ie stop and chat AND help DS2, who has to do a shedload of fiddly work because his stuff has been called in for moderation, I really don't know. Oh yes - and recouperate at the same tiime.

GRRRRRRRRRRRRRRRR.

And breathe....

So glad you are signed off for a decent amount of time. That must be a worry off your mind.

fled I'm so sorry you are fealing the fear big time. Would it help to say what your worries are and see if we can help? The fear is awful if it gets hold of you Sad

Cremolafoam · 29/10/2013 18:05

SadAngryWineThanks Lftmad

fledtoscotland · 29/10/2013 19:09

Cremo -glad occ health were helpful.

Letsface - I've got a surgical nursing background so am well aware of the brutality of surgery. I'm also horribly aware of the complications. I am a naturally anxious person but this is testing me.

Screamed at the DC tonight who were messing round at tea (Tuesdays always a rush with anchor boys & beavers) but with anxiety /nightshifts and fancy dress face painting I was pushed over the edge & flipped. Now feeling guilty Blush

LetsFaceTheMusicAndDance · 29/10/2013 19:27

Oh dear fled that means you don't have the comfort of thinking well they know what they're doing and it'll be fine then. Sad

I will say that my body didn't feel that it had been treated brutally if that's any help at all to you. Thanks

About the kids - okay, it wasn't brilliant but you're only human after all. A big cuddle, an explanation and an apology used to be helpful for mine if I'd gone off on one - even when they were very small.

Waitingaround · 29/10/2013 19:35

Fled it's perfectly normal to be anxious especially if you know about theatre procedures via work. I was a complete mess for about 4 weeks prior to my surgery but I feel so much better now! Your family will understand and soon all your anxiety and bad moods will be in the past.

Oddsocksrus · 29/10/2013 20:43

Hello all
shewhowines and everyone Thanks
I am indeed still waiting.. And waiting... Grrrr
I've been absent as I've just had a little time head in the sand time tbh

I finally had the pre op stuff today - bloods, wee, swabs, routine, leaflets.

I will have the op sometime in the next four weeks, they have found a rectocele and a cystocele that they will repair at the same time as the falling out vag.

Was anyone else given the two 200ml bottles of high carb drink to have before 6am the day of their surgery? It's to combat dehydration and speed up recovery apparently???

I've had a real wobble on how to manage home and recovery. Dd is only 3, my parents were absent when I was incapacitated after having her and it looks like it's of that way this time too. They are going to do the nursery run which is great but dh has to drop her there on his way to work at 7am, such an early start poor little love. We are going to be stuck in a slightly pa situation with my dm who will object to friends doing the school run but it won't be particularly easy doing it her way.... And there will be the usual uncomfortable conversation about my ability as a parent as they have to deal with the melt down of an over tired small person...
Meanwhile I will be at home, on my own all day ( sorry, feeling very self pitying tonight, I have just been crying for hours)
There is only so much dh can do. We are both self employed with relatively new businesses so we can't afford for us both to stop.
Fingers crossed for a swift recovery. Eh?
I'm taking my self pity off into a bottle

OP posts:
LetsFaceTheMusicAndDance · 29/10/2013 22:02

Hey Oddsocks lovely to see you.

The drinks are a Rapid Recovery programme I think. I've heard of it before.

Would there be any chance of getting round your mum by saying anyone can do the school run for you but you really need her to do xyz like clean the bathroom, get the tea etc - things you couldn't ask 'just' a friend to do?

Sad about being on your own though. That's going to take some planning for but it'll be do-able. Thanks

shewhowines · 29/10/2013 22:07

Welcome spud one week on, it's all still raw and not nice. Give it another week and you'll be skipping everywhere well more like fast h .

I'll have a virtual Wine with you odd . Glad to know you are still around and we haven't frightened you off too much. I had 6 bottles of the drink, 4 the night before, and two the morning of the surgery. It sounds as if spud had things hanging out like you, too.

Fled we've been moaning about all the not nice bits. It sounds as if we are constantly in a bad way. Most of the time it's fine, honestly. I can understand the anxiety though. We've all been in your shoes (and odds ) . You will soon be looking back like we are.
I've really appreciated having this thread to moan on.. You guys understand more than people in rl, because you are all living it, like I am.

At least we don't have to waste our money on fake scars on Thursday. Would love to see the Halloween makeovers.

Don't do too much letsface. Sort ds out and sod the rest. Do you actually have to sit at the table though?

odd someone will need to be with you for the first couple of days, at least, out of hospital. Have you got someone sorted for that?
It will be hard with a three year old, but you'll have to let your parents get on with it and not worry. Ignore everything that grates. It too, shall pass.
So what if standards slip for a few weeks. Get batch cooking and buy in some ready meals. A few unironed clothes? So what? A messy house? You are more important. You will manage, and the op and recovery won't be as bad as your imagination is thinking it will be. Be positive and think how much better it will be afterwards.

LetsFaceTheMusicAndDance · 29/10/2013 22:47

Shock She I thought you'd hit the vino a bit hard till I twigged you meant bottles of the recovery drink and not Wine.Grin

spudmama · 29/10/2013 22:56

Yesshewhowines all sorts hanging out but not anymore..
odd i was really worried about comming home and trying to make dh realise i couldn't do anything he would have to take care of ds 7 and ds 1 had his 1st birthday 2 days before op. The house is a mess but everyone is fed and watered i have been on my own most of the time since being out of hospital but i have been fine, can make a sarni and switch on telly not needing much more.
I had those drinks, enhanched recovery it was called....i.e get you out of bed and home asap
fled i only had 2 weeks notice of surgery date and spent those shting it. But now on the otherside things are sooo much better even like shewhowines* says we seem to be moaning its not all that bad.

shewhowines · 29/10/2013 23:01

I like a nice cheeky red, but 6 bottles Shock I am still recovering you know...

thekingfisher · 30/10/2013 08:32

I perhaps need to start a new thread but had a consultants appt yesterday and have finally decided to have a hysterectomy and is now scheduled for 27 th November.

History is heavy periods getting worse, tried loads of things had the coil which was a bit of a duck up and had to have it removed and replaced under ga. Finally has it removed after a year of really irritating and life annoying side effects - loads I unpredictable bleeding, when not bleeding discharge like a period but less nice iykwim. Hair falling out.... Etc
Then 10 days ago had a huge fibroid haemorrhage whilst away in Paris with dh and ds10 blue lights, emergency surgery and blood transfusion has finally done for me. They did do a uterine arterial embolosation who has a reasonable chance of improving things for me but frankly I've had enough. Additionally I have had chronic urinary urgency issues which I've had Botox for on my bladder under ha which just means I'm fed up of my lady bits messing me around.

So... Tell me all I need to know. I'm hugely challenged as I feel like on asking for this when I could just wait and see with this treatment but knowing my luck it won't work for very long and I'll end up in emergency surgery agin or needing hyster anyway.

So given I'm still recovering from my traumas last week what preps do I need to do what should I buy ( lying in bed googling stuff) so far thinking very nice pj's a v pillow, peppermint stuff, arnica, what else what else oh and thin I'm having uterus and cervix out leaving ovaries if they are ok which we have no reason to doubt ATM.

LetsFaceTheMusicAndDance · 30/10/2013 08:41

Oh you poor thing that sounds horrific. I had no idea that sort of stuff could happen Thanks

Ok - preparation. You'll have a catheter so cheap nightdress/nightshirt might be best for hospital and save your gorgeous pjs for home when you recover.

Get massive pants that come up to your waist and are at least a size bigger than you usually wear because your tummy will be sore and swell.

Ditto tracky bottoms for when you come out of hospital.

thekingfisher · 30/10/2013 09:41

Thanks for that - I have a pair of Gap Body yoga pants with a really comfy Biiiiig waistband so may invest in another pair of those.
I had an em C-sec with DS so guess the wound pain, coughing, sneezing getting into out of bed stuff will be similar…

LetsFaceTheMusicAndDance · 30/10/2013 10:09

Yes I think so but haven't had a c section. The internal gubbins is a LOT more complicated though so expect a much longer recovery time. There's a link I posted upthread to a site where women who have had both ops compare the recovery times.

LetsFaceTheMusicAndDance · 30/10/2013 10:11

One tip from my own experience is to make sure they give you proper pain relief to come home with even if you seem ok. Don't be fobbed off with paracetamol and ibuprofen

Smile