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Pt 7 (Feb13) Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc

994 replies

WhoKnowsWhereTheTimeGoes · 20/02/2013 19:05

This is thread 7 (again - see below) of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

With apologies for confusion in thread numbers - the previous thread was called part 7 but it was actually the 6th thread.

Here are the previous threads:

Thread 1
Thread 2
Thread 3
Thread 4
Thread 5
Thread 6

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
mrsclairet · 07/06/2013 14:52

Hi, I have been back to the doctors again today to check the urine infection has gone and I saw a nurse and she said I have got white blood cells in my urine and blood and so gave me another 5 days of the same antibiotics. The stinging has gone and I was really hoping she was going to say I was alright so I thought I would phone the hospital and see what they said. I spoke to one of the nurses who had treated me and she said there will be blood in my urine because of the operation and if I am not feeling unwell then she wouldn't bother to take them. I said I was feeling like I need the toilet frequently but she said that was also because of the operation. So I think I will stop taking them, I can't see what use 5 more days of the same antibiotic will do and I'm worried I'm going to get horrendous thrush if I carry on for much longer.

I am feeling really tired today. Yesterday I went to the park for 3 hours because my in laws are going to New Zealand for 2 months and my DH was like 'oh you'll be fine' and drove me there but I think it was probably a bit much, even though I was sitting down for most of it. My DH has been looking after me for 2 weeks now and has done really well but I think now that I am able to do more he thinks I'm better, so I'm quite looking forward to my mum arriving on monday!

WhoKnowsWhereTheTimeGoes · 07/06/2013 16:42

Bladder - I use an Iphone app called Kegel Trainer that bleeps at me three times a day and then times you to do the long squeezes. I do tend to ignore it quite a lot though and end up doing catch up just before I go to bed, in fact I have been a bit neglectful again recently and must start doing them more regularly again.

OP posts:
kotinka · 07/06/2013 18:01

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WhoKnowsWhereTheTimeGoes · 07/06/2013 18:06

Don't worry Kotinka, that is normal, it is a seam wherew they have sewn you up (imagine sewing a square of cloth into a cylinder). It will reduce a lot over the next couple of months, although will remain to some degree.

OP posts:
kotinka · 07/06/2013 18:11

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WhoKnowsWhereTheTimeGoes · 07/06/2013 18:15

I remember posting the exact same thing at 6 weeks! About the sex that is. I was also worried about the ridge, but had a checkup at 8 weeks and was reassured. It did take 3 or 4 months to completely settle to it's final shape.

OP posts:
kotinka · 07/06/2013 18:19

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WhoKnowsWhereTheTimeGoes · 07/06/2013 18:25

I felt the same, thought the repair had failed, I was honestly expecting a perfect cylinder. Anyway, it is a whole lot better than before (or should that be a hole lot?) Grin

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kotinka · 07/06/2013 18:33

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IDoAllMyOwnStunts · 07/06/2013 20:41

Mistyviolet, Bladderama, thanks so much for the words of encoragement. In a strange way I am looking forward to the op, just to live a normal life again (not to be constantly pre-empting situations where I'm going to leak) will be life changing for me, why didnt I get help years ago?!. I'll keep folks updated - Mistyviolet do you find you take longer to wee now as I know this can be a common side effect? Thanks so much x

WhoKnowsWhereTheTimeGoes · 07/06/2013 20:57

Ido - while I haven't had TVT myself I have a friend in RL who has had it done and it has been life changing for her.

OP posts:
mistyviolet · 07/06/2013 21:06

IDo - I would say that the flow is slower than before but not really slow. After the op I was bothered with an irritable bladder but I think that was due to years of going to the toilet 'just incase' instead of when I needed to go. I have been training my bladder and can now go longer than some of my friends. I can also sleep all night without getting up to go. Before I would be up at least twice during the night.

I was really excited about my surgery too. I just wanted to be normal again. Although the recovey took a while I can honestly say it was totally worth it.

IDoAllMyOwnStunts · 07/06/2013 21:34

Whoknows and Misty thanks so much, this is just the sort of thing I need to hear. The internet can be a scary place once you start googling - I was almost put off going for it until I spoke to the consultant, but now I just feel excited (bit like a kid in anticiption of christmas), how sad am I!

ClaresAvonRecruitment · 07/06/2013 22:17

Bladderama, I do feel really disappointed as well about paying... I went to docs about two months ago for morning after pill, having had mirena coil removed two years ago.. He (yes was just my luck to get male locum doctor) asked me what contraception I had been using, I said none, he looked at screen, then me, and I said 'Yes, that's the problem'.. I went on to say I either have it sorted out, or I'm celebate for the rest of my life... He said words along lines of 'Well, we can't sort that out today'... I've been telling docs for 11 years that my body wasn't right... One time they agreed to refer me to private gynaecologist who said I had 'normal anatomy of a women of my age in similar circumstance' (what, ruined I thought)... I spent hundreds of pounds seeing a private physiotherapist every week, pulling great number 10s on their device they had, but ultimately, everything down there looked just wrong... I could see things there I knew shouldn't be there... Anyway, when I met with harley surgeon and he asked me to 'bear down' during the examination, he was quick to say, 'oh yes, yes that's fine, I can see' so I'm guessing after all it was in a bad way... Now I've had surgery, my bits down there don't open from literally the front to the back, there's actually a new area of perineum....
Last weeks episode of Embarassing Bodies there was a girl who said I feel like my vaginas falling out.... And that was exactly how I felt....
Anyway, it's done now and I'm over the moon at the prospect of feeling normal at long last... :)

Tr0ubled · 07/06/2013 22:24

Hi all, I've avoided posting on here for a little while as I've been feeling really down and as there were a few ladies who had only recently had their operations I didn't want to paint a negative picture for them.

I'm 14 weeks post op for rectocele, entrocele, cystocele, perenium rebuild and heamorrhoidectomy. I mentioned a few weeks ago that I thought my rectocele may be back. Going for a poo is almost impossible and I have been needing to splint again although even that doesn't really help. I just cannot totally empty my bowels, and have no ability to push at all. And the pressure of not being able to go is leaving my perenium repair so so painful.

Anyway I went back to see my consultant this week. He examined me quite thoroughly and has booked me for a defecating proctogram (it will be my 3rd one). He thinks I may possibly have an intussusception, not really sure what it is even after googling it. I'm more convinced that I still have a rectocele and even entrocele :(

I'm just so fed up of all this now. I'd just like my body to be mine again and not for the exploration of consultants and physics.

Tr0ubled · 07/06/2013 22:24

*physios

ClaresAvonRecruitment · 07/06/2013 22:31

Oh poor you that sounds awful even tho I don't know some of the names of the things u mentioned :( I do however feel I'm not emptying properly either, and when I poo, I have to hold everything down there to support it, and even then I can feel it all bulging downwards which worries me tbh.... Don't worry about having to share what you have to share... I would imagine all 'newbies' appreciate it might not always be a smooth ride, but I'm crossing my fingers for everyone with problems, that they'll be fixed soon x

WhoKnowsWhereTheTimeGoes · 07/06/2013 22:32

Oh Troubled , you poor thing, you have had a really rough ride with this. Is an intussusseption where the bowel sort of concertinas? When have you got the proctogrm booked? Have you been seen by the colo-rectal consultant of just the gynae one? I really hope you can get some proper answers as to what you need doing this time. xx

OP posts:
Tr0ubled · 08/06/2013 00:03

Proctogram is booked for week after next, apparently with one of the top guys in the country (he introduced proctograms to the UK I'm told). I saw a colorectal consultant initially 3 yrs ago but was passed onto UroGynae for my op. However I had a colorectal surgeon there during my prolapse surgery as he performed my hemorrhoidectomy at the same time so I'd imagine I'll go back to him. My UroGynae consultant has said once he establishes what's wrong he will refer me on if necessary.
The bowel concertina is exactly what an intussusseption is, but I really feel that's not what's wrong. I had a colonoscopy 2 yrs ago so surely it would have shown in that.

mrsclairet · 08/06/2013 09:18

oh troubled I don't know what to say, it is such a big thing to go through the operation and it must be so hard to feel like it hasn't worked, big hugs xxxx

kotinka · 08/06/2013 11:08

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Dahlialover · 08/06/2013 19:41

Hi Troubled - sorry to hear things are not going too well. I thought my rectocele had not worked on the poo front - it only has a 40 per cent success rate from what I can work out. However, the weeks of relaxing pelvic floor muscles, combined with improvements in healing have resulted in quite a few successes. It varies daily and I am on an 'up' today :)

If nothing else, the perineum is an improvement.

LoveBeingUpAt4InTheMorning · 09/06/2013 08:27

Morning Troubled

I really feel for you, having all that done at once and now having problems again do soon. I don't think anyone would want you to feel you couldn't post.

Hope you get some answers soon.

mrsclairet · 09/06/2013 15:00

Hi, I am 2.5 weeks post surgery now and am feeling quite pleased with how things have gone. I had an upset stomach yesterday which was a bit rubbish and I still feel like I need a wee all the time but have come off the antibiotics, when I phoned the hospital they just said that's because of the surgery? I feel like I am making lots of progress in that I can easily sit down for 10 minutes at a time now and stand up for about the same, I have also managed today without any paracetamol or ibuprofen. I'm getting really bored though! I don't want to overdo it but feel like I am wanting to do more jobs (only things like put a load of washing on, emptying the dishwasher, stuff like that). I just wondered what other people were doing 2 weeks after surgery?

kotinka · 09/06/2013 18:57

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