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***Tamoxigang - thread number 40!***

992 replies

GoodbyeRubyTuesday · 26/07/2013 22:08

Hello all! New thread as we have almost filled the last one. Help yourself to chocolate chip muffins from the trolley! :)

OP posts:
topsyturner · 30/07/2013 19:58

My results apt isn't until 12th August , so keep all your positive vibes on hold till then !

amberlight · 30/07/2013 20:11

KitKat, hurrah re the defined lump! Half of lumps don't do a thing, and they're the trickier ones. Yours did, which is good.

Sparkle!!!! Helloooooo!!

Gigs, so relieved that you're in for lego and drugs

graciesmall09 · 30/07/2013 20:50

So pleased for no spread gigs. Good that you will manage a break before op.

Yay for you too kitkat. One advantage of chemo before surgery is you know for definite the chemo is doing what it should be. I had surgery first so have to just hope it worked.

Waves madly at sparkle

Still no word from emin? hope you are ok.

SparkleRainbow · 30/07/2013 20:56

Grin topsy

kitkat1967 · 30/07/2013 21:22

as usual thanks for the stats Amber - I had no idea that half of lumps don't change with chemo. Will be going to bed a happier bunny tonight - bring on cycle 3 on Thursday Smile

MaryAnnSingleton · 30/07/2013 21:25

am very excited about swimming !! have been looking at nice modest swimsuits and goggles Grin

MaryAnnSingleton · 30/07/2013 21:26

and happy anniversary of Sauron-aided remission topsy Grin

SparkleRainbow · 30/07/2013 21:44

Waves to amber and grace x

trice · 30/07/2013 22:05

Gig, Yay for no spread. Poo to op. Dh has had two spine ops, he recovered remarkably quickly both times even when they accidentally nicked his spinal cord. Hope your op is similarly straight forward.

Mas, show us the link if you find a nice cossie. I am tempted to try and make one but my sewing skills are a bit hit and miss.

Topsy - I am green with envy over spontaneous remission. I wish I could do that. It's good that you are so well a year on.

Kitkat - good news about lump.

I had a call from onc today to ask me in for an appointment next Tuesday. He said not to worry, it was just to catch up. Not to worry!? Don't they know that onc appointments do my head in? So now I am in hospital Friday, Tuesday, Wednesday and Friday again. It really interferes with my denial. Grrr.

topsyturner · 30/07/2013 22:11

"not to worry" ???
Yeah right , that's gonna happen !
I know it's probably all routine to the oncs , but don't they realise that any apts put the fear of God into us ?

malteserzz · 30/07/2013 22:32

Not to worry, as if !
Rennies are ok on chemo aren't they, don't need them now but got some in case
Been really down today told dh I'm staying in for 6 months, dont want to see anyone or do anything I'm hoping I'm just tired and it will pass. Think I'm also stressing about wig appointment tomorrow so might feel better after thats done
Anyway tea and crunchie biscuit has helped !

malteserzz · 30/07/2013 23:08

Night all x

topsyturner · 30/07/2013 23:56

Night Malt
Rennies are fine , but if they don't hit the spot , phone your GP and ask for a prescription for omeprazole .
That's the good stuff !

I was reading on another thread that Nonna has her results apt tomorrow at 11.40 .
If you are reading Nonna , I'll be holding your hand tomorrow x

Right , I'm going to try and get some sleep now . Got to be at the hospital before 8.30 tomorrow .
I don't do mornings very well ...

malteserzz · 31/07/2013 06:11

Another crap night here with hardly any sleep, woke dh up to moan at him how can he sleep with me being ill ? Not very nice of me. Cried for hours so feel rubbish this morning. I just can't see a end to this, nothing to look forward to
Did anyone else get like this once they started chemo I was coping before then
Sorry for self indulgent post but I am struggling and no one in real life really understands
Meant to be going for a wig today, I don't know whether to go or leave it till I feel I can cope with it

Gigondas · 31/07/2013 06:49

Malt-have Wine and a hug. Now I want you to imagine that I am say next to you (with a packet of choccie bics) and am going to ask you this most nicely.

I want you to ring your Gp this morning . If you can't face going for an appt , get them to ring back or visit.

You need to do 2 things . Get some omeprazole as Rennies alone aren't good enough- your gut is sensitised during chemo so omeprazole offers not just relief but protection as you don't want to end up with permanent damage.

The second thing is that it is normal to struggle with all this , you don't have to struggle as much as you do. I can see how you lashed out at dh and don't want to go out but it must be horrible for you.

I think that maybe getting some anti depressants will be of huge benefit. They may also help your sleep which won't be helping how you feel. Lots of people on here have them and helped a lot ( ned, topsy come to mind - think topsy described them as taking the edge off).

The other thing is maybe getting someone to talk to. Counselling will help have way to vent (I only get thru this at times as have been in psychotherapy for years) . Also it has been shown that learning cognitive behaviour techniques can really help you cope when you get into panic or anxiety mode .

I just think that suffering emotionally is obviously part of all this new normal but there are things to be done to help as a side effect just as if it is one of your physical side effects.

The wig visit is bound to be a funny moment as it reminds you of visual effects of all this . But I found it fun and you would be amazed how good wigs are ( I am with kitkat as Went from many bad hair days to instant style with mine). Also there is no reason to think cold cap won't work for you.

Trice-your onc is a laugh " not to worry". But does have a point as I think it's very normal to see them for catch up during chemo , radio or op . I know I always have to see my onc during/after any treatment .

Into Gp to update her and get prescription later then may get my nails done.

Gigondas · 31/07/2013 06:49

Not Wine meant Brew but if Wine helps why not? Wink

amberlight · 31/07/2013 07:28

Malt, how are you feeling now?
Keeping fingers crossed for all appointments today for everyone

topsyturner · 31/07/2013 07:40

Malt I echo Gigs
My GP described the anti depressants he gave me as "not happy pills , they will just help keep you on an even keel whilst you are dealing with all the crap being thrown at you"

Also , phone Macmillan and ask to be referred to their counselling service .

Got to run , but big hugs to you all x

Gigondas · 31/07/2013 07:41

Amber how is it all going with work/garden as you sound busy? And how is ds feeling after all that university trouble?

malteserzz · 31/07/2013 07:46

Morning amber and Gigs Thank you I'm not sure I can face ringing gp but I am listening. Dh just gone off to work he's not happy with me he thinks I'm just giving up
I can't face the wig thing today I look absolutely crap and can't stop crying though will regret it if it all falls out and I have nothing
Got to get up got a coffee table coming from 815 and will get through the day somehow
Thanks

jchocchip · 31/07/2013 07:50

Hmmm Wine maybe I shouldn't!
There must be something in the air, another one here who had a go at dh in the middle of the night. Took myself off to sleep on the sofa! Another death on facebook :( was expecting this one, but still a shock. Bastard disease.
Malt, is there a local support group? You should have a breast care nurse on your case too. Gig talks sense. Reactive depression is normal and gp can help. I can't take ads myself as risk of mania, but if you can, try them. And get referred for counselling.
Brew and work sigh.
Oh sparkles, lovely to see you back, we miss you!

jchocchip · 31/07/2013 07:59

Ime the best time to ring gp and tell them you need help is when you are weepy. No point waiting until you feel better, is there?

MaryAnnSingleton · 31/07/2013 08:10

bcn call should be a must malt -they re there for emotional support,which is what you do need. I echo what gig has said and I do urge you to consider asking GP for anti-depressants- really they can be incredibly helpful in getting over blips which are bound to happen - mine have made a huge difference and I am able to function normally,in fact with much vigour as am not spending my time in a state of anxiety (they are prescribed for an existing anxiety disorder but sure as hell keep everything in check) DO IT !!
Am off to see GP about general aching and whatnot.
Am finding really nice swimsuits-will post my favourite...

Gigondas · 31/07/2013 08:11

Oh jchoc - that does sound shit. Sorry about FB news.

I echo what jchoc says about ringing the Gp when upset.

Gigondas · 31/07/2013 08:12

Do post mas. I am going to swim too as suggested by Physio but obviously need to get lego done.