Tamoxifen 34 *the power of Sauron*

[MaryAnnSingleton]

new thread !!!

Mas, x posted. I hope your friends get good results. Your day in London sounds fab. I'm off to see the Bowie exhibition at the v&a with my lovely dd. I'm really excited

www.dailymail.co.uk/health/article-2255492/Bile-acid-diarrhoea-For-40-years-doctors-said-I-IBS-In-fact-hormone-problem-cured-simple-pill.html Apologies for linking to a Daily Wail article, but not sure if this is any use either, Ash?

Just woken up- body clock completely weird thanks to steroids but pain better.

Ash- that sounds horrid. I know I bang on about it but aloe gel helped me (I had radio on my bum then chemo so also had ring of fire experiences). KRep on at unit - did you ever make a complaint ? There should be an alternative number for your nurse too.

Mas - your day out sounds lovely.

Night - about v and a.

Kurri love - come back and update us all.

Am going to rouse myself to get up and go to nice bakery- will bring back snacks and .

It is so nice to be pain free- I hadn't realised how long had been grinning and bearing it .

yes about V&A - also would love to see the Pompeii but only when less busy.
Bepanthen seems a good cream- I used it on my tattoo

Thanks everyone :) I got an emergency appointment with a GP and she thinks it's probably got a fungal infection because the skin is so damaged, I had that before, and Dr W said to expect lots during the chemo. I'm on a course of tablets and cream. If it's not at all better tomorrow she will prescribe antibiotics too in case it's bacterial. I'm also allowed to try using ondansetron to slow my bowel I'm sure Dr W will have something to say about that but I'm not seeing him until 1st May!

I finally got through to the clinic nurse and I'm not having the infusion. In asked why and she said he has decided to be nice to me I'm a bit peed off because I have done everything he said and made it past day 10 on the tablets so I was expecting to have the infusion. Hopefully that doesn't mean there's something wrong but if there is I won't know for nearly a month!

amber thanks for the article, I shall have a read.

gig is that aloe gel internally or externally? The thing is I don't technically have diarrhoea, just that normally the stuff that is coming out would be going into my colon to be further processed and stored but instead it goes into my pouch which hasn't fully learnt how to cope with it all yet! Eventually it will apparently learn how to behave almost the same as a rectum. I'm not sure how but it sounds quite clever. I'm glad you're now pain free :) although a shame you've been suffering so long.

Also I did make a complaint and it's being kept on file until after my chemo has finished, or until he behaves horribly again.

MAS thinking of your two friends :( I hope they both get good news.
it sounds like you had a fabulous day out. I love Wahaca. I got one of Thomasina Miers' recipe books for Christmas. What did T make of soho? And thank you, hug is very much appreciated :)

thenight I didn't even know there were so many bum creams available until this happened. I didn't get on with Bepanthen but it is highly recommended. My fave is Coloplast Comfeel which is a stoma one so quite tough!

grey yep I'm in UK. My very brief backstory is that I'm 22, had my colon and rectum removed for bowel cancer caused by a genetic polyp problem, now having chemo, just finished 3rd cycle of 8. And I have an internal pouch where a bit of my small bowel is made into a little pouch to replace my rectum. I have a bit of a love/hate relationship with it! :) how are you doing?

notJ I do indeed have sudocrem in my bum cream arsenal, it is soothing but not as acid proof as others. I think if I mixed all the creams together I could create the ultimate bum cream

Anyway, am in a much better mood now so shan't bum anyone out any further! I hope everyone is having a fabulous day

Glad you got some Gp help- fungal infections are a bugger as my mum had tons when she had tongue op/radio.

I drink the juice (mix it with something nice as it is evil tasting stuff). It helps calm inflammation in the digestive system which you are going to suffer doubly with cos of your surgery and op. it also seems to moderate bowel movements (dont ask me how) ie slow diarhoeaa and help constipation.

Ooh, I shall double check with Dr W and then give that a go, thank you gigs how are you doing?

I've also just had a PM from a lovely poster who had seen my post about my rash and has recommended another cream which I shall try after the anti fungal cream

And I've phoned another colorectal nurse to whinge and she is speaking to my surgeon and Dr W tomorrow to find out why my infusion has been cancelled and also to see if there's any other medication they can give me. Finally a result she's so lovely, I'm going to try and sneakily swap nurses!

I am doing ok- pain meds working well so being careful not to over do it but have asked dr about dropping the codeine as I am wary of its side effect and if I don't feel need, why take it?

Trying to do some ou work too .

Hi everyone. Just popping in on way home. Glad you have found a nice nurse, ash I had a good day at work, managed to survive on my own.
Out tonight with friend I hope. If not will go for a swim. Wonder how smee is getting on with the toucans!

Hello my lovelies

Have been AWOL for ages (only because of work, I miss you all) but I got an email from the lovely sand ripples that mentioned there had been a kerfuffle here. Just wanted to add my support for the thread and the fact that it offers real support but also lots of fun. Let's face it, we all ned a bit of that to stop us going bloody mad.That was a real godsend for me and still is. I don't want to lose KK, Topsy or anyone else. Nor you,ginger, if we can help. Anyway I don't want to rake it all up again, but just wanted to give a vote of thanks for the support that's available here, every day.

I'm off to Whitby til Tuesday. Hooray! I wil have a paddle for each of you.

And a Hooooooge wave to sparkle rainbow!

Will report back in when I've shaken the sand out from between my toes...... X

Hooooooggggggeeee wave back to Sometimes! ......and big hug!
A very dear friend managed the development of latest Wahaca in London, so am thrilled to hear you love it,cos we love him and his family very dearly, actually he is married to my very best friend in the world, you know the soul mate kind of friend, who somehow knows you need them before even you know you need them.

Fairly quietly tonight!

Still no sign of KK :( I hope old lady dog is doing well

gigs indeed, no point taking more tablets than you have to! Especially if you have found other ones that work for you. I'm on codeine specifically because of its constipating side effects

jane I hope you're having a nice evening with your friend or swimming. I don't know if we will hear from smee until she gets back, did we ever determine where she was off to?!

sometimes have a lovely trip to Whitby! This thread is just fantastic isn't it.

sparkle that kind of friendship sounds lovely, and a good contact to have too, Wahaca really is great. Is that the Southbank one? I'm gutted I got ill before I could go there, I work(ed) in Whitehall, so very convenient. Might suggest a team lunch there if I ever make it back to the office!

ginger if you're reading still, I hope you are feeling better now as it sounded like you had some negative feelings you wanted to share the other day. Please do come back if you feel we can help at all, you'll see earlier I had a massive whinge and everyone was super lovely!

I'm having a productive day, I've sent off for some fabric samples for new (blackout) curtains for my room and now I'm looking at fabrics for curtains for our VW, which will soon be ready to join the hippy bus convoy

I hope everyone is warm and cosy, and having a lovely evening :)

Didn't hear from my friend so waited 20 mins or so and then went for a swim. It was her idea to meet but she didn't reply to text- no doubt will find out later if all is ok. Decided that the swim is what I have been missing! Will go to Mums tomorrow after work and stock up the freezer. Will take course work with me and see how it goes. Nighty night!

We tried to get into the South Bank Wahaca in the summer but huge waiting time -we usually go to the Chandos Place one - I am addicted to the sonora salad and always have to have a margarita..dh and T love the various street food things- I love the beans with cheese too and the green rice. Think T really liked his walk around Soho - he loves London (London born boy !)
Hugs to all and have a wonderful time in Whitby sometimes xxx

It was the Southbank Wahaca, looks fabulous doesn't it!

Lovely sunny day here, thinking of taking the children out to lunch, to ease the fact that we need to do the supermarket shop later!

Just popped in to say that the Bowie exhibition was awesome . Gig if you're back on your feet again after your ops before it closes in august I'd be happy to take you as am a member of v&a and can take a guest in (welcomes excuse to go again )

Afternoon all am back and refreshed.
Old lady dog is OK - although she has a problems with her ears which has flared up overnight, so that might have been making her wobblier than usual. We have a supply of stuff from the vet luckily so I can treat it straight away. She is looking at me hopefully because last time I had to clean her ears out and give her a tablet, she got a little plate of scrambled egg to encourage tablet taking

Thanks for all your lovely PMs - I wouldn't desert you permanently - you are all far too lovely, but I needed a little break - RL was catching up with me a bit (actually I hate saying RL - because this is part of RL, but you know what I mean)

Hope you are feeling more comfortable today ASho, chosing fabrics is fun, - I am of your VW.

Lovely to see you Sometimes, - we missed you, have a great time in Whitby, don't get blown away!

Hope you are feeling OK Gigs - quite right about the codeine, if you can manage without, or perhaps with just taking it at night or something, then you'll be able to see off the bunging up effects.

I do sympathise enormously with bowel probs. as I have had a lot of my own (I grew a watermelon sized Fibroid on the outside of my uterus a few years ago, and it stuck to everything it could including a large section of bowel, which they spent 9 hours carefully untangling + doing a hysterectomy.) But bowel never really recovered - I often feel as if I've been kicked in the back by a horse when I go to the loo. And of course chemo just added to it all! So I have no problem with bum and innards chat -and I think it helps to normalise it and make it all less 'taboo' if its freely spoken about.

I was talking to friend yesterday and she said that apparently when they send out those bowel cancer tests in the post (after age 60 I believe) 50% of people throw them away and don't do the test for whatever reason, so a lot needs to be done I think to get people to be more pro active about health.

Bowie exhibition sounds great TheNight - I love Bowie.

Anyway - that's a big old waffle, - sending love to all, I have read your posts and see there have been some nice outings etc. - hoep the rest of Easter hols goes well and good luck and love to all awaiting appointments/results.

Yesterday we had sleet and icy winds, today we are just down to icy winds -so that's an improvement

Hmph I typed a massive long post then Mumsnet went down and it got lost! :(

I shall try again...

Welcome back KK and I'm glad old lady dog's ear problems can be treated easily, I'm sure that will be contributing to her wobbliness as it certainly does in humans, will she be getting scrambled eggs this time? I hope she feels much better soon.

Can't believe so many people don't take the tests, mind you I was mortified when I had to provide a "sample", especially when it got "lost in transit"! Lucky person who finds all the lost samples...

My dad is quite looking forward to his postal test and is hoping to send it directly to Jeremy Hunt!

I'm incredibly prudish about toilet business. I still can't say the word poo in relationship to myself. I tried to convince my ex that girls didn't poo and also used to wish they'd invent a way for people not to have to go to the loo anymore - I was worried the universe had answered that wish in a rather cruel way when my nurse told me I needed an ileostomy and she wasn't sure if it would be temporary or permanent. Luckily only temporary as it wasn't the nicest, although a darn sight less problematic than the pouch has been so far

Ouch at the fibroid! and sorry to hear it is still causing problems.

jane I'm glad you enjoyed your swim and I hope all is well with your friend.

MAS the beans are so yummy. Glad T enjoyed the trip. Any word from either of your friends yet? Sending both lots of good wishes :)

sparkle enjoy your lunch out and I hope the shopping goes smoothly!

I'm still in bed having only recently woken up. Don't want to speak too soon but so far the magical cream combo seems to be working, pain has changed to a more healing kind of pain! :)

Have a lovely day y'all!

Thanks nightisyoung- I may well take you up on that as hope to be up and about in June.

Kk- lovely to have you back and hope meds help old lady dog. Sorry everything getting on top of you- I better hurry up and watch the next Howard's way DVDs to send on.

Have been up and about for proper walk to town- coffee,library, lunch out and trip to cheese shop (so Brie and other sloppy cheese on The tray).
Resting up now as hip is so stiff- I feel about 300 years old. But so far managing to stay on lower codeine dose.

Ash- resting up sounds like what you need. I am pleased that more comfy now with cream.

Mas- I work near Chandos place and love wahaca . Not so good on margaritas tho .

Right going to try and do some more ou work.

ash I am squeamish about bottoms and like to pretend that girls don't poo I found myself in great discomfort trying not to mention the word diarrhoea to onc.
I find public lavatories a bit irksome but put that down to OCD,though am a million times better nowadays.
KK welcome back !!! glad old lady dog is feeling better,bless her.
Dh and T now lunching at Watford Gap on their way up to MIL's and I've eaten half a Lindt bunny.
News from friend isthat she has 2.9 cm tumour,grade 2 and according to ultrasound no nodes invasion - she's not having any surgery as her condition (Friedrich's Ataxia) is severely debilitating and surgery would make her even less able - so is going to have tamoxifen and will be seen in 3 months. Does this sound very weird to you ? I am worried but can't say.
Off to do some work now.

MAS - I am slightly surprised at now surgery, is your friend having any radio therapy? Its good there is no node invasion, so no chemo is probably the norm there, maybe it is just finding the balance between zapping the cancer and not worsening her other condition. In all honestly i would be slightly worried too for her, but am sure her oncy team know what they are doing and have discussed it well with her.

Gig - cheese shops are great, we used to have one (called the Mousetrap) in Norwich, but it is closed now - there is a market stall though.
Actually there is also a man with a stall selling home made soaps - those sort of big blocks of soap, which look very like cheese. So much so that he now wears a T shirt which says 'No, it's not cheese'

Howards Way would be great whenever you finish them, - I need my fix of Ken

Hope the hip settles down with a bit of rest.

Asho - I like your Dad's style

It must be doubly awful to deal with treatment though if you are squeamish/shy about toiletty stuff so you are doing brilliantly.

OL dog has been very sick, but has now curled up in a chair and is sleeping. maybe ear has made her sick, I have given her a pain killer and her drops.

I hadn't asked her about rads- I think chemo might be too much for her poor body though. Am sure she is in very good hands and she seems much relieved to know what's what rather than the limbo of waiting.
My secondary friend is being given capecitabine like me which I really hope will do the trick for her.
Poor OL dog - maybe her ears made her feel dizzy hence the sickness ?
All this talk of cheese makes me crave it a bit- will definitely have a wander by the cheese counter at Waitrose later. Like the soap man's t shirt :-)

Mmmmm cheese. I spent years avoiding cheese and butter and anything high fat when I had gall stones. They seem to have settled now - never managed to lose the weight for surgery, in fact low fat diet I blame for putting even more weight on! I have managed to lose some weight eating cheese and haven't had a gall stones flare up for years... caught train so off to see Mum. Have some reading and assignments and crochet to do so mustn't mn all the way down. Happy weekend everyone

Hi Kurri - Poor old lady dog. Big hugs to her, I have just finished clearing up after a toilet emergency my old girl had, so we can sympathise.

Lunch out, at Sainsbury's - posh us, followed by the shopping went very smoothly. Ds now incapacitated on the settee, but he was having fun until the pain levels got too high. Speaking of posh, I did that BBC survey last night, when combining me and dh, we come out as established middle class, however dh on his own is technical middle class whilst I am "Elite" what can I say? how about what a load of rubbish!!!!!!!!!!

Hello kk does this mean the grand tour to Norwich is off? If so, can I suggest re routing through the wine regions of France - with great big lounge seats to avoid DVT on the long drives.

Envy everyone's grand artistic / cultural / gourmet outings. We don't get to London often, but I'm sure my brother in law took my DDs to mahaca a ? At Covent Garden last year.

I do have to visit London sometime in the next month or so to renew younger daughters Australian passport (bloody schlep) - cultural suggestions anyone? I'm game for anything - as long as the cafe is good ........

Have been out walking everyday since I got home (not far or fast) but am absolutely wiped out today so have had to have medicinal chocolate !!!! (Puts few remaining pieces on the trolley ......... Then shamefully, and gollum like, snatches them back.....)