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Tamoxifen bus shelter -42

990 replies

Gigondas · 09/09/2013 22:00

Dragging trolley onto new thread.

OP posts:
Gigondas · 22/09/2013 07:42

Morning all- definite need for Brew today. I am happy to lobs mini gig as company for anyone with steroid insomnia as company. How she can be so perky when she was awake for a couple of hours, went to sleep at 2 then up at 6, is beyond me...

Malt - I would just be alert to side effects and ask for help if needed but you may be fine.

Can't see today being super active after mini gigs attempts to break her parents.

OP posts:
malteserzz · 22/09/2013 08:36

Thanks Betsy, hope it just stays at achy knees for you this time
Gigs you must be exhausted Hmm does she sleep in the day ? Hope you can get some rest today

stantonherzlinger · 22/09/2013 09:02

This reply has been deleted

Message deleted by Mumsnet for breaking our Talk Guidelines. Replies may also be deleted.

Gigondas · 22/09/2013 09:11

Is it spam for breakfast? Hmm Have reported .

OP posts:
MaryAnnSingleton · 22/09/2013 09:46

oh,what was that gig ?

Gigondas · 22/09/2013 10:08

Someone posted some spam sbout earning thousands going homeworking.

OP posts:
reallyreallyworried · 22/09/2013 10:34

Morning all

Think I need a kick up the backside Sad I just can't snap out of this feeling sorry for myself mood, at the moment. I just can't get my head round all this. I was diagnosed at the beginning of August and I just don't feel I am any further on in dealing with this Sad

I was supposed to be going on holiday to Florida at the beginning of October, which I cancelled. I now can't see what there is to look forward to. I think still not knowing what treatment lies ahead, isn't helping. All I know for sure is that I will be having surgery sometime in the next few weeks! But even that I don't have a date for.

I am so used to being in control of my life, and suddenly I feel that that control has been taken from me. I know alot of you have said that once I have a treatment plan, I will feel more in control. I hope you're right. Because I am really fed up of feeling like this. I just want to cry Sad

Friends have been so sweet and supportive. But I swear if one more person tells me that 'breast cancer treatment has come along way, it's so easily treated these day's' I'll scream!! Obviously I am pleased that it is treatable, but at the same time. It's not exactly a pleasant process. Sorry I can't be happy about the diagnosis just because it's 'easily' treated.

Right I will shut up now. I could go on moaning for hours! But none of you really need to hear this. I do appreciate that you have all been through far more than I have. Like I said I just need a kick! I hate feeling like this! Need to go a hunt down my positive attitude, it must be somewhere!

Hope everyone else is having a better weekend. Xxxx

PictureThis · 22/09/2013 10:41

Aagghhhh. Am I being bloody tested?? This fortnight has to be fairly 'up there' in terms of stress levels. First the portacath fiasco, then chemo leak, (boob is only just getting better), forgot to take my neulasta, only remembered last night, and finally my poor DD broke her arm near her elbow last night so is in a full arm cast!!! Sorry for the rant and run, hello to everybody,

Downton tonight MaltSmile

DonnaGriffo · 22/09/2013 10:44

Didn't know how to do this so here goes and sorry if I'm posting wrong!
Hi mums! I'm new on here and needed neutral ears! I discovered a bruising and swelling in armpit. Went to GP who also noticed thickening in breast. He thinks it's nodular? However since then a dent has appeared and a lump in neck? Anyone had similar? A off to breast clinic Wednesday at 7pm but feel I'm cracking up....

GoodbyeRubyTuesday · 22/09/2013 10:48

A very belated hello and welcome greeneyedcat I'm sorry you've had to join us. I'm the one with bowel cancer who talks about bum things on the thread BlushBlush so I can understand some of the horribleness of that type of cancer. I have always been very prudish so I've found it really hard to come to terms with having to talk about that stuff, I still hate it but I've accepted that I need to talk about it to get the help I need to manage side effects.

Was the support course you did the Macmillan HOPE course? I did that and found it quite interesting :) I hope the doctors can get on top of your HRT side effects soon.

trice grr at cold, I hope it is gone soon! The workshop sounds fun and good you're getting lots of knitting done. Rat costume sounds fun! I am making (hopefully) a Little Hug, I'm crocheting it all in one piece as I get bored sewing things together Blush I haven't really crocheted anything before but it's quite relaxing.

Sorry for being AWOL, I've been feeling pretty grim, which I now know is the anaemia. For weeks I thought I was being lazy as haven't had the energy to do much and been getting out of breath lots, I can't even climb the stairs without feeling faint. Am on iron tablets so should be feeling better soon :)

gigs I hope mini calms down a bit so you can have a restful day! She sounds adorable but hard work :)

malt so pleased you've been getting out lots and having fun while on chemo :) fingers crossed the tax goes well too.

Waving to everyone, have a good day, I'd better get up as going shopping x

Marshy · 22/09/2013 10:49

really big hug for you. It is awful not feeling in control and waiting around not knowing what's going on. Friends mean well, but actually I dread telling people because of having to deal with their reactions and comments although everyone has been really kind.
Do you have a breast care nurse that you can speak to? I'm very early on in all of this so not talking from much experience but have found that she is the most accessible person I've come across so far and very approachable so I don't mind asking stupid questions or voicing my fears to her.
Do you have someone to go to appointments with you? You've mentioned your mum I think. Can you spend some time with her? It sounds as if you could do with some rl hand holding and TLC.
It must be such a disappointment about your cancelled holiday. My BCN said to me that I will come through this. You will too and then that fab holiday will be waiting for you.
Sending comfort to you.

malteserzz · 22/09/2013 10:51

Picture your poor dd hope she's not in pain Hmm I've got to record downton ! They were talking about it on gmtv the other day and talking about Matthew dying and I realised I've not seen the Christmas special as it wasn't in my box set, so have ordered it from amazon and will watch that when it comes then the new series !

Really it is hard, we all understand how you feel. I've had to cancel 2 holidays it's crap Hmm this is a cliche but don't try and look too far forwards, I tend to think of what I'm doing each week now rather than worrying about the future. You honestly will feel better when you know what's happening as at least then you feel like you're doing something about it.

PictureThis · 22/09/2013 10:51

Really I could have written that. We too had to cancel our holiday to Florida in October and I was absolutely gutted, we'd been planning it for months. I've just rebooked for next year and we're going for a month so I'm busying myself with the planning again. It also works as a great distraction. Feeling sorry for yourself? Well that's part of the process, we all have periods of feeling down, it will pass. Annoying sayings? 'You're so positive!' What's the alternative? Plan my funeral!!

Just remember, you're not on your own, we are here to support each other so moan away xx

malteserzz · 22/09/2013 10:54

Cross posted with lots of people !
Ruby enjoy the shopping Smile
Donna you are very welcome, I know they always say go to the gp with symptoms like that so you've done the right thing. We will hold your hand while you wait x

DonnaGriffo · 22/09/2013 10:56

Thank you! Sorry for posting mid post! I'm new and was advised to join your thread x

foofooyeah · 22/09/2013 11:50

Welcome to Donna . . . The early days are the worst IMO. I try very hard not to worry until I know I have something to worry about. Denial is my friend.

I have tried to tell as few people as poss as I just end up reassuring them.

Picture: your poor DD. hope she is not in too much pain.

Ruby: keep taking the tablets and plenty of dark green veg and some good quality red meat (if your not vegetarian that s)

DonnaGriffo · 22/09/2013 12:15

Need help with all these abbreviations!!!

Sometimesiwonder · 22/09/2013 12:51

Dd is daughter - (also DH - husband etc)

IMO - in my opinion

BCN - breast care nurse

Welcome Donna x Sad Smile

topsyturner · 22/09/2013 12:52

Morning All

Welcome Donna , ask any questions you want (including abbreviations !)

Eek to broken arms , I did the same thing at the age of 10 . (Rather enjoyed the attention though Grin )

Hugs going out to all those having bad weekends , and all those with tests on Monday .

greeneyedcat · 22/09/2013 13:08

This reply has been deleted

Message withdrawn at poster's request.

MaryAnnSingleton · 22/09/2013 14:03

welcome donna - the waiting and not knowing is always the worst bit I think...we'll keep you company and hold your hand.
Poor dd picture Sad
ruby did you try some Guinness ?
Hugs for really -it's a horrid limbo thing,but once things get going you'll feel better- promise.
Am hoping that meditation finishes on time this evening so that I can whizz home for Downton Grin

BetsyBoop · 22/09/2013 15:17

welcome donna the waiting is horrid, stay here and we will wait with you and pass Cake and Brew

really I agree with MAS (and she said the very same thing to me!) Be kind to yourself, don't beat yourself up, there is no "right" or "wrong" way to feel. Hang in there and vent on here all you like, we understand :)

ouch picture your poor DD :(

ruby - no wonder you are feeling wiped out with Hb that low, lots of iron-rich food for you my gal ! I think it's oranges/orange juice to help absorption too? (DH was my personal iron-rich diet chef when I was very anaemic after DS was born, the midwife was mega impressed with him!)

reallyreallyworried · 22/09/2013 16:25

Thanks ladies. I REALLY needed to hear all those positive words! You made me cry. But tears of relief, relief that I am 'normal' and more importantly that things WILL get better!

I do have an appointed BCN sadly she was away this week. But I will definitely arrange to see her in the next day or so! I really need to get a better understanding of what lies ahead! I'm not sure how much she can tell me, but she must have some sort of idea about what lies ahead. I'd also quite like an idea of when the surgery might be! At least then I will feel I am going in the right direction.

I think my real struggle is wandering what lies ahead, and being here alone with 'google' hasn't been a good thing! I have given myself a good telling off for being so silly. I know now that IF I need answers to any questions I need to ask the experts! Both medical experts and all of you Grin

I am feeling a bit more relaxed about the scan tomorrow. Will be glad just to get it over and done with.

Big Thankyou for all the support Thanks xxxxx

MomOfTwoGirls2 · 22/09/2013 17:16

malt yes, I'm on Facebook, and I've love to see photos of you all in your wigs. How do I access it?

really I hope you are feeling ok again now. Keeping busy helps me put it out of my mind. The scary thoughts can creep up on me at strangest of times. I'm trying to arrange at least one nice thing/treat for myself each week. Somebody up thread suggested that. I like having my planned treat to look forward to.

I am recovering from a great night out with my sisters. We went to a fun fundraiser, where we knew loads of people and really enjoyed ourselves. I didn't get to bed until 3:30am. Can't remember when I last stayed out this late! Am wrecked today.

Ive no medical apps for the coming week. That is something to look forward to! But I've got dentist appt for an overdue filling. No particularly looking forward to that...

malteserzz · 22/09/2013 17:28

Mom of 2 I will send you a message

Ds distraught here , Man U are losing 4 nil don't get it myself it's only a game !