Tamoxifen bus shelter -42

[Gigondas]

Dragging trolley onto new thread.

Greeneyed, emotional rollercoaster, isn't it. We'll be here.
The odd thing for me was having an operation for womb stuff just before I was diagnosed with breast cancer. So I never had a chance to grieve for the loss of fertility and womanhood before I was plunged into the world of this lot. Don't know that I've ever even said that before
Not that this helps you in any way, shape or form, of course. But I think I'm trying to say that there are people here who understand a fraction of what you're going through...and are listening...

Hi Greeneyedcat, you sound as though you are having a tough time. Welcome to the thread. We will all hold your hand. Waiting for results is very stressful and getting used to living with missing bits and scars and bits that have been broken is hard.

Ruby, have you checked your neck for puncture wounds? Is a nice eastern European chap in a cloak showing special interest in you? I'm sorry you are feeling crook, hope you are sorted swiftly.

Marshy, good news. Hurray.

at 'menopause is not an illness' - no it isn't but it can make you feel absolutely lousy! I hated hot flushes - made me feel so panicky.
It is difficult when people are telling you different things, and I don't really know the answer to it, I think you are quite within your rights to question them and say 'I am being given differing opinions, how do I make the choices that are right for me, when there is disagreement between different specialists' (Or words to that effect )

I think its the bits you don't anticipate being 'broken' that can be difficult, because you can't really prepare for them, stuff you know about, even though often ghastly, is at least not such a surprise!

Do you have any cancer support centres near you? - I have found them helpful, - both for talking things through, and also they often offer things like relaxation techniques/massage and other complementary stuff which can be nice if you are feeling a bit low.

yes I can understand that fear, - nothing's ever easy with this cancer malarky is it? I think all you can do is gather as much info as you can to help you make your choice.

I'm glad you've got a helpful support centre near you, it is so scary and bewildering, so anything that can make life little easier has got to be a good thing.

Wishing everyone a nice relaxing weekend, I'm going into town to fight with the bank, then a bit of shopping to recover!

Welcome green but sorry you find yourself here iykwim

I forgot to mention about flu jab as GPs asked me to find out onc preference when I had my blood taken on Wed. Onc said two weeks + after my last chemo on 10/10 for best immune response ( safe to give suing chemo as not live virus but immune response won't be so good) ideally need to have it by mid-end Nov as main flu season starts in Dec.

That would be good if you dont need rads kitkat :)

to everyone else, feeling very sleepy so off to bed ad hopefully a better sleep tonight if the steroids will let me!

Thankyou Marshy I appreciate that. I know I won't get results on Monday, but it doesn't stop me being worried and hoping that when I do get the results it might be my turn for some good news.

Glad your day turned out to be better than you had expected. Hope you have a lovely weekend xx.

really - loads of good vibes for your scans and results, -we'll all be thinking of you xx

really sorry I missed the bit about your scan on Mon. What scan is it? I find the scans the most scary bit, and was so relieved when they were all clear. ( Had bone scan, abdo ultrasound and chest x-ray) I got ultrasound results there and then and my BCN phoned with other results within a couple of days so it wasn't too long a wait thank goodness! Positive vibes for Monday and for the results to come through quickly...

Thanks Kurri and Betsy

I have a CT scan on Monday afternoon, then waiting for a date for a bone scan. I was feeling pretty relaxed about it! Well I was working and keeping busy! So maybe I just haven't thought about it?!

But it's playing on my mind now I keep telling myself that when they did an ultrasound of my lymph nodes, they said they looked okay. So surely that must be a good thing? Does that mean only a few cancer cells found their way to the nodes? Or doesn't it work like that?

So bloody annoying how you find yourself with a list of questions that you now think of, but when your with the doc you can't think of any I just feel like I'm not in control of anything at the moment I don't know what treatment lies ahead, except for surgery, and right now I'm really scared

Sorry just having a pathetic, feeling sorry for myself moment. Will go to bed, and hopefully wake up in a better mood.

Night all xxx

The furry hot water bottle has transmogrified into a rather attention seeking alarm clock! Doesn't he know it is only half past 4? [Hmm]
Hi to green, sounds like you have lots to contend with - hot flushes are awful . Thankfully now I'm 2 years into the tamoxifen mine have settled down a bit. It took me a bit to get used to the final realisation of loss of fertility. I'm 47 now and friends are becoming grannies around me and I think I have moved on.
Finding it very hard to learn new things at work, read about drug for tamox brain fog the other day, maybe it is worth a go?
Got to get up at 8 for parkrun. Hope my cold is better in the morning. Foot wasn't too bad after last week so I'm going to walk it again. And my t shirt has arrived not that I'm excited or anything

Morning jchoc-think mini gig and your hot water bottle on same timings. Glad your foot on the mend.

Really - It is really worrying to have scams like that and it is completely understandable to worry. But vent away here and we will hold your hand through it .

Green eyed-welcome and glad you have joined us tho sorry you are here. I have more unusual cancer too. - soft tissue sarcoma that was a lump on my bum but so spread to my bines snd knifes so have had ops, chemo and radio.

Some of my radio was on my bum so not sure if had similar side effects but certainly ruined skin in that area bad have me horrid se. Also had hot flushes etc post chemo and they are nasty - at gp being dismissive.

Might be time now.

Morning gig def time! Bines = bones knifes?

Cat fed and let out into the dark. I have a lemsip and honey cocktail

Morning gigs and jchoc here's another . Got to sleep quickly Last night and slept til 05:30, so a definite improvement on the night before for me:)

Morning Jchoc and gigs and anyone else up early
Jchoc hope your cold and foot are ok and you get on ok with the run /walk
Gigs how's your back today ?

Not sure what's woken me so early just dreaming I think. Still a few months ago I never thought I'd sleep till nearly 6 without tablets
Swimming lessons, library etc today then were taking the kids out for a curry tonight-Wowcher !

Morning Betsy too
I have 8 steroids to take on Wednesday so think ill be awake too ! Glad you slept better

Morning fellow early birds. I have snoring boy in my bed and hooty owl outside window. May go and eat a drink in a minute: today is thr first day of improved eating plan, I was a hideous pig yesterday.

Welcome to greeneyed you sound like you ave had a pretty hideous time, this is a great place for info, support and good old belly laughs.

Eat a drink !!! Get a drink. See, food on the brain.

Morning betsy, malt and foofoo. Mmmmm food! Nearly time for breakfast :) dh a bit snorey but ginger ninja now shut out of bedroom so may try and snooze for another hour...

Damn it - was awake at 5.30 and had been hoping for a good sleep after my reassuring news yesterday.

Looking forward to my early morning cuppa courtesy of dh who fortunately tends to be an early bird.

Wishing you all a good day

Whoops meant bones and lungs - silly iPad .

Mini is now asleep but big gig up- she is happy tho watching cartoons on iPad (and is very warm to cuddle up to next to me)
Back ok thanks malt- has a dressing on so bit tender if I touch it bit ok otherwise.

Your day sounds lovely- not sure what have planned here aside from mr gigs cooking breakfast .

Malt - I forgot to say yesterday that my hair has grown back loads. The patches have been filled in and the new hair is about an inch long - so has grown really quickly. It is 6 weeks since I had any chemo and my nurse did say that it seems like if you use the cold cap the hair grew back quicker (but that's annecdotal). All a bit pointless for me as I am restrarting chemo week after next .