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Tamoxifen 34 *the power of Sauron*

989 replies

MaryAnnSingleton · 29/03/2013 18:35

new thread !!!

OP posts:
Gigondas · 03/04/2013 19:09

It is gracie- so havjng that done is good.

Ash- cross posted but glad all done. Be as gross as you like- I had my fanjo nuked when I had radio so could probably swop bowel effect stories Wink

Gracie - ballet mothers are terrifying. I did some of that as a kid and shudder at the memory.

jchocchip · 03/04/2013 19:09

Wine :(

HerNextDoorAt21 · 03/04/2013 19:29

Much better day today thanks everyone took both DS s and DH to to a place called W5 (google w5online) and we had lunch there too. Then had coffee with topsy and took her shopping with her DD. now home cooking dinner ..... Have had a peaceful and relatively restful day Grin

gigs i am glad you now have a date and can have a plan

amberlight · 03/04/2013 19:29

(I run a business and work as an autism trainer as well, so I meet new people all the time...but not in social groups. Tasks, great. Social interaction in groups, I'm rubbish, even if I like it. I do love meeting people from online (met most of my fb friends now for example). But I've also had one or two really scary experiences; one internet board set up a meeting of people - I went along - and after half an hour the group deliberately 'lost' me and disappeared on a bus to another part of town. I was v sad. But blessed with many good friends in life who don't think that's a good way to treat autie friends.)

(hands out more Wine and stocks up the fb trolley) )

graciesmall09 · 03/04/2013 19:50

amber you are definitely better off without friends like that. Abandoning you is nasty and wrong.

Glad you had a good day hnd. My kids love W5 although boys are getting a bit too old for it now.

That will be good to get the first stage over gigs. FIL has had a couple of angioplasts for blockages in his legs. I know it isn't the same as your neck but he recovered very quickly.

I will join you jchoc in admitting to eating lots of chocolate. I may have nibbled a few pieces half from the kids' Easter eggs.

Gigondas · 03/04/2013 19:54

That's good to hear gracie about fil as it is same procedure - just on my neck. I would have nicked some egg if big gig and dh had left much.

Dh says I am talking a lot and being manic BlushGrin.

That is a wretched way to treat anyone amber -Angry for you.

But more excited about your holiday plans- where are you off to?

Gigondas · 03/04/2013 19:55

Waves at hnd- glad you had a better day after yesterday. Meant to say agree with others that dh being off.

AshokanFarewell · 03/04/2013 20:00

Shock amber I cannot believe how horrible those people were! :( I'm glad you have lots of good friends as well. Those others have really missed out as you seem lovely! :)

HND I'm glad today was more relaxing

gracie well done to DD for remembering her moves

All those happy to discuss bowels, I'm in a bit of pain but woohoo op seems to have been successful! Almost like a normal person Grin

I have some chocolate Angel Delight for the trolley if anyone wants some Grin

notJenkins · 03/04/2013 20:04

Glad to hear your op date is set and not long to wait gigs. Will you be in for long after ?

Can I make it a hippy convoy with my VW camper ?

Discuss bowels as much as you like. A large part of my job is spent in people's bathrooms discussing that very thing and the finer points of arse or fanjo wiping so I am completely unshockable. My gran had a pouch for years too and liked to discuss it at length which was quite entertaining when she did it loudly in busy restaurants. She had no shame and as she was such a sweet old lady no one would ever dare ask her to change the subject !
I have just come back from the beach and it was so cold it was like the arctic. The beach was completely empty and windswept. Very bracing.

Gigondas · 03/04/2013 20:08

Only one night for this op- might be in for some time for main ops. I have treated myself to some new lounging about kit and may get the onesie out ;)

Beach photo looked lovely.

Envy About chocolate angel delight.

Now back to this house programme that dh wants to watch - very odd what some people think will sell.

sandripples · 03/04/2013 20:22

Greylady - I can't remember how to do a PM right now! Anyway, if you do find we're going to be at Hay on the same dates do PM me as I don't follow the thread every day so am likely to miss it if you put it on thread! Thanks.

graciesmall09 · 03/04/2013 20:33

Oh love your dogs notj.

greylady how are your tummy pains? Are you feeling any better?

Angel Delight - yum.

notJenkins · 03/04/2013 20:38

Ah thanks gracie my FB has loads more dog pictures than children pictures Blush
Now I am feeling more normal the dogs don't know what has hit them as walking them is a novelty again. The hooligan puppy is still partial to assaulting random people by jumping all over them so it can be rather hairy at times.

BasketzatDawn · 03/04/2013 20:39

Still reading from the sidelines, everyone. Wanted to say a few things - and will probably miss my main points as usual, as brain doing badly on steroids. Gig, you are in good company in terms of steroid effect as my DH (and ds4 agreed) complained today i was talking far too loudly (i know he was right - i could hear myself but couldn't stop itBlush).

Obviously i can't be let out in polite company, moods are swinging like blazes, and I feel mostly pretty crap. Dose going down slowly, but still on a fairly large amount. I hope the angioplasty - and of course the later 'main event'- go really well, gig, and I am so sorry you are going through this again.

I am off for a bath shortly and will try to read - struggling to focus on anything much at mo (have just cast on a/nother pair of gloves - you can never have too many pairs of gloves, esp
unfinished ones .....). The sun has shone on Scotland today, almost springlike. My brother,whose birthday it is, ws complaining of the cold. 'baltic with sun'. I told him weather is relative for us Scottish people.

I wanted to say I love Amber's very intelligent insightsto life with autism. As mother (and probably wife)of various people on spectrum, it helps me enormpously to understand what is going on, and of course support my lovely people.

I send best wishes too to Norfolk and Lillte Old Lady dog and her mistress.

Lastly, love and best wishes to all of you. i am reading, just not saying much these days - well, I am in RL(too much to say there. allegedly). I have my evening headache now. And I think keyboard is playing silly buggers. Tis hard ot tell the difference between 'steroid brain', fat finger syndrome, and keyboard playing silly buggers. IMO and great E of all three.

Gigondas · 03/04/2013 20:41

Basketz so lovely to hear from you{{{ }}}

Glad I am not the only chatterbox Wink

BasketzatDawn · 03/04/2013 20:50

On onesies, ds3's gf gave him a onesie as a Valentine's present. Twas very funny to see a 6'3 ish beanpole in a onesie. Legs stopped halfway up his calves. He reckons he will wear it in freshers week (I think it'sa dare). He is going to Glasgow to do Microbiology - his first choice. Thank heavens somebody in family is doing okay.

SparkleRainbow · 03/04/2013 22:25

I am glad you have got through it so well Ash....now hoping you get a good nights sleep tonight.

Copthallresident · 04/04/2013 01:30

Quickly popping in as early start tomorrow, Wine should keep hormones calm for a decent nights sleep, beatific Smile

Amber There is no end to the ignorance of people, some just don't have the imagination to understand difference. Thank goodness we are not all the same. I promise I'll make sure the hippy bus waits for you to board. I can't believe any of us wouldn't do the same.

nj oh yes VW campervans welcome!! And your dogs are gorgeous.

Ash Also happy to discuss bowels and poo, glad your pouch back in working order.

gigs . I spent a lot of time in SF in the 80s. I could have gone to live there but the hippys had all gone, not one in Golden Gate Park or Haight Ashbury and though stunningly beautiful I found it a bit souless and parochial, decadent even, even the gay community were keeping a low profile then. I thought it was me but then given I have practically turned Chinese and would give anything to go back and live in China I don't think it was Hmm Or maybe it was finding that the roach infestation in the serviced flat was eminating from the alarm clock radio next to the bed, turned my head one night to see a roach disco going on across the clock face Shock

Gracie I can imagine scary ballet mums are a breed apart .

Night all

Gigondas · 04/04/2013 04:41

Ugh at cockroaches - see you are also doing odd hours copthall. Am up with the steroid insomnia but did sleep better and pain ok so am happy.

Grin At your ds onesie baskets. Mine is huge rather than too small but so snug .

AshokanFarewell · 04/04/2013 08:19

Good morning everyone.

I feel like crying :( turns out the op didn't make any real difference, it must just have been the constipating effects of the ondansetron they gave me with the GA :( my skin is completely raw, I have what is basically extreme nappy rash Blush because stuff comes out far more acidic and also still has enzymes in it, and my poor bottom just cannot cope :( I was up a few times in the night and it took everything I had not to scream. It feels like I've eaten a whole punnet of chillies and I'm trying to pass a shard of broken glass! I've got creams and wipes and all sorts and I'm on maximum doses of two bowel slowing drugs but none of it seems to be helping.

Plus no one will give me an answer as to whether I'm having an infusion next week or not, twice I've tried to get a message to my oncologist and twice I've had a reply that yes it's fine to take my tablets, pick them up next week. Which is not the question I was asking Angry I don't know whether to assume that means no infusion, but I'm booked in at chemo suite apparently. If I went and had the infusion without confirmation from him he would be furious though. Is all such a nightmare. He is going on holiday so I won't be able to see him before the day I'm booked in for infusion, my cancer nurse is also on holiday and wasn't much help when she was around. Argh. All such a nightmare. AngrySad

I hope everyone has had a restful night, sorry to come on here with so much to moan about :(

amberlight · 04/04/2013 09:08

Ashok, arrgh and ow. Aloe Vera gel?

thegreylady · 04/04/2013 09:08

Oh Ash that sounds absolutely horrible. I had the acid diarrhoea and burnt bum when I was on chemo. It is horrible. I would think your infusion would go ahead but ring the chemo suite before you set off. I can't find your back story so don't know if you are in the UK so I won't say more for now. Sorry you are so miserable: (

notJenkins · 04/04/2013 09:39

Oh ash that sounds really horrible. Have you got sudocream ? We use that for nasty rashes / as a barrier cream and it seems to work for us.

I can't suggest anything sadly but sympathise with you. We are here if you need to rant.

I have some organic white crusty bread so can offer very high carb toast this morning.

MaryAnnSingleton · 04/04/2013 09:51

am trying to catch up after a day away - forgive me for not acknowledging everything...
waving happily to see basketz and glad you have a date gig
ashokan bugger- am so sorry you are still suffering despite op Sad -a gentle hug for you.
amber we would all 'get' you if we met as I feel we know you pretty well from here,besides we love you anyway Grin

Please send loving thoughts to my friend who gets her results tomorrow and to my new friend from secondary group who has ascites (had to look that up)-basically fluid in abdomen from poss. liver mets- arghh)
Had a lovely day yesterday in London with dh and T - South Bank then Portrait Gallery (saw photographic portraits of Damien Lewis and the very lovely David Morrissey among others) Showed T Soho and all it's glories as he hadn't been there before -and it was where I spent much time rambling about as a foundation student at St Martin's which was then on Charing X Road - also nostalgic as my mum was a student there. In her honour we had coffee and cake at Maison Bertaux where she used to go (bloody expensive for 3 coffees and an eclair and almond macaroon -though they were delicious) Wandered about- amazingly bumped into my brother (how small the world is) up from Bath to work on a sports event in Victoria park.
Went to Liberty and marvelled at a Persian rug costing over £3k then wandered back towards Covent Garden and the London Graphic Centre to buy some ink,pens and a new pencil followed by early supper at Wahaca -yum. Walked back to Waterloo and home- totally knackered.

OP posts:
thenightisyoung · 04/04/2013 10:07

Ash, everything sounds just horrible for you right now. I hope that maybe things might settle a little bit because GAs can really mess up the system. I am really Angry at the way you are being treated as far as getting info about your chemo is concerned. When you get the strength up call again and again if necessary. Everyone has their favourite bum cream - mine is bepanthan ( that may not be entirely correct spelling )
Gig, good that you have a date and something to aim for. A onesie sounds very comfy and comforting Smile
kurri, i hope you and your lovely old lady dog are ok

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