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Tamoxifen bus shelter -42

990 replies

Gigondas · 09/09/2013 22:00

Dragging trolley onto new thread.

OP posts:
topsyturner · 20/09/2013 10:17

Ah , that's better .
Cheesey beans on toast .
That hit the spot , feel quite human now Grin

Marshy · 20/09/2013 10:21

Hi all,
I have an appt with the BCN at 1pm for results of the lymph mode biopsy which was taken on Monday. I am in a state of barely controlled panic at the moment
This node wad aspirated the week before and result was negative but they them did the biopsy
Have had a crap week. BCN says I won't always feel this awful but finding that hard up believe right mow.

BetsyBoop · 20/09/2013 10:28

marshy totally normal to feel how you are feeling if that helps at all, we've all been there. It honestly does get better when you have all the info and a plan for your treatment, your BCN is right. Do you have anyonecoing with you? If you do put them to use as scribe, its common to find it difficult to take in verything hey are saying. (and write down any qu you already have in case your mind goes blank) We will all be here with Brew and Cake when you get back..

BetsyBoop · 20/09/2013 10:29

Sorry, typing too fast on iPad and missing first letter of words, hopefully ou can still make sense of it!

smee · 20/09/2013 10:30

Marshy will keep everything crossed for 1pm. Hope you get the best of news, but remember if they have found something it's common and lots of us have had similar. Totally get how terrifying it is, I was in a right old state at your stage. It really will get easier. xx

kitkat1967 · 20/09/2013 10:45

Good luck Marshy - hope you get good news. Your nurse is correct -whatever the news you will start to feel better.

KurriKurri · 20/09/2013 11:01

Good luck Marshy xx Another one agreeing with your nurse - the sense of extreme anxiety and sheer panic does calm down once it all sinks in a bit. But if you are struggling to sleep or feel a bit shaky, talk to your GP, they can often offer a bit of temporary help to get your through the early days.

MaryAnnSingleton · 20/09/2013 11:30

oh I shall never catch up - am way behind in everything today - forgive me for not acknowledging everyone- but wanted to send a healing vibe to gig's wound Sad and lots of good thoughts to marshy - really you will feel less panicked and scared before too long -it does happen.

I love my work and am lucky enough to be able to carry on with it- I get anxious about doing it well,indeed being able to do it at all and am hugely self-critical but it's not a stressy thing so am v lucky.

Met T's tutor yesterday-he's adorable !

Am feeling headachy and generally a bit down - sigh. Swimming later though.

Marshy · 20/09/2013 11:31

Thanks so much everyone. Good to hear that it will start to feel better whatever the outcome today. I'm hoping for the best and fearing the worst but just having a plan will help
Dh is coming with me. He is being a rock but I can see its hard for him too. I have a gp appt later this afternoon.
You are such a lovely lot.
You ate such a lovely loy

Marshy · 20/09/2013 11:34

Blimey! So glad this thread isn't the kind that picks up on typos and spelling - my posts are all over the place, a bit like me really!

KurriKurri · 20/09/2013 11:34

Oh I'm glad you are seeing your GP later Marshy - you will be able to talk things through, - my GP was an absolute star - just in terms of being there when I needed someone to talk to - hope your is helpful too Smile
And your DH sounds lovely - lots of love to you both, it is very hard for both of you x

foofooyeah · 20/09/2013 11:38

marshy that last line made me laugh!

Hope you manage to stay calm until your appt.

Just a good morning from me, got lots of very boring things to do today.

GoodbyeRubyTuesday · 20/09/2013 11:59

marshy good luck today :)

Bit of an eek moment here as GP phoned and yesterday's blood test showed my haemoglobin is 6.1. Google suggests normal is 12+. She's trying to contact Dr W to find out whether to do a blood transfusion or just give me iron tablets. No wonder I've been so tired and a bit breathless! I'm trying very hard not to worry about it as I was anaemic during chemo and haven't been eating well, plus had a period, so plenty of reasons why it might be low. Have to have another blood test this afternoon to check my ferritin and folate levels.

Waving to everyone, I can't stop as need to contact bowel nurse to see if she can contact Dr W! Have a good day xxx

BetsyBoop · 20/09/2013 12:13

ruby not sure if it's same as pregnancy, but I had problems with anaemia following a post partum haemorrhage with DS. Anything below 10 was classed as low, below 8= transfusion. 6 is VERY low so no wonder you feel rubbish. (my lowest was8.1 so I escaped transfusion by the skin of my teeth,)

thegreylady · 20/09/2013 12:31

I honestly think the only certain causative factor in having breast cancer is having breasts.
Mine is triple negative but I had cysts for many years even before pregnancy. After the birth of dd in 1974 I had blocked milk ducts and was unable to bf. I continued to have cysts for the next 32 years sometimes in one side sometimes the other until in 2006 a routine mammo showed breast cancer. I've never been much of a drinker though.

topsyturner · 20/09/2013 13:09

"The only certain causative factor in getting breast cancer , is having breasts"

^ Exactly what GreyLady said !

topsyturner · 20/09/2013 13:11

Marshy hopefully you are being seen now , but am crossing everything for you .

Eeek Ruby , no wonder you've been feeling so crappy !
Guinness , lots of Guinness ....

HerNextDoorAt21 · 20/09/2013 13:17

Afternoon ladies.

marshy all the luck in the world, you should be at your appointment now - I have everything crossed for you x

topsy why were we both drinking but not together last night ? You could have helped me ice the cupcakes ....... how were they by the way ?

gigs you seem to be following my pesky problem regime !!! pumps, leaking wounds ...... I demand you stop it right now !

I went to see the surgeon this morning and the wound has stayed clsoed and she expects to be able to take the suture out next Thursday ..... I asked if the treatment room could do it to save her a job and she said "no, I am seeing this through to the end" lol

Now sat at work, starving waiting for some of the guys at work to bring the burritos we ordered for lunch and staring at cupcakes I made ..... mmmmmmmmmmmmmmmmmmmm

Shootingatpigeons · 20/09/2013 13:31

grey lady I didn't even have those! Or at least any to speak of. Grin

Sending healing vibes to gigs, hope the surgeon sorts you out.

Also good wishes to marshy agree paniced and scared and in shock is entirely normal when faced with uncertainty. Aside from anything else that word Cancer is a source of terror. Consultants have to give you the worst scenario but hopefully what you are hearing about now will be reassuring, and if not, plenty of us on here have had nodes involved. You will be able to join our exclusive club Wink the one no one wants to join, you can never leave, but we honestly can laugh and enjoy life, not to mention letching after orange men.

Speaking of letching did you see all that scandalised coverage of poor Sussannah (went for the putting in letters to cover all possibilities option there) Reid having a bit of a flirt with Alex Turner. Attractive 40 something flirts with sexy lead singer Shock imagine the press coverage if us lot, scars, bits missing, bald and all, got our hands on the poor boy.....

ruby I hope they sort you out. I always had problems with anaemia caused by heavy periods so definitely a factor but it might actually be a good thing if some more vampiring can quickly make you feel better?

My friend found her bowel cancer too late for it to be treated, it had already spread extensively, but the sad thing was that they should have realised she was at risk of FAP, her grandmother had died of bowel cancer but aged 80 and her mother had died of Cancer aged 40 in the 70s but they had never identified the primary cancer, just put it down to stomach cancer. As much as anything it came down to stigma, when she tried to ask her father about her mothers symptoms, he wouldn't talk about it. It was a great comfort to her that her children would be closely watched and if caught early it is entirely curable which is why I am really pleased you caught it in time.

Re going forward I really changed my diet etc after Dx but actually there was nothing wrong with it before. I have gradually slipped back to a more relaxed regime and don't stress over a cheese sandwich, or drinking water out of the tap etc but at the time it really helped me feel I was doing something positive when all he doctors were offering was destructive. I still take some proven supplements though. Interestingly Dr Susan Love (THE book when I was dx) does say that the chances are that the factors which led to your tumour were laid down decades ago (if not birth) so there is probably little you can achieve by short term change, shutting the stable door etc. I just wish I knew how to shut the stable door for my girls. Both have the horrible periods that I had so probably have the hormone overload and I try to steer them to a good diet but you can lead a horse to water..... Homily corner here !!! Friends and I all have daughters (two were breastfeeding when dx) and it is a real worry but hopefully there will be a better prevention, treatments, vaccines down the line and we are heartened by the fact the doctors are realising that hormones are such a major factor and hormonal cancers do need to be treated differently.

I'm avoiding joining DH who is bent on some ravaging pruning in my garden. I am very afraid.....

Marshy · 20/09/2013 14:32

Your good wishes must have worked for me. I've had the best news! Will need a mastectomy but the biopsy of the lymph node showed no sign of invasive cancer so plan is for immediate reconstruction and maybe radiotherapy. BCN has given me lots of info to read and then I'm seeing her on Weds to talk it through. Seeing the surgeon the week after.
There is not a word that describes the relief I feel despite some challenges ahead that would have had me quaking in my boots a couple of weeks ago.
Off to see GP now. Love to all

malteserzz · 20/09/2013 14:37

That's good news marshy Smile

Ruby hope you get sorted no wonder you've been tired

Had a nice morning with friends and been out for lunch. Dh has had his vasectomy appointment through for the end of October Grin

smee · 20/09/2013 14:40

Phew and hooray, Marshy. Brilliant news. Smile Smile

Ruby, no wonder you've been feeling so lousy. Think it's v.common after treatment to be anaemic. I know I was though can't remember levels. Hope you can avoid another transfusion, but then again that's a quicker fix I think, so might be best x

Hope you're okay, MAS and things lighten for you soon. Swimming's a good idea, but don't over do it. x

On the whole what have you changed since diagnosis riff, all I've really changed is to try to drink a bit less, so not mid week at all. Having said that was always a complete lightweight, so never drank that much before. I've always exercised, never been overweight, have a pretty healthy diet. Hmm

Gigondas · 20/09/2013 14:51

Yay for good news for marshy Grin.

6!!! Ruby - I felt done in at 8 so no wonder you feel rank. Hope you get sorted ASAP.

Surgeon very nice but blasé ( which was reassuring in away)as it's just a small infection so keep dressing on til it heals. Hnd am copying you but am afraid my infection trend started with original op when huge seroma burst in bed and flooded bed ruining bedding. Mr gig still traumatised at memory Hence why I was sent to a and e ASAP.

Pigeons - am still Grin at the Percy the parkeeper story but good news is that no hindrance on outings. Next week am seeing Nicola benedetti and fleetwood mac...

Am pleased as part of me always thinks will get kept in if I set foot Ina hospital.

OP posts:
kitkat1967 · 20/09/2013 15:04

well done Marshy that's good news - sounds like you will head into next weeks appointments with a positive attitude.

malteserzz · 20/09/2013 15:06

Have had to google Nicola Benedetto but I like fleetwood mac, tell me lies tell me sweet little lies that will be in my head now Grin

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