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38th tamoxifen - waiting for summer in the bus shelter

987 replies

Gigondas · 15/06/2013 12:01

New thread.

OP posts:
flippyflippers · 01/07/2013 22:14

I've got my appointment with the nhs wig lady in the morning. Am imagining 'are you being served'. Anyone know if they actually have any nice ones?

thenightisyoung · 01/07/2013 22:47

NotJ I love the idea of reducing work to allow time on MN Grin. I must seriously consider that. I got back from a lovely relaxing week in Devon to hospital appointments ( though doctors were not concerned by bum lump ) and then a really poorly cat. I thought she was going to die and the vets think she had a stroke but she seems to be recovering well.

I am now trying to apply for a new job at work and struggling with a gargantuan competency based application form. I am considering whether to ask for a guaranteed interview as I think that if you have had a cancer diagnosis you are disabled for the purpose of the 2010 Equality Act (and so therefore for the purpose of the guaranteed interview scheme run at my work). But, although the cancer has undoubtedly affected my career I don't really feel disabled.

smee I hope your op goes / has gone well.

amber sorry you're not feeling great

gigs backpain sounds horrible and debilitating, I hope you get some relief from it.

Waves to everyone before getting back to this horrendous form!

topsyturner · 02/07/2013 00:56

Evening All

Playing the Wide Awake Game here !

Amber hope all is ok with you .
You give everything you do , your all . Not surprising if every so often you need to decompress .

Oh bugger it !
I hate posting on my iPhone .
Every time I have written to one person , blardy chemo brain has wiped out all I wanted to say to anyone else !
And iPhone doesn't allow you to scroll back like desktop .
Sigh ...

topsyturner · 02/07/2013 00:59

NJ go for it re the job .
I can't fill forms in anymore , as my afore mentioned chemo brain can't retain info these days !

Flipp I had an NHS wig , it was pretty good .
The wig lady got me something very similar to my own style and colour .
Unfortunately I could never get on with wearing mine , as I used to get so hot in it !

topsyturner · 02/07/2013 01:01

Malt tomorrow will def be a better day , I have decreed it !

Gigs do you irradiate at the weekends too , or do they give you them off ?

topsyturner · 02/07/2013 01:05

Ok the job thing was meant to be directed at TheNight

NJ I would ring and see if apt can be brought forward .
They can only say no .
And I'm beyond caring if they think I'm a paranoid loon these days .
Whatever it takes to get you through it all , I say !

Right , I think that's enough posts in a row for one night .
I'm lying on bed , trying to persuade my brain to switch off (oh now it wants to be lively !)
And I'm being dive bombed by a bloody fly !
Hate flies ...

Goodnight Grin

Copthallresident · 02/07/2013 01:27

topsy me too in the wide awake club, and just when I get to sleep I expect the Jetlag club will start partying......

amber agree with topsy there is only so much fighting the good fight one person can do before it takes it's toll...

Also sending lots of love to KK and hope her problems have a solution in sight.

nj it really would be strange if you didn't think every twinge was Cancer, no body has a right to be trusted after it has let those idiot Cancer cells get out of control, it takes time to trust it again , and frankly I still don't. It's not so much worrying about every twinge now, in fact I let them go for weeks and months to avoid the doctors which I trust even less than my body, as just a general feeling that I have had it good for too long and it is bound to have something nasty waiting around the corner. We need at paranoia box out again.if it is interfering with life then I am sure the Onc will see you if you ask.

the night yes I am certain that once diagnosed you are disabled for the purposes of the equality act, go for it, please. I don't feel disabled either, indeed was quite capable of carrying on doing the actual task focused work of two of the politicing men I used to work along side but my company still decided to sideline me, it was before the legislation was passed that classes Cancer as a disability, and that sort of behaviour was why it was passed, so take advantage Smile

malt We rather enjoyed the attention and limelight Grin and the chance to behave entirely inappropriately and not at all how someone with the Big C is supposed to behave.

Hope all has gone well for smee and that gigs is having restorative sleep.

Better try again for some sleep. BTW anyone on Fbook, have my pics of big Copts bday gone up on the newsfeed, I seem to keep cocking up and only I see them and then Mum will be on the phone wittering first thing, my niece is in them too so 2 GCs equals stereo wittering....

malteserzz · 02/07/2013 06:26

Morning all
I'm sleeping a bit better these days have gone down to half a tablet and seem to be able to make it through till 530 which is practically morning :)
Topsy I use the I phone app and its a pain not being able to scroll back
Night sorry about your cat hope she/he recovers.love cats ours is very much part of the family
Copt I don't think you're my friend on FB so can't check for you, shall we make friends lol ?

What's everyone got planned for today ?

notJenkins · 02/07/2013 06:50

Thanks ladies for you understanding, my throat feels better this morning so the cancer must have shrunk overnight Smile

I guess paranoia is to be expected and we have to learn to live with it. When the scan is over I will feel much better but am expecting to feel worse until then.

I will think of you lot today as I have a tedious 3 hour meeting this morning then computer system training all afternoon. Yawn.

Copthallresident · 02/07/2013 07:31

Didn't sleep at all.... still I have managed to worry needlessly about lots of silly things and no longer feel it necessary to go out and water the front garden, so that was worthwhile, did thankfully remember around 3am that I had left the hose on refilling the pond, so may consider planting a bog garden around it, I can count gunneras instead of sheep Grin

malt I have lost track of whoI have friended, will look. I'm pretty sure none of my pics get posted but can't work out why Confused

nj glad you have had a spontaneous remission, perhaps it was just the threat of the Oncy. Grin

Amber Have you seen this www.guardian.co.uk/society/2013/jun/29/david-mitchell-my-sons-autism I love David Mitchell's writing but especially liked this

"compares expectations of parenthood to planning a long sojourn in Italy. Prior to your holiday, you read up about Italy, speak with experts on Italy, plan your route, gen up on Italian and anticipate the pleasures of your time there. Having a life-redefining diagnosis ? like autism, Asperger's, Down's, whatever ? is like getting off the plane and finding yourself not in balmy, romantic Rome but? Schipol Airport, in Holland. What the hell? My wife and I booked our holiday in Italy, like everyone else. But time passes and the penny drops that hankering for Italy is stopping you from seeing Holland. Your attitude shifts. You begin to discover that Holland possesses its own singular beauty, its own life-enriching experiences."

He could be describing the new normal.

Copthallresident · 02/07/2013 07:39

Pics have gone up as Godmother has found them, so I can try for more sleep without fear of wittering.....

jchocchip · 02/07/2013 08:23

Morning all! I'll put a Brew on in a minute when I get to work.
Trying one contact lens today as can't read or see computer with two in Hmm will be glad when I can pick my new glasses up!
Will pop back later in search of news of smee.
How many rads have you get left, gigs?

Gigondas · 02/07/2013 09:21

Thanks for Brew -have 2 more incl today. Back is shocking -didn't help when dh (well meaningly) wondered of it was muscles or bone rrelated as if the last wouldn't necessarily get better. Same thought has gone round and round my head despite asking onc.

Sorry for all the insomnia - I would definitely ask for check up notjenkins as best to put your mind at rest.

OP posts:
MaryAnnSingleton · 02/07/2013 09:29

hoping that smee is recovering by now
Pain must be so draining gig - am sorry.
Working on book today I think, maybe a walk.

Gigondas · 02/07/2013 09:31

Yes hoping smee comfy in bed post op with lots of painkillers.

The pain us wearing but it's not knowing what issue is and what to do for best. I am so worried that will be stuck like this Sad.

OP posts:
Lilymaid · 02/07/2013 10:04

Well, it is now day 7 after 1st chemo and I'm feeling like I've got flu but without the temperature (fortunately). Metallic, dry reptile mouth as well.
Still trying to work from home, though I've been sent something today that was hard enough to do at work, let alone at home with chemo brain. My temporary assistant starts tomorrow, so will have to explain to her my strange ways of working.
Frightened myself this morning when Oncologist's secretary phoned up to give me an appointment time - then remembered that, when I last saw him, he had said he would be seeing me at his next clinic!
Thinking of making some jelly today as someone said it was good for the mouth/throat ... back to childish pleasures!

MaryAnnSingleton · 02/07/2013 10:16

jelly sounds good lily !
gig i can see that is very frightening - I sometimes think about not being able to do things for myself and not being able to drive-that is a bleak prospect.

malteserzz · 02/07/2013 10:42

Lily jelly is a good idea especially if you stick some vodka in there !
Where's the sun today ?

trice · 02/07/2013 10:44

Must drag self down to hospital for blood test. I slept really badly and have caught a cold. Poo.

Both dcs off school with tonsillitis and Dh has manflu. Dcs missing school trips and sports day, very miserable and despondent.

topsyturner · 02/07/2013 11:18

Morning All

Got DD with an upset tummy and a faint rash today .
She seems happy enough (happier than she was last night anyway !)

Bit of a bugger though as HND and I were planning a road trip .
Sigh ... nothing like making plans when you have children eh ? Wink

malteserzz · 02/07/2013 11:23

Trice and topsy DVD and duvet day for you all today ? Hope everyone feels better soon
I'm off to the shops to try and find something that makes me look vaguely nice. Going to the races on Saturday with the blow monkeys and human league. Don't you want me baby ?

topsyturner · 02/07/2013 12:00

Damn it Malt , I'm gonna be singing "I was working as a waitress in a cocktail bar" all bloody day now Grin

GoodbyeRubyTuesday · 02/07/2013 12:43

Grr topsy and malt you've got that stuck in my head now too! Grin

Lots of poorly people on the thread today :( I hope all are feeling better ASAP.

malt good luck shopping, I'm sure you'll look lovely :) sounds like a really fun day out!

Lazing around here, but about to go and have a Mars ice cream to fuel me through all the things on my to-do list! :) I shall throw some on the trolley too.

Waving wildly to everyone! Especially KK if you're lurking, we miss you! Hope things are improving and you'll be able to join us again soon Flowers

smee · 02/07/2013 15:15

Galaxy Counters anyone?? All tucked up at home, though now humming the Human League.. Grin

malteserzz · 02/07/2013 15:20

Are you ok smee glad you're home Smile
Louise is my favourite if you want a new one in your head !