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******The 36th TAMOXIFEN thread******

999 replies

NedSchneebly · 10/05/2013 20:02

You all out there? Pop this way!

OP posts:
trice · 13/05/2013 10:36

I did the cannula thing once. It was incredible / ridiculous / terrifying and very red and messy.

malteserzz · 13/05/2013 10:44

Trice she will be ok bet she's playing with her friends now happily. Of course she's going to be upset seeing you poorly but she sounds like she's got lots of support which is good
Ash I hope you will get a bit of peace now that the overtalking lady has someone else to talk to. You sound like you have the attitude of just get on with things and not feel sorry for yourself good on you, I'm the opposite lol !

Hi to everyone else

smee · 13/05/2013 11:12

Go little Copt!! vibes for brain power from me too. Smile

Morning all. Waving to Ash. Hope talky new woman and over-sharer go out for fags and leave you in peace. I had the canula sporty thing after last op. Blood spurting from canula, then I threw up. Poor DH, not sure he's ever recovered.. Grin x

Trice, poor you and poor DH, though of course you haven't damaged her. So v.tough what you're going through atm. I'd say treat tea for all and talk about it as a family. Even if she's teeny she'll feel part of it. So daddy must still go to work, DD must still go to school, etc.

MAS, hope Charles is safely back soon, and courtesy car's zippy. Smile

Gig, am putting toasted bagels on trolley for you. They always make me feel better if I'm sick. x

Off for my 6 monthly Onc check later. I haven't got anything I'm worried about, but am still worried. sigh..

AshokanFarewell · 13/05/2013 11:37

smee I'll hop on the paranoia box for you, hope the appointment goes well.

malt I have bouts of feeling sorry for myself too - remember my previous hospital visit! I just find it helps me to try and ignore it all and carry on smiling :) also I don't have as much to worry about as everyone else as I don't have children!

Having a bit of a panic here too as have had a rather embarrassing symptom which nurses and surgeon knew about and didn't seem concerned but then bowel nurse turned up and I told her and she freaked out Hmm however have been reliably informed it can be caused by antibiotics and she says not, so as usual she doesn't really know what she's talking about so hopefully not cause for alarm! I have to provide a specimen :(

MaryAnnSingleton · 13/05/2013 11:42

that sounds irkome ash - hope all is ok.
I had a blood transfusion bag fall on me when I was 6 - the nurse thought I'd done it on purpose (as if) and left me in a bloodied bed- my dad nearly had a heart attack !
Lots of good thoughts to smee for oncy appointment xxxxx

Gigondas · 13/05/2013 11:53

Double yuck on blood as have lost a cannula and had blood bag fall.

Thanks for bagel- not being sick but utterly washed out. Just slept on sofa all morning- should get up really.

AshokanFarewell · 13/05/2013 12:26

Oh MAS that's horrid! :(

gigs I hope you feel better soon, rest is good, and treats to build your strength up :)

Another panic as had a visit from an oncologist but thankfully just one of Dr Happy's colleagues. He's writing to Dr W with his recommendations so I'm sure that will be well-received... Grin

Doctors are hoping to send me home and just contact me if there's any problems with my specimen, just need approval from consultant so fingers crossed :)

MaryAnnSingleton · 13/05/2013 12:52

fingers crossed ash
Can I get you or *gig8 anything sustaining from Waitrose ? am off in a sec... (also,touch wood,think I've finished my book illustrations !)

Copthallresident · 13/05/2013 14:58

Thanks for vibes and brainwaves for little Copt just picked her up exhausted, wasn't 6 hours, but nearly four with a 2 min break in middle (others got longer but eaten into by extra time) She thinks it went OK but then problem with dyslexia is that you miss things, so you don't see what you get wrong. Straight back to it for History tomorrow..... She seems a bit calmer with one over with or maybe she is just in a coma ....

Trice I agree that keeping things normal is best thing for DD, you don't say what age she is but they get little hormonal surges from seven so you get periods of bolshiness even before the major hormones kick in, I remember being pushed to limit a few times, especially by Big Copt. I would wonder about the prizes too, it can backfire. I know Big Copt was picked for some big dance display in the west end by her dance teacher who wanted to help, she had become a personal friend, but she is no dancer, and there was some bitchiness about that from those who missed out. My friend's daughter absolutely hated being made a fuss of at her school and they had similar problems getting her to go in. DDs' school were on look out for any problems but didn't treat the six children they had going through the same thing at the same time any differently. It makes it a refuge from the extraordinary things they may be struggling to cope with at home. It is important they have space to be children. The best thing is to get some professional advice for you and school about the best way to handle things, and perhaps a Counsellor for your DD. It can help for them to meet children in the same position, makes it seem more normal, and if your DD is a reader there are various fiction books about children going through trauma and even the same thing, I am sorry I am no longer familiar with the titles but if you have a children's bookshop nearby they will help. We have a very good one who recommended titles to my friends and I, I would have thought they would respond to an email www.lionunicornbooks.co.uk/html/index.php?PHPSESSID=abf3ef7d894f87c7e9776fa15f7c2557

After my treatment Big Copt wrote, without me knowing , to Jacqueline Wilson to say that she had found her books a real comfort when I was ill because it made her realise she wasn't the only child who had to cope with problems. Jacqueline Wilson wrote back to say she was writing a book about a character whose mother had BC and would love to meet her and have a chat so we met up with her at Carluccios, she was lovely and the Coptettes felt very celebby as people kept coming up to her for autographs. She gave them both books with lots of lovely pictures and comments scribbled on them which we still have. I can't remember what the book was called though, it must be one of hundreds by now

gigs Hope you are feeling better. Important to rest.

smee Hope Onc appointment goes well, I am sure nothing to worry about.

Ash I am sure they are used to swallowed dentures, it's when the dentures, or other surprising items Blush find their into other parts of the anatomy Grin Niece is a nurse, they all have stories.....

malteserzz · 13/05/2013 15:15

Hi all
Been shopping today and feel quite normal, whatever normal is ! Haven't cried anyway though obviously still thinking all the time about having cancer. Very weird as I feel so well just tired.
Probably will be sobbing later it's such a roller coaster

Copt how lovely of JW my dd used to love her books
Ash I hope you get to go home soon
Smee it's only natural to still worry but I hope everything is fine, good luck

I've ordered some front fastening bras which were recommended by somebody on here last week sorry I can't remember who but thank you. I've also got some button up PJs is there anything else I need to buy for my lumpectomy op? Have only ever been into hospital to give birth and I'm trying to avoid the doom of google !!

MaryAnnSingleton · 13/05/2013 15:18

how lovely about Jacqueline Wilson copt !
I used to go to the Lion & Unicorn a lot to buy books for T - fab shop. I used to work in the Waterstone's across the way in the olden days,when it was first opened (in fact before it opened) and used to be in charge of cookery and art -in those days we had a monthly budget each and bought all the stock & new books for our sections -those were the days.

amberlight · 13/05/2013 15:22

Malt, I found I was in and out of hosp so quick that I barely needed a thing. Hopefully you will find the same.

MaryAnnSingleton · 13/05/2013 15:26

same as amber - was given the option of staying in overnight but wanted to go home,so didn't need anything (I'd taken some baby wipes,a book and a bottle of Dior SunSweet spray -a non alcohol based scent which was to cheer me up)

malteserzz · 13/05/2013 15:29

Thanks I'm sure they said overnight but maybe they said possibly overnight Grin
A friend of a friend is back the same day as me as after hers they found another area of concern Hmm we both wish they'd just take the whole breast to be sure
Lovely and sunny here now but windy I'm just waiting for ds to come out of school

HerNextDoorAt21 · 13/05/2013 16:00

Wow in have read about 40 pages to catch up with you lot ! You sure can chat ...... Hugs to everyone especially Asho for enduring over sharing woman lol

I have had one of my drains out !!!! Yayyyyyy !!!!! It really felt like a breakthrough.

Went yo see occupational health this morning and will be rejoining the workforce from end of may. Two days a week for 4 weeks then 3 days a week for two weeks then full time .... Though wont really be back properly til
About September with holidays etc

jchocchip · 13/05/2013 16:45

Hurray for the drain hnd just tootling to Leeds for a course and have read but no time to post really! Lovely and sunny here now too. Waves to everyone. Have toblerone for trolley... :)

trice · 13/05/2013 17:35

My lovely friends have taken me out for the afternoon in a wheelchair. It felt a bit surreal but great to get out of the house and out in the sunshine .

Dd has returned all sweetness and light having had a lovely day at school and winning a new swimming badge. I am glad but bemused. We have agreed to try to be calmer all round tomorrow morning. Phew!

malteserzz · 13/05/2013 17:49

Trice isn't that just kids for you ! You worry yourself silly about them and theyre fine 5 minutes later !
Glad you managed to get out for a bit

MaryAnnSingleton · 13/05/2013 17:58

that's good to hear trice !
hnd hooray for drain out - hope the others come out v soon.

smee · 13/05/2013 18:04

phew, Trice. Glad DD's okay. Good you got out into the sunshine too. Smile

Yay for you HND. Can't believe how long you've had drains in. Hope you're celebrating. Smile

Any news from Ash? Is she still stuck??

Malt, you need things on an iPod - podcasts, or music or audiobooks. I never seem able to read much in hospital, but take a book in case you can. Definitely ear plugs in case you get a woman next to you like the one next to Ash, lots of nice wipes to keep you feeling fresh. Take a mini fan in case it's hot. Throat sweets to suck on in case they put a tube down your throat while you're out and you wake up with a sore throat. I always take some gum too, as it's easy to freshen your mouth up with that than get to the bathroom to clean your teeth. Maybe some little oranges or something sweet, but sensible for when you wake up.

Lovely JW story, Copt. How nice of her. Smile

MAS, have you really finished the book already?? Blimey, treats for you. How's this lot of chemo going? Hope not too bad. xx

Are you feeling better, Gig? Copt's made me buy some of that new dairy milk and candy choc. Will throw crumbs on the trolley for you. Grin

Onc was okay, so phew and hooray for that, though it was a bit like being in a Monty Python sketch. I go to two different hospitals who never seem to communicate, so today met Baby Onc, who did general chit chat, then asked when my last mammogram was? I said well I don't have them any more as have no breasts. She said, ah but you do have a breast, I said nope I really don't. Pointed out elective mastectomy. She looks embarrassed and says oh yes. Then asked when last period was, so I say I'm post menopausal. She says really, how do you know? I point out they've done blood tests. Gosh she says, how interesting. Then says you're 45, I say nope am 47, and so on. I know they worry a bit less about us as time goes on, but you'd have thought they'd get the basics right. Grin

Might have some Wine tonight to celebrate. Will raise a toast to us all. Onwards. Smile

MaryAnnSingleton · 13/05/2013 19:27

Oh hooray for you smee !! But Wink at the lack of communication!
A glass or two definitely !
Am just going through my drawings and tweaking and making sure I'm happy with them.

This chemo round is ok so far, felt a bit sick this morning but nothing untoward.Smile

Gigondas · 13/05/2013 19:44

WineWineGrin For smee but bah about junior dr issues.

Glad chemo ok- how are your hands? Mas

Sending more brainwaves to little Copts (and love the jw story -big lion and unicorn fans here) .

Trice- dd was acting up at school when I was in hospital a few weeks ago. I think being too nice is not always the way go as normal good.

Feeling very weak and tired so hoping tomorrow better. But be warned, I am getting in a Eurovision mood...

feast your eyes

trice · 13/05/2013 19:53

I love a bit of euro vision gig.

malteserzz · 13/05/2013 20:01

Ooh when is Eurovision ?? Is mumsnet playing up for anyone else I keep seeing blank posts it's a bit freaky

Gigondas · 13/05/2013 20:04

It's on Saturday. Heats this week I think. No slower than usual malt .