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Tamoxifen 34 *the power of Sauron*

989 replies

MaryAnnSingleton · 29/03/2013 18:35

new thread !!!

OP posts:
KurriKurri · 05/04/2013 18:54

Coorong - the Grand Tour of Norwich would not take long Grin Although we have got 2 cathedrals (Liverpool eat your heart out!), and a big permanent market, and Jarrolds the completely unknown world famous department store.

I don't go down to London very often, but I should do it's not that expensive on the train.

I have a made up pudding called Apple Cornflumble for the trolley (it is stewed apples with a cornflake/crumble topping) - it is very good in a school dinnerish sort of way Grin

SparkleRainbow · 05/04/2013 19:20

I am so glad the trolley made it over...I was getting worried

I am putting a rather lovely Jamie Oliver Italian Meatball pasta on the trolley, know this is not a fbs, although it could be if you eat enough of it.....but dc have turned their noses up at it as it is "too spicy" (really isn't!!!!) so thought you might like to share. Wink Can have some Apple Cornfumble for dessert.......(oooo hark at me I am posh, Elite according to BBC!

KurriKurri · 05/04/2013 19:30

Where is this survey Sparkle? I'd like to do it (DH won't be elite - he is as common as a common thing, I, on the other hand, am very high class Grin)

topsyturner · 05/04/2013 20:23

I'm the New Affluent apparently kk
Wish someone would tell my bank balance that !

He too loves scrambled eggs .
Infact will eat just about anything apart from bananas and oranges .
Although he did spit out a piece of toast I gave him the other day as he wanted the piece with jam on it !!!

I am terribly un cultured .
I blame it on living in Belfast .

Gigondas · 05/04/2013 21:01

Shove up for an elite topsy . Meatballs and apple cornflake pud sound good- I took kids to nandos (GrinGrinGrin that was able to do something normal!) which was mixed success . It's very kid friendly but am not keen on spice on everything and nor was big gig. Mini gig just hoovered up chips and pitta.

Dh off to grand national tomorrow-I miss out on the day trip but can watch at home with fbs.

Kurri- that all sounds quite exciting for a tripGrin. DoeS old lady dog like pork pie? Have some nice one from butchers (offers it to old lady dog before sauron sees it).

MaryAnnSingleton · 05/04/2013 21:32

Am home alone and had cauliflower cheese for supper -was yummy, some cornflake pudding would be very nice. Am not very happy about G National as worry about the horses.
I did the quiz and got Established Middle Class Grin Dh got Technical Middle class - don't see how we got different scores though. Maybe I know more affluent people ?!

OP posts:
KurriKurri · 05/04/2013 21:49

Ha - I am established middle class (surely a mistake, I've got elite written all over me) DH is traditional working class - I knew it, I sooooooo married beneath me GrinGrin

But actually it is quite weird because obviously the income/home owner answers were the same, he just knows fewer people than me and all the ones he does know do the same job as him. Is there a traditional anti social bugger class?

Old lady dog likes snacks of all sorts, she is very keen on tuna, don't think she has tried pork pie, but she'd definitely be up for trying it, and she would do almost anything for a sausage Grin Yorkshire puddings panic her though - she has to hide them under a cushion to deal with later Grin

jchocchip · 05/04/2013 23:18

Nighty night - yorkshire puddings hidden under cushions Grin

Mum didn't recognise me immediately when I got here :(

Good job I came, she is nearly out of loo roll and lots of shopping to get tomorrow. Will try and get up early and go for a run :)

topsyturner · 05/04/2013 23:44

Oh Jane
It's about now that I'm so grateful that my parents are no longer on the scene .
It must be so hard for you

Had an evening at HNDs
Usual messiness ...
Horse riding for DD at 10.30 tomorrow .
Gonna be painful .

Did a total bedroom rearrange today .
Am gonna be soooo confused when I wake up at 3am for a pee ...

Gigondas · 06/04/2013 04:51

Brew For topsy. Don't worry am doing ok but just woke up a bit achy so having a Brew and some yoghurt (mas I know you would approve) before I can take some painkillers. Then back to bed.

Yes- it is sad about horses mas. There was an interesting thread on it the other day and I watched something last night about how they train them. They are beautiful animals.
Jchoc that is sad about your mum. Mil is similar - dh rang her to update her about me elc last week.she thought he was talking bout one of the kids and got quite upset/ confused . Tbh she doesn't really remember all the time about all her Gc Etc except the boys and I think that is mainly cos they are confused in her head with her sons.

This is one bastard disease no doubt but mental based decline bloody horrible too Sad.

On which dampener, can I ask for cake suggestions as baking with big gig later (if she can drag herself away from the film brave which she watched last night - half fascinated , half from behind daddy when it was scary ). What would old lady dog like?

Gigondas · 06/04/2013 04:52

Etc - I am not having an elc (shudders at thought- my elc with mini gig was fine but the idea of it did and does creep me out more yah. Any cancer surgery).

topsyturner · 06/04/2013 06:17

Am up very early (for me) today .
All because I rearranged my bedroom yesterday , and when I rolled over in bed I fell out !
My side of the bed is no longer up against the wall ...

jchocchip · 06/04/2013 07:02

topsy I shouldn't smile at you rolling out of bed Smile Got to get up and have a Brew

amberlight · 06/04/2013 07:33

Brew for you then topsy? Grin

MAS, I am not thrilled with the decision taken by the medical team for your friend. If she's not currently at one of the top cancer centres for the UK, I would suggest she gets referred to one. My suspicion would be that some doctor has thought 'poor dear, better off out of her misery' Hmm since there are choices available such as Cyberknife that patently could do a v effective job of killing off the tumour in situ. Mine is of course not a medical opinion since I am not a doctor. But grr for her.

Gigondas · 06/04/2013 07:40

Morning all- Brew please.

I agree with amber- radio (even if not cyber) can be so focussed now that it isn't as drastic an option as it once was. I would defo want a second opinion.

Grin At topsy falling out of bed- am doing a big spring clean of my room today (but no furniture moving ). Also having been surfing for nice scarves to hide the scars. Jenkins- we can compare scars when we meet up.

Sun is out here which is nice.

topsyturner · 06/04/2013 07:50

Glad to have amused you all this morning Grin

Sunny here too , but freezing . And judging by the cramp that's set in , in both my legs , we've got rain coming soon .....

Horse riding (for DD) at 10.30 today .
Then this afternoon it's haircut time for DS (which he hates) and a trip to the wool shop for me .

Then home to do more jigging about in my bedroom
Anyone got any shoe storage ideas ?
I , previously , just turfed them under my bed . But I am trying to be good .
Oh and another thought .
Why do I own 4 pairs of leopard print shoes ???

Gigondas · 06/04/2013 07:59

Cos you are channeling your inner bet lynch?

I like hanging shoe racks from ikea

notJenkins · 06/04/2013 08:06

Bright sunshine here today. We are off for a walk with the hounds. Going to stick to the beach after the mud yesterday. Sand is much easier to deal with.

Re your friend mas is there contraindications for her condition and surgery ? If not I can't see why they would not operate. I was shocked though to find out my cancer is not treated for people who need help with personal care so that pretty much rules out anyone with a moderate to severe disability. When I asked the medics about it ( I work with with people with a disability) they just shrugged and said they are not treated. I second the suggestion of getting another opinion.

My scar is still very visible gigs and I need a good cover story. I am going with the 'my husband tried to behead me' at the moment. When the weather warns up eventually scarves will be too hot so will have to be out and proud with my scar.

Gigondas · 06/04/2013 08:31

Yes I am not too fussed about scar showing eventually- it just when it is still quite tender and red. I will have 5 scars at end of it- that could rival most cage fighters ;)

Grin At dh beheading you.

topsyturner · 06/04/2013 08:44

Lolling at "my husband tried to behead me" GrinGrinGrin

Gigs just give your best 1000 yard stare and mumble something about "what happened in Nam , stays in Nam" .....

notJenkins · 06/04/2013 08:51

I must admit though I have been hermit like since my surgery and do not have a 'scar question strategy' in place yet. My job involves seeing a lot of patients / families / meetings etc so I will have to develop a few witty lines. my scar is right on my neck and is very visible.
The redness is fading but I have a thick bright white line that is very noticable and I won't be able to hide it without a scarf. If I take to wearing polo neck jumpers they may think I have developed a love bite habit and as I am very big of boob polo necks are a big no no.
Any suggestions for how to deflect scar questions would be most welcome.

MaryAnnSingleton · 06/04/2013 09:53

how about a light silky soft scarf,draped about the neck- could look v stylish ? Does Clare Balding have a visible scar now ? I suppose camouflage make up might be a bit of a faff.

I did laugh at your falling out of bed topsy - poor you Grin
gig can you make a coffee cake, I love coffee cake...

Thanks too for thoughts about my friend - how do you think I should broach the subject of further opinions/poss. treatment ? She is in Derbyshire - is there a good cancer centre there ?

What amber said is a bit chilling - it's tricky as she has lived beyond her predicted life span with this disease as far as I can gather.
Her movement is very limited and she needs hoists for getting out of bed,transferring to loo and shower and sofa. She finds holding,grabbing things hard and has a catheter with wee bag. Her speech is quite slurred now as she loses muscle tone Sad. She is wonderfully bright and used to be a teacher,music graduate who played the clarinet. We met when we both worked at Waterstone's and she was a lodger in my house for a while.
We fell out spectacularly and didn't speak for several years,then made it up and became very close again. We see her most times when we go up to visit MIL as it's on the way sort of. She is on her own - her dad is about but her mother is a total flake and useless and they no longer speak.

Am doing some work today and later am going out to dinner with parents (dad has persuaded mum to leave the house) and some friends of theior over from the US.
Boys seem to be having fun in Notts. They are off to lunch at the nicest pub restaurant which T loves and insists on going to- wonderful food.

OP posts:
topsyturner · 06/04/2013 09:54

What was your surgery nj ?
My sister in law had a thyroidectomy and you can't see the scar now at all
but she does have skin like Donatella Versace cos she likes to bake in the sun
And her surgery was from one side of the neck to the other .

topsyturner · 06/04/2013 09:58

Does your friend have a medical advocate for her other condition Mas ?
If so , she should get them to ask why she isn't being offered further treatment .

If she doesn't have one , I would get Macmillan on the case .

Or maybe if there's a support group for people with her condition , they could help ?

And make sure you put walnuts on that coffee cake Gigs !

notJenkins · 06/04/2013 10:08

I had a thyroidectomy and am hoping the scar will fade to look like a neck crease. I have spent an unhealthy amount of time looking at Claire Baldings neck recently and you can spot the scar if you know it is there but it looks like a neck crease.
Mine is very thick and noticeable at the moment so am hoping it will fade over time.

mas a quick google of your friends condition threw up the frequent occurrence of heart problems. Is it possible she made the decision herself not to have surgery and is just not wanting to discuss it. I guess it is a tricky one to bring up but if she is on the ball is she likely to just be going blindly along with it ? Does she have a partner to fight her corner ?