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Tamoxifen bus shelter -42

990 replies

Gigondas · 09/09/2013 22:00

Dragging trolley onto new thread.

OP posts:
HerNextDoorAt21 · 20/09/2013 15:38

yes gigs I heard about your exploding seroma at the time - I just hope you clear up very soon

brilliant news marshy I am delighted and know exactly how you feel, I didn't know my results until 10 days after my mx/reconstruction and just burst into uncontrollable happy tears. Any questions, feel free to ask

ruby you must be feeling completely rubbish, I hope you get sorted very soon.

malt at least you have a classic tune in your head, I';ve been humming and laaing the Thomas then Tank Engine theme all day !

Gigondas · 20/09/2013 15:43

Been in my head for weeks malt as been listening up as so excited.

It was a special moment that one hnd- especially standing in shower to let it drain Grin.

Is it pub night tonight for you two?and did you get your burrito? How is dss?

OP posts:
HerNextDoorAt21 · 20/09/2013 16:50

Yes gigs pub night for Andrea and I and Mr HND too as he is not at work.

I did have a burrito and cant image eating anything from the bar snacks tonight but of course that will change. I am doing chicken wings 9topsy and Mr HND favourite) and I think something from my new tapas cook book.

DSS is doing fine (I think) - I tried to talk to him about it and to offer him support in getting some conselling but he was adamant he didnt want to talk so we havent pushed it since. He does seem rather embarrassed about it all. He started a new job troday at CarPhone Warehouse after being on a training course for it in Brimingham for the last few days. He appears to be settled and happy and if anything is engaging more with us - however, he did seem OK before the overdose ???

I read him the riot act about leaving his trail of devastation where the littlies could have got hold of a nice rum and coke and a few pills and he took it on the chin.

I am hoping that it was a one off moment of madness but it is so difficult to know how to deal with it properly, I guess there is no right way !

What are the gigsies doing this weekend ?

BetsyBoop · 20/09/2013 17:00

That's great news marshy :)

A blasé surgeon is usually a good sign gigs so fingers crossed

Hope that means things are on the up for DSS HND - don't get topsy too drunk one, will you Grin

Gigondas · 20/09/2013 17:09

EnvyEnvy About pub night plan.

No plans yet but may go out to city farm tomorrow. Then if it is nice do a last barbecue.

Does sound more promising about dss but it is hard. I remember riot act being read to dss when he was similar age with mixed success. He did turn the corner when he finally went to Uni so having a job may have same effect.

OP posts:
MaryAnnSingleton · 20/09/2013 17:21

hooray for marshy !!
Had a lovely peaceful swim in a practically empty pool - brilliant ! no having to avoid other people in the lanes so much calmer.
I drew Nicola Bennedetti aged 9 for one of the books about child prodigies gig

MaryAnnSingleton · 20/09/2013 17:22

Hope your iron gets sorted ruby I can remember how being very anaemic felt- never felt as ill as I did then.

reallyreallyworried · 20/09/2013 17:32

Hi all

Sounds like a lot has been going on. Some positive news for some, well done those ladies. If you could pass on some of that positivity for my scan on Monday, that would be great Smile

I have just finished at work. I had an amazing 2 days. My 'little monsters' were great. They were so excited to see me back mummy and daddy boss, even more excited

I felt so normal for the first time in weeks Grin I even slept right through last night, which was my first full nights sleep since diagnosis. So today I felt human.

The downside is, that I know it's only going to be like this for another week, maybe 2. Then it'll be the whole surgery thing again Sad

But anyway, I will cross that bridge when I get to it. Right now I am enjoying the normal things in life. However boring they probably sound to others.

I hope everyone has a pleasant evening and a lovely weekend. Enjoy the sunshine. Xxx

foofooyeah · 20/09/2013 17:42

I would like to go to the pub . . .just me and youngest son at home this evening and he isn't much of a drinker.

Glad news was good for you marshy.

Ruby, get on the iron tablets now, I have had a low count like that and iron tabs plus a good diet sorted it quickly. I have an unnatural fear of blood transfusions.

foofooyeah · 20/09/2013 17:43

Oh and ruby, make sure you some laxatives too ( tmi but I ended up with piles from iron tabs)

kitkat1967 · 20/09/2013 18:16

Gigs - I took DS to see Nicola Benedetti but when we got there we found she had cancelled due to illness. There was a replacement violinist but he only really knew Nicola as he had seen her on the TV so it was not the same. We were sat by a family who that had happened to twice!!

topsyturner · 20/09/2013 18:16

Yeehaaaaaah for pub night tonight !
Will post pics on Facebook later of what treats HND makes me Grin
I shall allow her to cook for me , even though she had a burrito from my fave Mexican place without me earlier

I've had a lovely afternoon .
I watched a batman movie and crocheted .
DD was at a party , and DS was buried in his room .
Bliss Smile

Marshy · 20/09/2013 18:45

Hi all,
Thanks to you all for good wishes. I'm off out with dh and ds for something to eat and a glass or two of vino. Haven't eaten properly for a week. Lovely GP has signed me off work and told me to eat or the stomach flap option for reconstruction will be ruled out! Not sure I like the look of that one tbh but have decided not to think about it til next week. I'm going to see if I can remember what it feels like to look after myself and try to put that into practice for a week or two.
Hope you all have a nice weekend planned and worried will be thinking of you on Monday.

HerNextDoorAt21 · 20/09/2013 19:01

He had a great first day at work gigs. I did only read him
The riot act about putting my children in danger and to be honest I think that was the worst thing for him when the social workers came to see him
In hospital. He does love his wee brothers especially jack (4) (who looks like a blonde version of DSS).

I have decided to make garlic pan fried bread and chorizo to go with the buffalo wings and will be making a blue cheese dip and carrot batons .... I will listen got topsy stampeding round when she reads this. The wine is already open .... Medicinal purposes as I have a cold.

marshy I am so glad for you :) what sort of reconstruction are you favouring or no idea yet ?

mas Glad you are enjoying your swimming .... I can't wait to go swimming ..... Haven't been able to for eight months now .... The kids will be delighted.

amberlight · 20/09/2013 19:49

Who asked about wigs? Rene Amore range. Fab. Absolutely lovely to wear, adjustable, had lots of compliments.

KitKat , radiotherapy statistics - www.cancernetwork.com/cancer-management/stage-II-breast/article/10165/1802575 There's a decent set of them in the middle of that lot. "There is no clearly defined role for postmastectomy irradiation in patients with small (T1 or T2) primary tumors and negative nodes". So it doesn't bring anything to the proverbial party, no.

'evening all! Ruby, how are you still upright with that count??!
Marshy, hurrah!
Wine all round.

Shootingatpigeons · 20/09/2013 20:13

just did very woo yoga with little pigeons. We had to meditate on a moment we were truly loved, which was nice but then he qualified it by telling us to enjoy the unconditional love, was it wrong that the only moment that came to mind was with goondog Shock Blush Grin

Enjoy pub night, we are off for curry now

gigs glad we are still on for doing Thelma and Louise with a blue badge ....

MaryAnnSingleton · 20/09/2013 20:29

blue cheese dip -I love that- am winging my way to NI ...
had a couple of glasses of wine with the olds - feeling v sleepy.

kitkat1967 · 20/09/2013 20:29

thanks Amber - I did do a bit of googling myself today and everything seems to agree with oncs view that Rads probably aren't necessary now. I'll read your link as well but if there is no effect or only negliable effect in doing the rads then I'll pass. Am very interested to see hwat he comes back with on Tuesday.

For anyone who is interested I was in the GPs today (for DS not me!!) and asked about flu jabs and they promptly booked the whole family in (I've just got to confirm with onc about mine).

jchocchip · 20/09/2013 20:36

Yay for marshy that calls for Wine and Cake ruby guess iron tonic and spinich with the guiness wouldn't hurt.
mas I swam 16 lengths before work, not a patch on you! and my pool only 22.8 metres not 23 and under threat of closure making the most of the Mon/weds/fri 7.30 sessions as we only have them until December :(

Gigondas · 20/09/2013 20:43

Grin At goondog love pigeons.

Thanks for reminder on flu jab as need to book up kitkat.

Waves to amber- I have Rene Amore wigs too.

Takeaway here and now living the dream embroidering and drinking herb tea as would definitely fall asleep if had any Wine. Will make up for it tomorrow.

OP posts:
greeneyedcat · 20/09/2013 20:58

This reply has been deleted

Message withdrawn at poster's request.

amberlight · 20/09/2013 21:14

Hi Greeneyedcat, yes, all that experience the 'new normal' of life with/after cancer are welcome here, I find. Nope, it doesn't go away. I'm at two years of the five years of checkups and living with the pain from the lumpectomy and the nerve damage from the chemicals, as well as arm swelling from chemo vein damage etc. If it helps, year 2 and a half after diagnosis is easier than year 1 and a half. Don't apologise for moaning either; is fine to moan, or not. We know what it's like.
When do they reckon they'll do the biopsy and you'll get the results?
Brew? Wine?

malteserzz · 20/09/2013 21:26

Welcome greeneyedcat all are welcome here not just breast cancer Smilesorry to hear of what you've been through and it must be quite isolating if you don't know anyone else with the same sort of cancer. At the end if the day we've all experienced similar treatments and feelings though I'm sure

I was told I'd need a flu jab too and dh if he was my carer, don't really feel like I've needed much caring but I suppose makes sense for him to have one too. I've never had flu though

Wine I clock here getting a bit peckish jealous of topsy and hnds snacks !

KurriKurri · 20/09/2013 21:38

hello greeneyedcat and you are very welcome, we have a breast cancerish title, but anyone who has been affected by cancer is very welcome Smile

It sounds as if you have had a very tough year, it's great you have had your first all clear, but the deflated feeling you describe is very common, somehow when you are having pretty intensive treatment you sort of keep going and deal with the physical effects, and that can mean the reality of it all goes on the back burner, but when the treatment intensity decreases it all hits you again.

I don't know very much about anal cancer, but I think it is one of the more uncommon cancers? that must make it very hard in terms of finding others in the same boat for mutual support, and in terms of gaining info., it is very hard when you feel you are going though it all alone. I hope we can support you on this thread. I can sympathise with the damage that is caused by treatment - I had breast cancer, but chemo did a lot of damage that I am still recovering from now.

I think its a process of almost grieving for the life you had pre cancer, and finding a way to live well and happily with the 'new normal' the new way your body is, and that can take a lot of adjusting to. And in actual terms all this is still very recent for you, so don't panic and think it will never come right - it just takes a while - moving further in time from DX helps too.

Hopefully some of the other women on this thread can talk to you more about the specific effects of radiotherapy, I have found that the pain and nerve damage from surgery and radiotherapy have gradually settled down (I am five years from DX) and I certainly feel much better now than I did after 18mnths, so I would hope that things may improve for you too. Meanwhile have a Brew and some Cake and welcome Smile

marshy - hooray for good news, so pleased for you Smile
Ruby - no wonder you are feeling rough, that is very low - hope they can sort you out asap xx

greeneyedcat · 20/09/2013 21:38

This reply has been deleted

Message withdrawn at poster's request.