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Tamoxifen 34 *the power of Sauron*

989 replies

MaryAnnSingleton · 29/03/2013 18:35

new thread !!!

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Gigondas · 22/04/2013 21:01

Passing Wine and will do turn on box next to Gracie.

amberlight · 22/04/2013 21:04

Budge up a bit...room for one more on the edge of the paranoia box for notJenkins.

Ooo, Wine
Excellent

Evening all.

Gigondas · 22/04/2013 21:06

Evening amber- tough day by sounds of it?

amberlight · 22/04/2013 21:21

Gigs, aye. Not one of my best. Tomorrow will be better.

MaryAnnSingleton · 22/04/2013 21:21

am hopping on the box too notjenkins- hope it's ok tomorrow x
topsy my dad used to help me with my creative homework, sometimes too much,so that it became more his project - he was brilliant at everything too- I always felt a bit uncomfortable about having help.
I tend to leave the boy to his own devices.
We have been asked to supper at v nice friend of mine's on Sat. but I have declined sort of instinctively as I really can't face it- maybe if it was just her and her dp but she was inviting other,people we know,but I just feel as though I want to be at home. I am very fond of my friend so didn't fib and said I was feeling a bit weird and was sorry...she is fine about it and we'll meet for coffee instead which is copeable with. I hope bcn rings back or emails as I will find it hard to ask to see her- I feel as though I'm being a pain.

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MaryAnnSingleton · 22/04/2013 21:22

poor amber - it'll be better tomorrow am sure

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notJenkins · 22/04/2013 21:27

Hope tomorrow is better amber

ned and I are having lunch tomorrow so my mind will be taken off my appointment.

Thanks ladies the paranoia box is all squished now

MaryAnnSingleton · 22/04/2013 21:31

have a lovely lunch with dear ned - report back on what you ate !

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amberlight · 22/04/2013 22:56

MAS you've made a wise choice.

KurriKurri · 22/04/2013 23:35

Good luck for results tomorrow NJ, and enjoy your lunch with lovely Ned.

amber Brew and Biscuit and feet up after bad day, am sure tomorrow will be better.

MAS - very sensible, no need to force yourself to do things you can't handle at present. You will enjoy your coffee with your friend another time.

Am feeling v. achey tonight (strangely in my armpit Confused) But have eaten a quorn sausage and some jelly today without being sick - so progress on the food front Grin

smee · 23/04/2013 00:17

Is there room for me? I'll do the night shift on the box as am still working. Really annoying, but has to be done. The curse of being freelance. Will be thinking of you all day tomorrow though notJ. Hope it's the best of news. Lunch with Ned sounds like a fab distraction. Smile

MAS, sounds sensible to me too. Coffee sounds sensible and lovely too. I think you should call BCN again tomorrow. After all, that's what she's there for and as I hope you know, you're very important! Smile

Amber, hope tomorrow dawns brighter for you.

Right, going to do a bit more then try and get some sleep. I will put something hefty on the paranoia box while I sleep though to keep it in check. zzz all. You especially, Gig. Hope you're sleeping well. xx Smile

Copthallresident · 23/04/2013 01:06

smee Don't worry I can be your something hefty on the paranoia box for the night shift as went to bed early because tired but still can't sleep, so I may be on it for sometime. Good thoughts for Onc tomorrow nj and for nice Lunch. Are you going to be looking out to sea again Envy

Good wishes to all for good days tomorrow. now going to watch something funny as distraction, too late to take sleeping pills as don't think little COpt will appreciate zombie breakfast service .

NedSchneebly · 23/04/2013 08:18

Morning all Smile

Hope everyone slept well eventually? smee did you get finish at a reasonable hour? copt hope you got back to sleep OK. gig how was your night?

Yes, NJ and I are meeting by the sea for a spot of lunch today - very much looking forward to it Smile And its sunny at the moment as well, so should have a good view out.

Must encourage the boy to get dressed, just wanted to pop on and say good morning, make Brew and scatter breakfast goods on the trolley as appropriate.

Lots of love to you all x x x

MaryAnnSingleton · 23/04/2013 08:18

hope you're feeling better today kk - I love jelly when I'm feeling poorly,that an something salty restores equilibrium.
T off to see Wicked in London this evening, so not home until after midnight...special drama and music trip with school.
Thanks for words of comfort - will look forward to coffee instead with friend.

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MaryAnnSingleton · 23/04/2013 08:19

smee you were up v late - hope you aren't feeling too exhausted this morning xxxx

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sparklesunshine · 23/04/2013 08:40

Welcome back Gigs! I don't understand why hospitals care so little for sleep - it's where you do most of your healing. Hope they've given you enough blankets even if they aren't duvet fluffy.

I'm happy that schools are much simpler in Canada. They don't publish results so people go to the local unless they live in an absolutely dire neighbourhood. So far, my big's school seems good. She was apparently intimidated the first day but over it the second. Both girls are being very brave with all the changes, although the little has a major tantrum / freak out every couple of days just to keep me on my toes.

It feels great to be home and to be starting again with some freedom. I am so happy not to have any more court looming over me, and am hopeful the distance means he doesn't start up new rounds. I've had so much stress over the past year that blooming cancer feels like a relief, although I'm sure part of that is not fully realising what the full treatment will involve. I don't really care if I'm in denial right now because its getting me through.

I have my first Canadian oncologist apt tomorrow, which is fine except they may not have epirubicin. Seems bizarre as it's one of the standard set in the UK. I really don't want to change what I'm taking mid-course as even with the infection this has been manageable.

I'll happily sit on the paranoia box for people tonight, although I think it's morning where you are. Hopefully things look better in the light.

KurriKurri · 23/04/2013 10:39

Morning all, hope you managed some sleep last night Smee and haven't over done it xx

Good thoughts again for NJ, and ned - have a lovely lunch together (can you let us know what beach, then I can imagine you there, and feel jealous Grin)

Copt - hope you also managed some sleep and don't feel too zombified this morning.

MAS - T will have a lovely time seeing his show - Wicked is supposed to be very good I think Smile

sparkle - good luck with your appointment tomorrow. I don't know what other on here had, but I only had epirubicin for half of my cycles, then changed to a different set of drugs, so although epirubicin is standard here I believe it is often not used for the entire course of chemo, so I wouldn't necesarily be too worried about a change, but certainly you will be able to have a good chat with your oncy about it all.
I'm glad you are feeling settled and I think you are very brave to have taken a big step and got yourself away from all the hassles over here, - that's good going when you are feeling poorly and dealing with DX. Your girls will soon find their feet Smile

I feeling a bit less rubbish today - though still in bed - if I get up I am exhausted after about ten minutes, I hope I can throw this off by friday as DH and I are booked to go to a nice lunch with a group I belong to, which is all paid for - would be a shame to miss out.

Gigs hope you are snuggled up and comfy and feeling little less battered today xx

waving to all.

AshokanFarewell · 23/04/2013 10:44

Morning everyone,

Popping in to take my turn on the paranoia box and offer round some chocolate digestives. We are getting a new oven today so hopefully will finally be able to do some baking soon :)

Have a lovely lunch ned and notJ :) I am also thinking of you today notJ and hope you get the best possible results.

KK glad you're feeling a little better, any food you can get in will be good. I find mashed potato with plenty of butter and salt is quite good when I'm feeling sick.

amber I hope you are having a better day today :)

gigs how are you feeling today? Still thinking of you lots.

sparkle glad the little ones are settling in alright, tantrums aside, and that you are feeling better to be home. I hope the onc appointment goes well tomorrow and fingers crossed they have the drug! :)

MAS glad your friend was understanding and coffee sounds much nicer when you are feeling weird

Waves to everyone, hope cop and smee got some sleep and aren't too tired this morning!

AshokanFarewell · 23/04/2013 10:46

Cross posted KK fingers crossed for a full recovery by Friday!

HerNextDoorAt21 · 23/04/2013 11:24

hello everyone. I sm using the internet cafe in Next while DH trawls the charity shops, was going to have coffee with topsy but she went back to bed .... how rude !

mas sorry to hear you are a bit below par, you need to organise somethign nice for yourself .... Im feeling a bit rubbish too and when i get paid I am going to book an Indian Head Massage .... never had one and want one !

amber keep on trucking, your posts and success give me so much hope for my wee DS

gigs I am gad to see you posting a bit more and can only imagine how you feel ..... I could not function very well at all after my surgery and felt useless. I had a mystery HUGE bruise on my right hand that was not from injections as there was no puncture wound ,,,, topsy thinks they dropped me off the operating table on stamped on me for being a nuisance !

nj and ned enjoy your lunch, we need to know where youa re and what youa re eating !

everyone else, hope you are having a happy Tuesday

As for me ...... News from the boob ............... The surgeon seemed happy on Firday that the shape and form of the new booby was good except for a channel above where the tissue had broken down and come away. The vac pump will stay until the tissue has stopped breaking down (unknown amount of time !!,). I spoke to her about the next stage and this will be the reduction of my now big old booby. As this is not life threatening, I have decided to wait until after Christmas to get this done. There will be a third operation to do lipo modelling on my new reconstructed boob. They will take tissue from my tummy and inject it into the channel to make a more natural boob shape. I told her she can take enough flab for everyone and leave me a size 12 !!!! I have to admit it has been a struggle the last week or so to keep my chin up carrying this bloody pump about !!!!

topsy will see you for a cuppa after I see the TV Nurses this afternoon

Gigondas · 23/04/2013 12:50

That's good progress being made but sorry pump still on hnd. And Smile to random bruises everywhere- I think you are basically a bit of butchers meat in there!

Topsy- you having lazy morning? My bp gone sky high as had hassly morning with dressing change, overlong visit from my dad( I know he means well but randomly turning up for 2 hours and isn't easiest company is too much) and got ct scan later so can decide if need extra radio later. But am up and dressed. Also notjenkins we can compare scars on neck as mine about 8 cm on base of neck.

Wishing notjenkins and sparkle luck Today. Hope mas and kk feel brighter.

Going to rest now but back later x

MaryAnnSingleton · 23/04/2013 13:07

hnd lugging the pump around must be a huge pain - hope you can have a lovely head massage- I absolutely love it when hairdressers do one,it's heavenly.
gig well done for being up and about - hope CT goes well - the Seasalt boat necks might well cover a scar,though you'd need to buy a fitting size as mine is a little loose around the neck area (Armor lux are much tauter) It's a v lovely,light cotton though.
Get better in time for your lunch kk !

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notJenkins · 23/04/2013 19:11

Good news from the onc today. Lovely lunch with ned and I am still stuffed ! Will be back later to fill in the details after children are in bed.
Thanks for all the good wishes today.

KurriKurri · 23/04/2013 19:12

yay for good news NJ Smile - and good lunch of course Grin

HerNextDoorAt21 · 23/04/2013 19:49

X posted with nj ..... I LOVE good news xxxxx