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Tamoxifen bus shelter -42

990 replies

Gigondas · 09/09/2013 22:00

Dragging trolley onto new thread.

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malteserzz · 21/09/2013 08:31

Thanks got letting me know Kitkat that is quick ! Are you still sure you're not going to use the cold cap again ? Mind you at least you know it will grow back again quickly
I bought some fast shampoo for when mine starts growing back to try and help. Not lost any more for a bit but I only have a very thin covering now, better than nothing though I suppose

Went back to sleep till 8 now must get up and get some breakfast don't think mr malt is cooking any like mr gigs !

Gigondas · 21/09/2013 08:36

Ohh what's fast shampoo malt? by 6 weeks I was going out without wig as had gi Jane style buzz cut look. But I like my hair short tho.

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malteserzz · 21/09/2013 09:02

It is literally called fast shampoo it's meant to make your hair grow twice as fast. I got mine from amazon. Your hair really suits you short gigs but I've got a fat face and need something to cover it !

MaryAnnSingleton · 21/09/2013 09:48

good morning - welcome greeneyed & so sorry you've been through such an awful time.
Good luck with scan on Monday really - always an anxious time- the whole thing is unnerving.
How are you feeling today ruby ?

I feel better for my swim yesterday-it helped that the pool was gloriously practically empty,so no trying to fit in with the lane discipline- a lane to myself ! Swam 50 lengths in calmness.

reallyreallyworried · 21/09/2013 11:10

Thanks Gigs and MAS nice to know I am not alone. Feeling a bit low at the moment. Getting back to work was great for taking my mind off things. But weekends give me so much time to think. This is my first weekend away from my family, since diagnosis!! It's weird!

Off to meet a friend shortly. Then a quiet night in with Pizza and X factor!

I'm not sure how many of you, if any had lymph node surgery. But if you did. Can I ask what the recovery time was like, compared to previous surgery. Also how did you cope with the drain? I didn't need a drain in my previous surgery, but this time round I will have one!

Sorry to ask such pathetic questions, just trying to slowly get my head around, what lies ahead.

Hope everyone has a good day. Xxx

smee · 21/09/2013 12:12

Malt, my hair grew back lots on Tax, though used the cold cap to the end of chemo. Had some long strands left, then bumfluff coming through. Thank gawd for headscarves.. Hmm

Worried scans were most definitely the worst for me. Had my first ever panic attack on the bus on the way to the bone scan. Was clear. Usually is according to the technician I saw. You won't rest until you know, but be scared with us. We all get it. xx On the nodes, I had mine taken same time as mastectomy. Biggest thing is to do the exercises. If you don't you can get restricted movement. If you do them it's fine. The strangest thing is the lingering change in sensation as they have to cut some nerves. Never fully goes, and of course you get used to it but it's a constant reminder which is annoying. Hmm

Waving hello to Greeneyed. A lovely friend of mine had anal cancer in 2009. She's doing really well now, but the after affects of treatment from the radiation were quite something I know. Hope you don't need another op, sounds like you've been through enough.

MAS, 50 lengths?! Shock I do 20-30 at most.

Having a lazy weekend here, but the dust and debris of the week's calling. Wishing you all a lovely time. Smile

Shootingatpigeons · 21/09/2013 12:59

Gosh, the graveyard shift was busy this morning. I would have joined in but I had just got to sleep! Thankfully no cats in bedroom and little pigeons unlikely to be seen before 3pm! Last night had indigestion to add to mix, late ish curry on top of yoga not such a good idea. These iPads are a pest, it just tried to substitute lavish for lateish or perhaps it knows how much I eat there have been some good ones on here recently, perhaps they are getting cheeky. Anyone switched to new operating system, DH desperate to switch mine (in amongst all his man pies, man searching and man ravaging pruning, he actually is the antidote to my IT phobia) but I was worried by gigs and topsy and I am scared of change )

green I have read about the difficulties faced by those with anal cancer because it shares a similar stigma to bowel cancer but is so rare, but you are very welcome here. ruby had bowel cancer and we have no problem with bum talk , and we certainly don't think the pink ribbons should get all the attention. I am afraid ruby has already claimed the brown ribbons but I am sure we can come up with some ribbons for you Wink I had cervical cancer twenty years ago but fortunately it was still in situ, they didn't test for HPV but it was more than likely. It is incredibly common and the last I read they still didn't understand why it progresses to Cancer in some of us and not in others.

Am Angry at GP, downright ignorant, menopause may have no symptoms for two thirds of women but causes very real problems for the other third, and especially if you are thrown into a very rapid menopause by chemo. They should have to wake up every hour or so in bed at night with pjs and all bedding wet through. There was a piece in tamoxifen on Woman's hour recently which made it clear that Oncs take those symptoms very seriously indeed and there are things they can do other than HRT (which is obviously off limits for those of us with hormonal cancers) I would certainly ask your clinical team, do you have a BCN equivalent? I hope that the HPV test is negative.

really I had my lymph nodes removed at the same time as the mastectomy so it is hard to distinguish the recovery but the drains came out after 3days. They are not the most attractive fashion accessory, I am very squeamish but I coped with emptying them etc. it doesn't hurt when they take them out. I did have a problem with seroma under my arm, the liquid that develops under the skin before it knits with the underlying flesh (like in a blister) which I had to have drained but I think that was because I did too much too soon, and under your arm is vulnerable. Follow the advice and take it easy. Practically all the feeling is back now, apart from a thin area across the back and down my arm.

Exciting day shredding The small forest DH ravaged.

Shootingatpigeons · 21/09/2013 13:04

Mas very impressed by your swimming and technical know how. When I used to compete we used to get all that info but poor coach on side had to count and then shout at you

kitkat1967 · 21/09/2013 13:24

Malt - if I do get a weekly chemo then am def not doing cold cap as that would not be practical but if I end up on 3 weekly cycle again I am getting tempted......... (even though I hated it).

On the other hand at least I know how quickly it will come back when treatment stops. My 'new' hair is soft and dead straight - a sort of spikey baby duck style - it's odd mixed up with the original hair but at least my scalp is not on show.

kitkat1967 · 21/09/2013 13:27

At one of my chemo sessions I was chatting to a lady who had completed 2 rounds of chemo (she had one lot and a hysterectomy and they found the cancer was back at 4 month check up) and she said her hair came back comploetely differently each time - how wierd is that.

Mind you she also had some sort of chemo that meant her eyebrows never grew back - was very funny as my chemo nurse was stood behind her mouthing to me that I would never be getting that chemo so not to panic (she obvioulsy read my mind!!).

MaryAnnSingleton · 21/09/2013 13:43

arf ! I don't really understand the technical bits of swimming but I think it means I'm improving.
Will think of a ribbon for green. ruby has certainly given us much insight into her cancer as I hadn't really much knowledge - I know people are squeamish about bottoms (I am terribly -and all lady parts) but it should be talked about. I remember one of my SILs waiting until her dh was out of earshot before saying something about my bc,as if it was a bit shameful and embarrassing and only for ladies ears.
By the way, what shall we do about pink shit this october- I kind of quail at the thought - I do have quite mixed feelings-more so as I've travelled on my 'journey' Grin

Shootingatpigeons · 21/09/2013 14:01

MAS I am seriously thinking about going boobless for the month, get sponsored and blog the reactions. Every year the pink shit drives me up the wall and it would just be a way to inject some reality into it. Only problem is that it may be the wrong year to do it, as coping with DH coping with the changes in his life and Little pigeons has a lot on her plate at the moment but still haven't given up on the idea......

Gigondas · 21/09/2013 14:03

Dunno mas but it's very prevalent in the collection tins at cash desks eyc - we haven't even got into the mr cancer hell stories that pigeons loves so much( the only thing those stories show is which particular celeb is very desperate at moment).

Mas- have bunch of Paris photos which have owed you for ages and will try to send.

Pigeons- new system is ok when get used to it. There are certain things that are easier - like swiping to get certain key functions.

Enjoying cake in peace while minis are at playground.

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Gigondas · 21/09/2013 14:05

Etc, my not mr- new system doesn't help my typos.

Talking of silly things to distract, there is a brilliant PTA hell story in chat -think it's called anyone remember madamtwatkins thread. I know ruby has seen it but it is very funny.

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MaryAnnSingleton · 21/09/2013 14:27

gig was thinking maybe name pictures with little vignettes of Parisian things with what they are in French written by them..that probably sounds rubbish-will do roughs to show you first..am needing to do a picture for a man in Denmark first.

malteserzz · 21/09/2013 14:55

Am quite reassured that smees hair started growing back on tax and by how quickly Kitkats is growing back. Think I've lost a few eyebrow hairs and under eye lashes but nothing that's noticeable yet
Just been shopping with dd, ended up buying her more than for myself as usual but did get a nice big cosy cardi Smile

malteserzz · 21/09/2013 15:10

I sound like Pauline fowler being excited about a cardi !
Couldn't find that thread ?

Gigondas · 21/09/2013 15:46

I have just bought a throw to use on sofa so we are clearly old dears. It will be a slanket next.

Mas that sounds great-big gig learning French do perfect. No rush on the pics .

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BetsyBoop · 21/09/2013 16:06

oh dear, I bought a slanket last winter (sick of DH sitting in a t-shirt saying he was too hot and I was freezing in 5 layers) - there is no hope for me Grin

tis very niceand warm though Grin

KurriKurri · 21/09/2013 16:14

Afternoon all - trying to catch up with all your posts - you've been busy!

I've just got back from a shopping spree (have recently inherited a bit of money so thought I'd treat myself) I bought a kitchen table and chairs from a local antiquey/fleamarkety/junk shoppy place. Its a bg solid pine affair and will look nice in my kitchen (I hope - chap is delivering it this evening so we shall see) my old table is (excuse the pun) on its last legs, and so wobbly that the food is in danger of flying off round the room! And I worked out yesterday that we have had our chairs over 30 yrs - DH and I bought them when we were first married.

I have also bought myself two pairs of M and S PJ's, (and some pants and bras - but thats not very exciting), and some new secateurs, and a garlic press. I am feeling slightly guilty as am usually very thrifty, but I also enjoyed spending some of the money!

My feet feel very hot and swollen from traipsing round - does anyone else get swollen ankles for tamoxifen (that's what My GP says causes it - its a S/E apparently. My legs get very achy - I'll have to put them up this evening while I watch x-factor and do my tapestry.

It is sort of hot but gloomy here - not very pleasant, hope everyone is having a good weekend, - DD went to see the new Richard Curtis film - but she wasn't very impressed (her friend enjoyed it though).
malt - I like the sound of your cardigan

BetsyBoop · 21/09/2013 16:26

Good for you spoiling yourself KK - no harm in that once in a while, so don't feel guilty!

oh and talking of pink October, I'm dreading to think what my dear cousin will come up with. Barely a few days goes by without her posting some "for those fighting cancer and those who've lost the battle" picture on facebook, with a "thinking of you cuz" message. I know she's trying to be supportive but it's starting to grate... and I definitely don't do pink, ever (struggling to think if I actually own any pink clothing, think I might have a t-shirt with a pink logo on it somewhere Grin

On the hair front, everything has thinned lots, but I seem to have kept about 10-15% of my hair all over - it's not growing but showing no signs of falling out either - obviously the chemo-resistant tough stuff!

(Please excuse my post-chemo, steroid-clogged brain, I know I'm jumping about everywhere, hopefully some if it makes sense Grin)

MomOfTwoGirls2 · 21/09/2013 17:13

I don't start chemo for another 2-3 weeks. So I went and got my hair done: cut, color, blow-dried, the whole shabang.. I'm meeting up with lots of people next two weeks, so thought why not...

Going wig shopping Tuesday, so I hope to still be having a good hair day by then!

malteserzz · 21/09/2013 17:16

I do have a onesie hardly wear it as its too warm but I don't have a slanket... yet !
Kurri good on you, your purchases sound great
Betsy don't worry you are making sense ! I get sick of all those Facebook posts too however well meaning, can't move without the McMillan coffee mornings being advertised either
Looking forward to my curry tonight not sure what to have I normally have a balti in memory of uni days in Birmingham when we used to eat them at 3am after clubbing those were the days !

malteserzz · 21/09/2013 17:21

Cross posted mom of 2 good for you bet it looks lovely ! Tell your friends you will meet up with them during chemo too they might just have to be flexible so you can go out on your good days. Just counted up I've been out for lunch or dinner 7 times this week ! Sometimes just a sandwich and a coffee but still it shows you can still get out and about on chemo !
Are you on Facebook ? Thought you might like to see pics of some of us in our wigs if you are Grin

Gigondas · 21/09/2013 17:33

Oh kurri that sounds great- good for you for splashing out. Will we get FB pics of table? Will put up pics of curtains mr gig put up earlier as he is very proud.

I am in no position to criticise anotr slanket as borrow the kids one plus have several onesies and lots of blankets. And have been doing cross stitch all afternoon.

It's definitely wine time tonight - anti biotics or not.

Momof2 - great attitude about hair And it does come back.

Betsy those FB comments would annoy me too. Malt the Macmillan coffee morning boils my piss ( unfair as I think they do good work) as get sick of seeing it.

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