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Pt 7 (Feb13) Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc

994 replies

WhoKnowsWhereTheTimeGoes · 20/02/2013 19:05

This is thread 7 (again - see below) of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

With apologies for confusion in thread numbers - the previous thread was called part 7 but it was actually the 6th thread.

Here are the previous threads:

Thread 1
Thread 2
Thread 3
Thread 4
Thread 5
Thread 6

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
Tr0ubled · 28/05/2013 10:06

MrsC I totally agree with Fengirl, don't leave the suppository for a last resort. The buildup to my first poo was just like 2nd stage labour at times, I was even kneeling on the floor head in my hands trying to breathe through it. When I eventually went the relief was amazing so please don't put it off any longer.

Fen, good to see your name on here. I hope all continues to go well for you :)

Tr0ubled · 28/05/2013 10:12

Sorry Fen, think we crossed posts then!
Fortunately I don't have any of that cheese wire, I remember when you were suffering with yours, but the scar is very sensitive and the area around it hard and painfu. The pain runs through my left buttock most of the time. My physio did say that it can take 9 months for these scars to fully settle, so there's hope for both of us :)

The positive side is that I am no longer 'gaping' and it looks quite neat down below! This may be all I take from the surgery though as I'm now even more convinced the rectocele repair hasn't worked. Had to fully splint (internally) this morning and could feel everything.

Dahlialover · 28/05/2013 13:13

Mrs C - you may need to use more that one suppository if it has been a while. You end up with a hard plug of faeces which prevents things from moving, and a couple, kept in for at least 20-30minutes, will help break it down and provide lubrication for the rest.

Fibogel only helps if you are not taking in enough fibre, and must be accompanied with plenty fluids, but it will not move a dried up plug. Personally, I found lactulose gave me incredible wind and seemed to work by blowing the stuff out, like an air gun. The speed at which it hit the porcelain was worrying. Fortunately, the toilet survived, and I did not use it post-op, so no damage there!

I have had better luck with movicol (increases the fluid in stools) and dulcoease.

I am still having probs post op. as it only works if I can get the softening and the movement together and I seem to get one or the other, which is not much fun.
The pains and 'infections' have been solved by taking vagifem (vaginal oestrogen). It is quite like magic - I would not have believed I was headed on the 'Vag At' route, but it does seem to have worked, so far.

rainbow2911 · 29/05/2013 09:13

I think I need to join this thread. Unfortunately I'm pretty
sure I have a prolapse (or two). Had problems with bowel movements after the birth of my ds1, 10 years ago. Needed to splint and never feel done. My cervix has also been getting progressively lower with each dc (I have 3) and now to cap it all off I can feel a bulge on the front wall to match the back. Feeling very uncomfortable and achey. I have an appointment with a
GP on monday and really dreading it!

kotinka · 29/05/2013 09:58

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Message withdrawn at poster's request.

mrsclairet · 29/05/2013 12:14

Hi, thanks for your concern kotinka, the pooing has got better, hooray! I haven't ever been that constipated, it was horrendous! I still feel like I have symptoms of a UTI but I phoned the ward today and she said I have got to finish the course of antibiotics and then phone back if there's still problems. I thought antibiotics usually worked pretty quickly but I guess I have to do what they say.

rainbow - I have found this thread so helpful and supportive, I read through 4 pages of it before my op! Do you know the doctor you are seeing? I have to say sometimes my GPs are rubbish but with this I saw two women doctors who were brilliant and just referred me to see a consultant straightaway. (I went once and ended up delaying the op for a year so had to go back again). I was a bit scared because I'm only 31 and thought they might say I was too young but they were happy that I don't want any more children, I have 2 and thats enough! Hope it goes well for you x

kotinka · 29/05/2013 13:43

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mrsclairet · 29/05/2013 19:57

Hi, am feeling a lot better physically today, I have actually walked up and down the stairs about 4 times (the rest of the time I have just been lying down) but feel a bit all over the place emotionally. I had a bad night, didn't sleep very well and just feel so worried about everything. I'm worried the antibiotics aren't working, I'm worried I have strained whilst trying to empty my bowels and the novelty of lounging around watching tv is starting to wear off. (Luckily the last poo I did was really soft so I am hoping 2 days of straining won't have completely ruined everything).

I think I remember somebody saying a while back it's like your mind keeps going over and over it and I think that's what I'm doing at the moment. I hated being in hospital on my own and having all these things done to me and being in pain and I think now that I am feeling better physically my mind is trying to make sense of all the emotions.

Sorry for rambling on but it does help!

Footle · 29/05/2013 21:50

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fengirl1 · 29/05/2013 23:07

Mrsc, everything will still be dreadfully swollen and possibly bruised too. It WILL be feeling bad. My gp likened it to the trauma of a car crash. Be kind and don't expect too much of yourself. Books, puzzles, crappy films and anything else are your friends at the moment (I slept a lot too).

WhoKnowsWhereTheTimeGoes · 29/05/2013 23:14

Hi MrsC - I hardly slept a wink the first week or so after my op, partly because my brain was spinning with it all and partly from the total shock to the system of being largely confined to bed, unable to do anything. I also think general anaesthetic really takes it out of you physically and mentally but part of you feels as though you are making a fuss over nothing as there are no visible signs of the surgery. It will pass. Keep posting here, everyone understands.

OP posts:
kotinka · 30/05/2013 12:40

This reply has been deleted

Message withdrawn at poster's request.

mrsclairet · 30/05/2013 13:22

Hi, thanks yes I think it maybe is a bit of post traumatic stress. I felt quite alone in there as my husband had to look after the kids so he did come to visit but only for a short time as the kids got bored quickly. Also having to have a catheter put in twice whilst I was awake was quite traumatic, the nurses wiped me down beforehand but it felt like they were being rough. The second time there was one more senior nurse and another nurse and she was saying to this other nurse "No, you've got to do this first and then do that" and I felt like saying "I don't want you to do it if you don't know what you're doing" but this nurse was horrible and I could tell she'd be really stroppy if I said that so I just left it. Then when it was back in it was really hurting and they were asking me all these questions and saying it shouldn't hurt this much and I was just thinking I don't know, you're the nurses you should tell me why it's hurting! Then the more senior nurse suggested a cold pack which sounded great and this horrible nurse was like "oh no, you want heat don't you? Uh I can't imagine putting something cold down there!" She just didn't seem to have a clue!

I have got one day left on the antibiotics, it's really coming and going at the moment but today is the first day my bottom hasn't really hurt when I have been to the toilet so I am going to try to drink more. I think I had been holding it in and not drinking loads because it hurt so much (back and front) when I went to the toilet.

kotinka sorry to hear you are still in so much pain. When is your follow up appointment? I haven't got any help with the kids after 4 weeks so I am really hoping I won't still be in lots of pain!

kotinka · 30/05/2013 17:46

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Message withdrawn at poster's request.

Nannasylv · 31/05/2013 00:19

mangledmess - please don't worry about mentioning my situation, it may help others to know how hard the battle for fixing can be. I haven't given up yet, and am currently waiting for a different surgeon to examine me (under anaesthetic). I am praying for him to find the cause, and taken the repair option, but I'm not holding my breath, after over 17 years of fighting for the right diagnosis/help!

Everyone else - I am still SO jealous of all those who managed to get fixed! I keep buying my lotto ticket, in the hope that I may win, and be able to get fixed privately! Ha-ha!

Hugs to all XX

ClaresAvonRecruitment · 31/05/2013 11:37

Hello ladies, I'm day 5 post op, anterior and posterior repair for 3 large births, last one 12 years ago.... Have been to docs for last 11 years with my 'problem' spent prob a grand on private physio, still fed up living with it, so in January following my mums death, took the plunge to see a couple of 'cosmetic surgery' company's (I don't feel it's cosmetic btw, rather a medical necessity).... Went with harley medical as they use dr mascarenas at the london highgate hospital, and all he does is gynae stuff so I felt really assured by this.... I had to take out a loan for the £5000 it cost, and tbh, I do feel let down by my own doctors for not referring me on nhs... Apparently my births weren't traumatic enough! Anyway, so far so good, am sat here during half term resting watching daytime tv.... And reading all the threads about recovery etc :)

mrsclairet · 31/05/2013 12:16

Hello clares avon recruitment. I had the same done as you last Thursday and seem to have had quite a few problems but am slowly getting better. I had mine done on the NHS and got referred straightaway so it seems I was quite lucky! I wasn't really having too many symptoms but you could clearly see a bulge which I hated.

kotinka - I have been back to the doctors today and have still got an infection so they have given me some different antibiotics to take for a week, fingers crossed they work!!

nannasylv - sorry to hear you are having such a fight to get treatment, I will try to stop moaning as even though it's been more painful than I thought it would be I'm still glad I had it done.

ClaresAvonRecruitment · 31/05/2013 12:40

mrsclairet sorry to hear you've an infection... I was advised to liberally spray down below with savlon spray especially after going to the toilet so I've been doing that so much so, last night I had to apply germolene to the area either side where my pants and sanitary towels are rubbing... That was very sore! I almost fainted yesterday morning trying to poop for the first time, hadn't been since last Saturday when I foolishly ate pizza and think that bunged me up a bit... Dr mascarenas did advise to take lactulose which I didn't get around to buying, so fours days of senecot and I felt REALLY bad yesterday the pressure was unbearable... But all the pelvic floor exercises I'd been doing were holding it in so it was a catch 22 situation.. But after two hours of trying, I finally went... Now I'm on prune juice:) my follow up appt is next week so I'm hoping they've got some before and after photos to show me as I deleted mine pretty sharp ish from my mobile!

mrsclairet · 31/05/2013 13:35

That's funny, I don't think you get shown any photos on the NHS!! I got constipated too but am feeling much better now without all the pressure. I am taking 1 dulcoease every other day just to make sure it doesn't happen again but I think it was just due to the morphine.

I think my main problem now is just going to be frustration at not being able to do things. My next door neighbours are getting married today and I'm really gutted I can't go. The groom is surprising the bride with a little band that he has formed and my husband is playing the bass guitar and has got the 2 kids on his own so am really not sure how that will work out! I am doing a little bit more each day, like today I made myself and the boys some sandwiches but it just feels so slow and I know from reading this thread that it's easy to feel like you're ok and you can do stuff but then you end up over-doing it.

ClaresAvonRecruitment · 31/05/2013 13:46

I know what u mean, I tried carrying washing basket earlier then had hour or so of belly pain... Oh came home from work yesterday and was like "what are you doing in bed?" Seems they forget very easily what's happened.. I got home from hospital Tuesday lunchtime then did an Internet food shop that night as the kids hadn't eaten for the last two days! He tends to think if he's not hungry then no one else is either.... My kids are older though so it's relatively easy for me (15,13,12) apart from reminding them that I can't run them here there and everywhere and they've got to get their own way to places..... Think I'm still in honeymoon period enjoying time off and sitting down, fingers crossed it carries on this way.....

mrsclairet · 31/05/2013 18:40

Hi, yes DS1 is almost 5 and DS2 is 2 and I have to say as much as I love them they are very full on and I will be relieved when DS1 goes back to school. My youngest has been quite unsettled by it all and since I went into hospital the boys have started sleeping together in the same bed which I think is very cute! I hope we can get them out of that habit though as I worry abour my youngest falling out of the big boy bed!

Are you still weariing stockings to prevent dvt? They said at the hospital I should wear them until I am more mobile but gave up yesterday as I was getting sick of them.

mrsclairet · 31/05/2013 21:02

Hmm, my legs are really starting to ache, do you think it's just because I'm spending so much time sitting down or do you think I should get it checked out at the doctors?

Tr0ubled · 31/05/2013 23:23

My legs were quite weak as I was lying in bed mostly for the first couple of weeks and so could ache at times if I'd been on them too long. I would say if they actually hurt though to see your doctor. Do you have any breathlessness?

LoveBeingUpAt4InTheMorning · 01/06/2013 15:43

got my first physio appointment on Monday at 9am and my period has just started, what do I do? Do I still go, do I call first thing and risk them saying I should have gone?

ClaresAvonRecruitment · 01/06/2013 20:25

I haven't kept my compression stockings on, I took them off before I left the hospital Tuesday.. I must say, things down there feel very heavy today, being weekend it's been difficult to rest I had to go to nieces birthday so I totally forgot pain relief for 5 hours and have paid the price all afternoon, feels like I'm dropping out again :( I don't know whether I've done damage the other day when I pooped... I really underestimated the 'postoperative constipation' I've been having a glass of prune juice first thing and I'm bunged up again:( so I'll be asking OH to take me to boots later to get some dulcolax I think.... I didn't realise I really would need to stay sat down for the two weeks afterwards.. It was a false sense of security on day 5 I felt ok enough to do laundry...

Lovebeingup regarding period, I was told they could do op if I came on... My periods are all over the place so it was really difficult to plan the op in the first place...
On that note, I can't wait to be able to use tampons... Haven't been able to use them/keep them in for over ten years!!