Spoons! Support for those with chronic pain & fatiguing illnesses

[Grockle]

Spoon Theory here

Thank goodness for online shopping too!

Arb, I'm so glad your inlaws are so helpful.

There were pomegranate seeds in my flatbread which is actually why I chose it.

I've sort of started eating a whole new way and am over on the paleo thread in Food. It has been a revelation.

But YES YES YES to preprepared food. Let go of the old perfectionist ways and bring on the easy option.

We are disabled. Some more seriously than others, but still.

Would any, I mean ANY of you, say that a disabled person was unreasonable for buying their cheese pre grated when they have arthritic hands? Would you judge an elderly person for getting pre chopped carrots?

No!

Let us rise together,Spoonies, and claim our preprepared food with both gnarled, hurting hands and a heart of gratitude!

Building, has the pale diet helped? I have thought about changing my diet but my rheamatologist said there is no evidence to show that it helps so it's best to eat what I want to eat, within reason. And since I don't really eat meat or fish, I don't know what I'd eat on a pale diet.

Yum, Arb!

paleo not pale...auto correct

Stands up and grabs buildings hands and sways....
I'm with you sister :)

I have tried paleo/briffa and it does help me which is whyia m so cross with myself for eating crap.
It is crap and makes me feel crap.
Today I have had;

Custard creams
Chocolate
Apple
Roll and butter
Digestive biscuits
Oven chips, cod portion and sweetcorn
More chocolate
Fruit tea
Coffee and skim milk
Water

Awful :(

Sings

Pre grated cheese is ace.
I am allergic and hate having to even touch the stuff.
Pre chopped onion is pretty cool too.

I'm not posting my food here by the way I will just have a nosey at everyone else's instead :o I know it is crap but I am not up to challenging it right now.

Have to say though I have started to notice bad reactions to some crap food. Not like allergic reactions but for example I drink fizzy drinks so rarely now and when I do indulge in even a can I get a really sore tummy and retain water ie I can't pee! WTF! So at least it is helping me stay away from some things not chocolate though, I will never ditch that as I genuinely don't want the side effects. I don't know if it's the CFS that is making me more sensitive to it.

Paleo has not helped fatigue symptoms but it is more satisfying to eat and I'm losing weight.

Am excited about flavour...made a Thai fish stew which was yum.

Think if you don't eat meat or fish it wild be v v hard. You are doing okay with food, Grockle, as it is so hard for you to prepare.

belle is a later comer to the singing but joins in

listing food is a fab idea.
today
tons of coffee
2 breakfast biscuits
3 satsumas
yoghurt
cous cous and roast veg
tuna pasta bake
1 oreo (i dont even like them)

hence after reading all of the above i have put 2 stone on in 18 months..

oh and the roast veg was in a tin foil tray all ready preapred as was the cheese on the tuna pasta bake...im all for stuff that saves time and i HATE grating cheese....

Badvoc... your food today sounds pretty much like mine but I don't eat the meal, just all the nice stuff I love reading what other people eat. I'm so nosey.

I'm in a rut too. I have joined a cookbook reading group thread to hopefully inspire me to cook again. I ordered frozen berries so that I can stick them on top of a dollop of greek yoghurt & eat it for lunch at work - it's lovely because the berries have defrosted by then but it is all cold & I feel virtuous eating it!

I also need to drink more - I have made a flask up for tomorrow and put an apple & a couple of satsumas. If I eat plenty of fruit & veg and drink enough, it means I have no space for crisps & chocolate. Hopefully.

LLETZ = laser burning pre-cancerous cell changes (and in my case, also early cancerous cells) off your cervix.

Not nice!

As well as pre prepped food - have any of you got a Tefal chopper? (That sounds wrong, like robot's rudey bits!!)

I got one for Christmas, and it's BRILLIANT.

No more hurting my wrists and fingers with knives while slicing veg / grating cheese / grating stuff for coleslaw.

All you do is shove the veg in the top and lean on a HUGE button.

Never mind pre chopped onion - FROZEN peppers and onions are the way to go...

Crap food alert : Today's food...

KFC
Indian flavoured oven chips and spare ribs...

Hello, I am posting here out of sheer desperation

I have EDS hypermobility type and I am absolutely exhausted.The last few days I have barely even managed to eat as lifting food to my mouth is exhausting.

I feel overwhelmed by everything (I have 4 disabled dcs and their needs are so great I cannot cope at all and it is making me ill) I have been on 5 courses anti b since dec (chest inf uti mastitis etc).

Iam so run down and miserable and cannot see a way out. I wake up exhausted and I am at the end of my tether.

Welcome Ariane5. I am hypermobile too & it casues various problems. It must be a nightmare for you with 4 children who have such great needs. Do you have any help or support? If you happen to live near me, I'd be happy to help out if I can. I really feel for you but am fortunate that my DS is big enough & able enough to help out a bit.

Yikes, Couthy, that sounds scary & painful. I don't have a chopper but I do gate cheese using the food processor. No bleeding fingers or hurtiness. I love homemade coleslaw. My freezer is full of chopped peppers and diced onion. Best realisation ever!

Ariane5 welcome, we are here for you to rant away and vent any frustration...its lovely to have you but sad you had to join us.... im with grockle, if you are near by ( we are opposite ends of the country Grockle and I) then if i could help i willing would like to.

chopped onions and peppers, why havent i discovered this.........every meal i make nearly has diced onoin or peppers!! its amazing what you can do with them.. and Grockle the frozen berries are amazing arent they, i have it with yoghurt too...mmmmmmmmmm

DD and her friend have slept ( i think yay) i havent heard a peep, unless they have chocked on dry shampoo, and hair spray fumes that were escaping her room at 10 pm last night. im chuffed really because she has been desperate for this friend to sleep , but the girl doesnt usually sleep out because she gets home sick!

today they are going to town (by themselves..well im mums taxi) my little girl is getting so grown up! so what to do withmyself, maybe a little snooze!! or maybe i will be de clutttering her bedroom in preparation for my neice sleeping tonight...dont you love school holidays, im never sure who is sleeping where...think i need to do a register!!

Lackadaisical I feel I've much in common with you. Diagnosed lupus 17 yrs ago now fibromyalgia last year. Taking plaquenel diclofenac. Terrible fatigue and joint pains especially my tendons at the moment. Archilles in particular. Feeling sooo low at the moment due to relationship breakup and I live alone. Somehow have to start building a social life again and support network as the thought of being alone the rest of my life is scary.

How to achieve this when you have little energy for anything and you struggle just to go work I just don't know

Oh btw have any of you tried acupunture? It has helped me somewhat and I'd recommend giving it a go

I only really have support from dh, sometimes my mum helps but more often than not she is busy with dsis who has a lot of issues.

We are in nw london so not sure if any of you are nearby?!

It has been the last year that has pushed me over the edge, having ds2 and then dd2 getting diabetes has been too much for me to cope with and I cannot manage everything.
Have hurt my neck and back this week and that's making it difficult to do anything.
I'm just so tired every minute of every day

Hi ariane5, I'm sorry to hear that your having such a tough time of it at the moment.

Today is my tired day, I even got told by a colleague that I looked awful today, nice. not 100% sure I feel about that

A teaspoon of cinnamon mixed with a teaspoon of honey in a bit hot water is really good natural energy booster btw.

Hi Ariane, I've seen a couple of your threads. You've got such a lot on your plate. I'm glad you've joined us, we are a lovely bunch if I say so myself :o this group has helped me so much.

Welcome Brightly, sorry about the breakup, it can't be easy on top of everything else. Take things slow WRT social life - I am really desperate to start seeing friends (I've actually made a few new friends lately which is amazing for me) but I know I need to pace myself. It's a fine line between exhaustion and isolation :(